Royal Borough of Kingston upon Thames Lesbian, Gay, Bisexual and Transgender (LGBT) Sexual Health Needs Assessment
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Royal Borough of Kingston upon Thames Lesbian, Gay, Bisexual and Transgender (LGBT) Sexual Health Needs Assessment Dee Wang Research & Performance Officer Contributions by Karen Skipper, Oliver Gilbody & Daniel Winstanley West London Gay Men’s Project (WLGMP) February 2013
Kingston upon Thames LGBT Needs Assessment 1 Executive Summary The local authority of the Royal Borough of Kingston upon Thames has identified a gap in knowledge in relation to the health and well-being needs and experiences of lesbian, gay, bisexual and transgender (LGBT) people living in the borough. The health needs of the LGBT community are often overlooked at a strategic level and in the design and delivery of services. Thus, in consultation with the LGBT communities and key health and well-being organisations in Kingston, the West London Gay Men’s Project (WLGMP) was commissioned by NHS Kingston to develop the LGBT Sexual Health and Wellbeing Needs Assessment as a tool to gather reliable information from which to assess and make recommendations for effective local services going forwards. Project aims To understand the sexual health and well-being needs of LGBT people, to explore their experiences of accessing health services in the borough of Kingston and to make recommendations that would enable organisations to develop services that are effective, evidence based, appropriate and sensitive to the needs of LGBT people. In order to accomplish this WLGMP consulted with the LGBT community and key health organisations in the design and distribution of the questionnaire. The questionnaire included a range of question formats from multiple choice to open ended questions in order to gather both quantitative and qualitative data. A short focus group discussion was held with support from Kingston LGBT Forum to gather further qualitative information. The Findings Sample profile A total of 125 LGBT people completed the questionnaire. The gender balance was 22 women and 103 men, with 9 identifying as transgender. 12.0% identified as lesbian, 76.8% as gay men, 8.0% as bisexual and 0.8% each for others including men who has sex with men (MSM), heterosexual transgender man, not sure and not given. Women were more strongly represented in the 20 – 29 age group, whereas men were more strongly represented in the 20 – 59 age groups. 87.2% identified as various white backgrounds and 6.4% from the Black Asian and Minority Ethnic (BAME) community ii WLGMP
The most popular places for LGBT people to socialise are social gatherings at home or visiting friends, general bars and clubs and LGBT exclusive bars and clubs, followed by theatre /Cinema /Restaurants and dating/hook up websites. 96.8% of respondents are out to all or some of their friends, 88.0% are out to all or some of their family with only 64.2% out to their GP/doctor. Health & Wellbeing 80.8% of the respondents claimed having experienced certain mental health problems. The most common issues include stress, anxiety and depression. A high number, 29.6%, disclosed having experienced suicidal thoughts. 28.8% of respondents smoke. 24.8% regularly binge drink. 38.4% use drugs. 33% of gay respondents had more than 5 sexual partners in the past 6 months compared to lesbian respondents who had 1 or fewer sexual partners. Most respondents do not believe external factors impact their choice to have safer sex. Within those who agree that external factors do affect their choice, alcohol, drugs, depression and loneliness have had a negative influence when making safer sex decisions. 30.4% had never used any sexual health services in Kingston. The most popular sexual health service providers for male respondents are: K2 clinic, GUM clinic(s) and the Wolverton Centre’s sexual health service. The most popular sexual health service providers for female respondents are: GPs, family planning clinics and GUM clinic(s). 5.6% had never used any sexual health service at all; many of these are female respondents. For those who seek services outside Kingston, the most popular services are STI screening/treatment, HIV screening/treatment, free condoms (and lube) and information/support. Use of Services Only slightly more than a quarter of the respondents used the local LGBT services/groups. “I’ve lived in RBK for 40 years and was totally unaware that there are LGBT services here now! How can this be? What's gone wrong?” 84.8% used LGBT services outside Kingston, mainly for social groups, community groups and condom (and lube) services. iii WLGMP
Kingston upon Thames LGBT Needs Assessment Experience with health Care 42.4% hadn’t come out to their GP/doctor. 77.8% of transgender respondents hadn’t been given relevant information by a healthcare professional. 56.8% didn’t think that their needs were fully understood by health staff. The most important consideration in choosing a service is confidentiality (91.2%), opening times (91.2%), comprehensive sexual health screening (88.8%) and location (88.8%). 12 people participated in the focus group discussion and raised issues such as bullying in school, assault and physical threat and parenthood that are facing LGBT people. Homophobia and heteronormativity (presumption of heterosexuality)1 are witnessed within health and social care services. Lesbian participants reported more experience of heteronormativity and found it harder to find specific health care services for their needs. Recommendations GP and Primary Care It is essential to improve accessibility and appropriateness of mainstream services. Mainstream health care providers should revisit diversity training to ensure that it raises awareness of how to effectively meet the needs of LGBT people, given that 42% of respondents had not disclosed their sexual identity to their doctor, and 78% of transgender respondents were offered no relevant information, with 57% saying their needs were not fully understood. Health and social care staff should be equipped with the skills to work more sensitively with their LGBT patients, and adopt a standard of care to ensure that all LGBT people are treated fairly, appropriately and respectfully. Health and social care professionals should be trained to focus on the health issues that specifically relate to LGBT people. Mainstream health care providers should review EVERYTHING YOU ALWAYS WANTED TO KNOW ABOUT SEXUAL ORIENTATION MONITORING... BUT WERE AFRAID TO ASK, a practice guide to monitoring sexual orientation commissioned by NHS North West, aimed at the public sector carrying out monitoring of staff and service users1. iv WLGMP
Mental health and well-being Services need to target LGBT people specifically for lifestyle issues, i.e. smoking; alcohol and drug use. Treating service users holistically will ensure appropriate and effective signposting and service delivery with better health outcomes for individuals. An assessment of lifestyle issues at the time of other assessments for risk taking behaviours, e.g. sexual risk taking, should be integrated into pathways. Increase access and availability to mental health (i.e. counselling) support. Promotion should target positive mental well-being across LGBT communities given that 80% of respondents experienced mental health issues, with 29% having suicidal thoughts. Assessments of clients’ mental health needs could usefully be integrated into any assessment of their sexual health need, with robust signposting and referrals pathways identified. Younger LGBT respondents report higher levels of eating disorders and self harm and identification of these additional issues need to be worked into individual risk assessments when working with this group. To combat bullying and heteronormactivity, integrate awareness of LGBT rights and health and well-being issues into school education. This can be delivered by including LGBT specific resources and signposting and including an LGBT element into general health and well-being literature. Sexual Health With 26% of MSM having 5+ sexual partners in the last 6 months, and 35% having 2 to 4 sexual partners, and 12% of MSM HIV positive there are is clear evidence of sexual health risk taking behaviour. A one to one behaviour change intervention for high risk MSM, designed along NICE guidelines for effective interventions could benefit this group. Sexual Health Promotion needs to be targeted at lesbian and bisexual women as well as gay men, recognising that they may attend different services to MSM. Service providers should develop practical strategies that narrow the gap between an understanding of safer sex and actual practices. It is important to identify, develop and disseminate sexual health information aimed at lesbian and bisexual women as well as for MSM v WLGMP
Kingston upon Thames LGBT Needs Assessment Targeted work with the 40% of MSM who use hook up websites or apps to meet other MSM. This could be via online outreach (Netreach). Local LGBT specific services are perceived to be very limited. LGBT specific health promotion in popular venues (including those outside the borough) where LGBT people socialise can raise the profile of the local LGBT groups and services, and also increase awareness of LGBT health and well-being. Integration of HIV testing availability into general activities such as saunas, clubs and groups, and faster test results offered. Condoms and lubricant are sought outside the borough currently but could be made more readily available to Kingston residents via sexual health services and 24s condom scheme, both of which were praised by respondents. Raise awareness of local LGBT groups and services with LGBT people and other mainstream services; develop and strengthen service networks in-between. This can be achieved through many different methods including allowing general health promotion with LGBT representation and distribution into mainstream outlets/services. Service Access and integration Organisations should undertake sexuality impact assessments to review polices, practices and procurement to ensure they are meeting the needs of the LGBT community and are not being discriminated against. Anti homophobic/ transphobic bullying policies should be enforced in schools and workplaces, and clear safeguarding concerns used to promote LGBT concern. Confidentiality, timing and location of services is deemed of greater importance to LGBT people than having LGBT specific services and all agencies need to review their service design accordingly. Health care professionals should be trained in order to raise awareness of LGBT issues, increase knowledge and skills and to challenge homophobia and heteronormativity. The rate of mental distress among the LGBT community is significant and services need to recognise and develop to suit the needs of LGBT people. Promotion should target positive mental well-being across LGBT communities. vi WLGMP
Service Models Kingston residents travel outside the Borough to use STI/HIV screening services, receive HIV treatment, condoms and lube and information and support. Services within the Borough should be supported to promote their services more effectively Social groups, LGBT groups, café spaces and counselling services in Kingston should be promoted and developed as preferred areas where LGBT people can receive services and one to one interventions. Intensive one to one behaviour change interventions with those assessed as having high risk taking behaviour is recommended. There is clearly unmet need around positive and negative factors influencing safer sex practice that could be capitalised on to provide positive health outcomes for individuals, particularly MSM. LGBT service users should be engaged and consulted with to devise creative solutions to problems identified by improving and developing services. vii WLGMP
Kingston upon Thames LGBT Needs Assessment 2 Acknowledgements Thanks are due to the following individuals and organisations for their assistance with this needs assessment: Iain Runcie-Unger, Screening Officer at WLGMP Amy Leftwich, Sexual Health Promotion Specialist; Julia Waters, Public Health Programme Lead; Nathalie Wilson, Community Development Worker for Marginalised Groups; Helen Terry, Senior Worker for Youth Support Services and Nighat Taimuri at Royal Borough of Kingston upon Thames Charlie Parker, Chair of Kingston LGBT Forum as well as all members of Kingston LGBT Forum Joan Coy, Community Health Specialist Nurse at Your Healthcare CIC Peter Vittles, LGBT Development Worker at Ealing CVS Members of the West London Transgender Drop-in Group West 5 pub in Ealing K2 Clinic at Wolverton Clinic in Kingston Special credit and thanks is given to everyone who took time to respond to the questionnaire and participated in the needs assessment. viii WLGMP
Contents 1 Executive Summary ........................................................................................................ii 2 Acknowledgements ...................................................................................................... viii 3 Introduction .................................................................................................................... 1 4 Methodology .................................................................................................................. 2 5 Findings ......................................................................................................................... 4 5.1 Respondents Profile................................................................................................ 4 5.2 Health & Wellbeing ................................................................................................. 9 5.3 Sexual Health Services ......................................................................................... 13 5.4 LGBT Community Services ................................................................................... 15 5.5 Experience ............................................................................................................ 16 5.6 Needs ................................................................................................................... 18 5.7 Focus group .......................................................................................................... 20 6 Conclusion and Recommendations .............................................................................. 23 6.1 Conclusion ............................................................................................................ 23 6.2 Recommendations ................................................................................................ 25 7 References .................................................................................................................. 28 ix WLGMP
Kingston upon Thames LGBT Needs Assessment List of Table Table 1 Source of participant recruitment .............................................................................. 4 Table 2 Sexual orientation Vs gender identity ....................................................................... 6 Table 3 Venue of preference and sexual identity (%) ............................................................ 7 Table 4 Venue of preference and age groups (%) ................................................................. 8 Table 5 Whom participants had come out/open about sexual/gender identity to ................... 9 Table 6 Non-prescription drug and Sexual orientation ......................................................... 10 Table 7 Gender of sexual partner and sexual identity.......................................................... 11 Table 8 Use of sexual health services inside Kingston ........................................................ 13 Table 9 Occurrence of issues in the last 5 years ................................................................. 16 Table 10 Criteria for choosing a service .............................................................................. 18 Table 11 Interested in accessing particular service ............................................................. 19 List of Figure Figure 1Respondents' connection to Kingston ...................................................................... 4 Figure 3 Sexual orientation of participants ............................................................................ 5 Figure 2 Gender distribution of respondents ......................................................................... 5 Figure 4 Age distribution of respondents ............................................................................... 6 Figure 5 Mental health issue and age group ......................................................................... 9 Figure 6 Numbers of sex partners in the past 6 months and sexual orientation ................... 11 Figure 7 Effect on Safer sex choice..................................................................................... 12 Figure 8 Use of sexual health services inside/outside Kingston .......................................... 14 Figure 9 Use of LGBT services/groups inside/outside Kingston .......................................... 15 x WLGMP
WLGMP 3 Introduction Sexual health is not equally distributed among the population. There is a strong correlation between sex orientation and gender identity and STIs/HIV, sexual behaviour and drug use. LGBT people (particularly MSM) are at greater risk of contracting an STI; building up longer-term physical and mental health problems; and becoming addicted to alcohol and drugs. The 2006 UK Gay Men’s Sexual Health Survey by Sigma Research suggests high levels of risky behaviours among MSM in Kingston. The incidence of syphilis infection among MSM in Kingston was reported the second highest in the entire South West London network2. Although there is a lack of detailed data documenting the prevalence of HIV/STIs and new diagnoses within the LGBT community in Kingston upon Thames, it is believed that these sexual health concerns are mirrored in the West London area where there are increasing levels of STIs and an increase in the number of HIV infections among the LGBT population and particularly amongst MSM. The West London Gay Men’s Project (WLGMP) works to empower individuals and communities to make positive, informed choices about their sexual health and overall well-being. In undertaking the Kingston upon Thames LGBT Sexual Health Needs Assessment, WLGMP began a process of consultation with the LGBT community in order to produce a detailed profile of their health needs and experiences. It also represents a significant first step in raising awareness of the identified health needs and experiences of the LGBT community and in making recommendations that will improve new and existing services so that they are better able to meet the needs of the LGBT people who live, work, study or socialise in Kingston upon Thames. Aims of Kingston upon Thames LGBT Sexual Health Needs Assessment Gather information on the use of sexual health services by LGBT people, what type of services are accessed and what reasons lie behind their choices Identify good and bad experiences of LGBT people in order to determine ways to make sexual health services more inclusive and to encourage LGBT people to utilise the services offered Identify current practises by sexual health providers and identify any gaps in knowledge or service provision Produce an evaluation report and provide constructive and implementable feedback and recommendations as to how good practise can be built and advertised 1
Kingston upon Thames LGBT Needs Assessment 4 Methodology This needs assessment was commissioned by the Royal Borough of Kingston upon Thames (RBK). The project was undertaken over a period of three months, from mid November 2012 to mid February 2013. Quantitative Method A sexual health needs questionnaire was specially designed. This included 32 questions over 10 A5 pages, which were broken down into 6 sections: demographics, health and wellbeing, sexual health services, community services, experience and needs. A peer review and pilot survey was engaged prior to the main survey via a small group of LGBT participants to ensure a suitable and user- friendly questionnaire design. The questionnaire was administered for a short period between mid November 2012 and the end of January 2013. Potential respondents to the questionnaire were contacted through: The contact lists and databases of the WLGMP Online survey using Google platform, and signposting to the questionnaire via WLGMP’s website, RBK website and other websites including social media outlets and gay specific chat sites Targeted outreach sessions at the Kingston gay club night Escape*, West 5 pub and the K2 clinic, conducted by outreach workers employed by WLGMP Existing social and support groups and services Snowballing and word of mouth *Participants from the outreach sessions were incentivised with a raffle to win a £20 voucher given out at the end of the night, plus a bag of condoms and lubricant. Qualitative Method A special session for the purpose of the needs assessment was held with full support from the Kingston LGBT Forum on 11 Dec, 2012. The session lasted 30 minutes. All members of the forum were invited. A total of 12 people participated, with a breakdown as follows: Gay, bisexual men and men who have sex with men: 8 attendees Lesbian women: 2 attendees Not disclosed: 2 attendees, one from local Police force and the other, an employee of RBK 2
WLGMP During the focus group discussion, three main activities were purposely designed for the needs assessment, which were: Issues facing LGBT people The best and worst designed clinics for LGBT people Experiences of sexual health services 3
Kingston upon Thames LGBT Needs Assessment 5 Findings 125 valid responses to the questionnaire were received (68 via direct submission online and 57 completed paper questionnaires). Participants were asked how they had first heard about or got hold of the questionnaire. Table 1 details the results. Table 1 Source of participant recruitment Source Number % Email 13 10.4% Friend 4 3.2% Health professional 1 0.8% K2 Gay and Bisexual Men's Clinic at Wolverton Centre 27 21.6% Kingston LGBT Facebook group 1 0.8% Kingston LGBT Forum 2 1.6% Kingston University LGBT Society 1 0.8% Online 35 28.0% Outreach worker 27 21.6% Staff email 1 0.8% Surrey Comet Newspaper 1 0.8% West 5 10 8.0% WLGMP Trans Drop-in Group 2 1.6% Total 125 100.0% 5.1 Respondents Profile 5.1.1 Connection to the borough The respondents provide a solid base of LGBT community participants who have strong associations with Kingston upon Thames. 56.8% (n=71) live in Kingston. Among those who live outside the borough, 16.0% (n=20) work or study and 71 80 60 21.6% (n=27) socialise in 55 60 Kingston. Another 5.6% (n=7) 40 40 come to Kingston primarily to use its health care services. 20 7 Figure 1 shows the 0 respondents’ absolute I live here I socialise I study I use I work here here health here connections to Kingston. services here Figure 1Respondents' connection to Kingston 4
WLGMP 5.1.2 Gender Of 125 respondents, 82.4% were defined as male and 17.6% as female. 7.2% (n=9) stated that they had a gender variant experience and 2.4% (n=3) preferred not to state the details. 4.0% 14.4% Male Female 3.2% Female without Transgender experience Female with Transgender experience Male without Transgender experience 78.4% Male with Transgender experience Figure 2 Gender distribution of respondents 5.1.3 Sexual orientation 12.0% of the respondents identified as lesbian, 76.8% as gay, 8.0% as bisexual and 3.2% as otheri. Figure 3 demonstrates such a composition of our sample and Table 2 displays the gender of respondents against their declared sexual identity. Lesbian 8.0% 76.8% 0.8% 0.8% Gay 3.2% Bisexual 0.8% 0.8% 12.0% MSM Heterosexual Not sure N/A Figure 3 Sexual orientation of participants i 1 each of MSM (Man who has sex with Men), heterosexual, not sure and not available. 5
Kingston upon Thames LGBT Needs Assessment Table 2 Sexual orientation Vs gender identity Female Male without Female with Male with without Sexual Orientation Transgender Transgender Transgender Transgender experience experience experience experience Bisexual 4 22.2% 2 2.0% 2 50.0% 2 40.0% Gay 0 0.0% 94 95.9% 0 0.0% 2 40.0% Heterosexual 0 0.0% 0 0.0% 0 0.0% 1 20.0% Lesbian 13 72.2% 0 0.0% 2 50.0% 0 0.0% MSM (Man who has sex with men) 0 0.0% 1 1.0% 0 0.0% 0 0.0% Not sure 1 5.6% 0 0.0% 0 0.0% 0 0.0% N/A 0 0.0% 1 1.0% 0 0.0% 0 0.0% Total 18 100.0% 98 100.0% 4 100.0% 5 100.0% 5.1.4 Age The age of respondents varied from 17 to 70, with a median age of 32. The majority were between 20 and 29 (n=44), followed by those between 30 and 39 (n=31) and between 40 and 49 (n=21). 4.2% 3.4% 11.8% 37.0%
WLGMP 5.1.6 HIV status At the time the questionnaires were collected, 12.0% (n=15) had tested HIV positive, all of which self-identified as gay, male. 38.4% (n=48) had tested HIV negative within 6 months and 31.2% (n=39) had tested more than 6 months ago. 14.4% (n=18) had never tested for HIV before; among which 8 (6.4%) identified as gay male (8% of gay, bisexual men and MSM), 6 (4.8%) as lesbian female, 3 (3.4%) as bisexual female and one heterosexual transsexual male. There were also 3.2% (n=4) who were not sure about their HIV status and another participant refused to disclose his HIV status. 5.1.7 Disability 85.6% (n=107) identified as having no disability. Among the 13.6% (n=17) who identified as having a disability, including physical illness, such as Arthritis, Dyspraxia, M.E. and Diabetes, and mental health problems. 5.1.8 Ethnicity The majority of respondent are from White backgrounds. 49.6% (n=62) were White British; 30.4% (n=38) were White European including 26.4% (33) Western European and 4.0% (5) Eastern European; 7.2% (n=9) are from other White backgrounds, such as Irish and South Africa. Mixed or Minority Ethnic groups were in low numbers with a sum of 12.0% (n=15), which includes 4.8% (6) Mixed, 3.2% (4) Asian, 1.6% (2) Black, 1.6% (2) Chinese and 0.8% (1) Latino. 5.1.9 Social Preferences The most popular places for our respondents to socialise and meet people are: social gatherings at home or visiting friends (66.4%, n=83), general bars & clubs (62.4%, n=78), LGBT exclusive bars & clubs (56.8%, n=71) and theatre /cinema /restaurants (51.2%, n=64). Table 3 and Table 4 display comparative analyses of socialising preference between different declared sexual identities and age groups. Table 3 Venue of preference and sexual identity (%) Lesbian Bisexual Gay Heterosexual MSM Not sure Total Venue (n=15) (n=10) (n=96) (n=1) (n=1) (n=1) (n=124)ii Social gatherings at 53.3 70.0 68.8 100.0 0.0 100.0 66.4 home or visiting friends ii One respondent did not disclose his sexual orientation. 7
Kingston upon Thames LGBT Needs Assessment Lesbian Bisexual Gay Heterosexual MSM Not sure Total Venue (n=15) (n=10) (n=96) (n=1) (n=1) (n=1) (n=124)ii General bars & clubs 46.7 60.0 64.6 100.0 100.0 100.0 62.4 LGBT exclusive bars & 66.7 60.0 55.2 100.0 0.0 100.0 56.8 clubs Theatre / Cinema / 46.7 50.0 52.1 100.0 0.0 100.0 51.2 Restaurants Visit family 20.0 30.0 38.5 100.0 0.0 0.0 35.2 Dating/hook up websites 6.7 30.0 40.6 0.0 0.0 0.0 34.4 Mobile dating apps 0.0 0.0 40.6 0.0 0.0 0.0 31.2 LGBT community 20.0 40.0 20.8 0.0 0.0 100.0 22.4 groups/social groups LGBT online 26.7 50.0 18.8 0.0 0.0 0.0 21.6 communities Sport clubs & groups 20.0 40.0 13.5 0.0 0.0 0.0 16.0 General online 6.7 30.0 11.5 0.0 0.0 0.0 12.0 communities General community 0.0 30.0 9.4 100.0 0.0 100.0 11.2 groups/social groups Prefer to stay at home 13.3 10.0 11.5 0.0 0.0 0.0 11.2 LGBT specific sport clubs 13.3 0.0 8.3 0.0 0.0 0.0 8.0 & groups Outdoor groups 0.0 10.0 5.2 0.0 0.0 0.0 4.8 Table 4 Venue of preference and age groups (%)
WLGMP groups Outdoor groups 0.0 4.5 6.5 4.8 7.1 0.0 5.0 tea shops and pubs 0.0 2.3 0.0 0.0 0.0 0.0 0.8 5.1.10 Disclosure of sexual/gender identity Apart from one transvestite male and one female who both self-identified as bisexual, most respondents said they had come out to at least one or some members of their family, friend, colleague, employer and/or their GP/doctors. Table 5 displays whom they had come out to. It is noted that a large percentage, 28.4% (n=35) chose not to disclose to their GP/doctor. Table 5 Whom participants had come out/open about sexual/gender identity to Yes No Some Not Applicable Total Family 91 72.8% 15 12.0% 19 15.2% 0 0.0% 125 Friend 107 85.6% 3 2.4% 14 11.2% 1 0.8% 125 Colleague 76 61.8% 14 11.4% 26 21.1% 7 5.7% 123 Employer 83 68.0% 19 15.6% 9 7.4% 11 9.0% 122 GP/ Doctor 74 60.2% 35 28.5% 5 4.1% 9 7.3% 123 5.2 Health & Wellbeing 5.2.1 Mental wellbeing 80.8% (n=101) of the respondents claimed that they had experienced certain mental health issues. The most common issues include: stress (67.2%, n=84), anxiety (56.8%, n=71) and depression (54.4%, n=68). Following these, 29.6% (n=37) admitted that they had experienced suicidal thoughts. Figure 5 demonstrates participants’ mental health issues across different age groups. Younger respondents had also reported experiences with eating disorders and self-harming. 60-70 1 3 4 Anxiety 50-59 4 6 7 2 Depression 40-49 18 15 2 3 14 8 Eating Disorder 30-39 18 18 6 5 21 8 Self Harm 20-29 26 22 6 8 33 15 Stress
Kingston upon Thames LGBT Needs Assessment 5.2.2 Substance use 5.2.2.1 Smoking 28.8% (n=36) said they smoke, all of whom were under 50 with a median age of 28. Among them, 16% (n=20) stated that they were smoking more than 10 cigarettes a day. This result is much higher than the national data which reports that the smoking prevalence in England was 20% in 2010 and it is decreasing3. 5.2.2.2 Alcohol Respondents were asked how often they drank to levels exceeding the amount that the government recommends for occasional alcohol consumptioniv. 19.2% (n=24) never drank beyond the recommended amount. The majority of respondents claimed that they did so on a monthly basis (24.8%, n=31) or less than monthly (31.2%, n=39). 15.2% (n=19) drank at levels which exceeded recommended advice every week and 9.6% (n=12) almost daily. This data suggest that more than 24% of the respondents binge drink on at least one day in the week, which is much higher than the national finding where the same measurement among male and female were 19% and 12% respectively4. 5.2.2.3 Drugs A considerable percentage of respondents (39.2%, n=49) said that they used non-prescription drugs as part of their social or home life. The 2011/12 CSEW national survey estimated one in three adults (36.5%) had ever taken an illicit drug in their lifetime and 8.9% had used an illicit drug in the last year5. Finding from this needs assessment suggests noticeably higher rate of drug misuse among the LGBT community. The most commonly used drugs include: Amyl nitrate (poppers), Cannabis (grass, spliff), Cocaine, Viagra or equivalent and Ecstasy. Table 6 lists the details. Table 6 Non-prescription drug and Sexual orientation Drug Bisexual Gay Lesbian Heterosexual Total Amyl nitrate (poppers) 3 34 1 38 Cannabis (grass, spliff) 4 8 3 15 iv NHS recommends not drinking more than 8 units of alcohol for men (equivalent to 3 pints of strong beer) and 6 units of alcohol for women (equivalent to 2 pints of strong beer) on one occasion. 10
WLGMP Drug Bisexual Gay Lesbian Heterosexual Total Cocaine 1 11 1 13 Viagra or equivalent 2 10 12 Ecstasy 2 9 1 12 Mephedrone (meow meow) 6 6 Amphetamines (speed) 3 2 5 Crystal Meth 3 3 Ketamine 3 3 Tranquillisers 2 1 3 5.2.3 Sexual behaviour 5.2.3.1 Sexual partners 34.7% (n=43) had 2 to 4 sexual partners in the past 6 months. 33.1% (n=41) had one sexual partner. 26.4% (n=33) had more than 5 sexual partners (12 among them had more than 11 sexual partners), of which one participant was a bisexual male and all others were gay males. 100% 0 80% 1 60% 2-4 40% 20% 5-10 0% 11+ Figure 6 Numbers of sex partners in the past 6 months and sexual orientation As shown in Table 7, some respondents who self-identified as homosexual have sex with partners of the opposite gender, indicating higher behaviourally bisexual practice. Table 7 Gender of sexual partner and sexual identity Not Partner Gender Bisexual Gay Heterosexual Lesbian MSM N/A Total sure All men 2 91 1 1 1 96 All women 1 1 14 16 Equally men and 4 1 5 women Mostly men 2 3 5 11
Kingston upon Thames LGBT Needs Assessment Not Partner Gender Bisexual Gay Heterosexual Lesbian MSM N/A Total sure Not applicable 1 2 3 Total 10 96 1 15 1 1 1 125 5.2.3.2 Factors affecting safer sex choice Respondents were given a list of factors that might potentially affect their choice of safer sex behaviour, i.e. using condoms and/or having less casual sexual partners. With each of the given factors, the majority of respondents believed that there was no effect at all on their sexual behaviour. Of those who did note an effect on their sexual behaviour, the top chosen negative influencing factors, i.e. those which promoted unsafe sexual practices, were: alcohol (41.6%, n=52), drugs (24%, n=30) and loneliness (22.4%, n=28). Conversely, the top chosen positive influencing factors, i.e. factors which encouraged participants to practice safer sex, were: different HIV status of partners (36.8%, n=46), unknown HIV status of partners (30.4%, n=38) and same HIV status of partners (16%, n=20). Details are displayed in Figure 7. Alcohol Drugs 100 Depression Loneliness My body image Partner same HIV status as me Partner different HIV status to me Unknown HIV status of partner Pornography I read/watch Attractiveness of partner 10 What I want during sex What my partner wants during sex Where we are having sex 1 Much less safe Slightly less safe No affect Slightly safer Much safer Figure 7 Effect on Safer sex choice 12
WLGMP 5.3 Sexual Health Services Respondents were asked how often they used sexual health services provided inside the borough of Kingston within the past 12 months. 30.4% (n=38) said they never used any of the sexual health service inside Kingston, 7 of whom never used any sexual health service outside the borough either. Table 8 displays their answers. According to the responses, the most popular sexual health service providers for male respondents are: K2 clinic, GUM clinic(s) and Wolverton Centre’s sexual health service; the most popular sexual health service providers for female respondents are: GPs, family planning clinics and GUM clinic(s). In addition, three respondents mentioned they had received sexual health services from Kingston Community Matron HIV, all of whom were HIV positive gay males. Table 8 Use of sexual health services inside Kingston More than 4 Once in Over a Sexual Health services inside 2-4 times in the times in the the last year Never RBKv last year last year year ago Genital Urinary Medicine (GUM) 6 15 8 14 72 Clinic Sexual health service from a GP 1 2 7 6 96 KU19 Young People’s Clinic 3 107 Information and Advice on 1 6 5 102 HIV/AIDS (RBK council HIV team) Pharmacy Emergency 1 1 3 108 Contraception Scheme Family Planning Clinics 2 4 106 General services @ Wolverton Centre for Sexual Health (Kingston 6 12 12 9 77 Hospital) K2 Gay and Bisexual Men's Clinic 6 25 17 9 62 @ Wolverton Centre The Point @ Wolverton Centre 2 1 1 109 LARC Contraception Clinic @ 2 1 109 Wolverton Centre The reasons for not using the sexual health services are given below, in order of preference: I don’t think I need it I use services outside the borough Their opening time is not convenient for me v The listed services were identified according to the information provided online. 13
Kingston upon Thames LGBT Needs Assessment I don’t know where to go Their locations are not convenient for me I am too afraid to go Just moved into the area They don’t provide the service I needvi Many female respondents (50%, n=11) believed that they didn’t need the service. 4 out of the 5 respondents thought there was no in-borough provider for their sexual health needs as a female. When asked how often they used any sexual health services outside the borough in the past 12 months, the most popular services are STI screening/treatment (44.8%, n=56), HIV screening/treatment (43.2%, n=54), free condoms (and lube) (38.4%, n=48) and information/support (23.2%, n=29). Figure 8 demonstrates the overall choice of the respondents. Over a year ago 60 Once in the last year 2-4 times in the last year 50 More than 4 times in the last year 40 30 20 10 0 Figure 8 Use of sexual health services inside/outside Kingston vi Only one respondent detailed the service lacking, which is sexual health physiotherapy for Vestibulodynia (vulval pain). 14
WLGMP 5.4 LGBT Community Services Only slightly more than a quarter of the respondents (n=32) used the listed LGBT services/groups provided inside Kingston, which include Kingston University LGBT Society, Kingston LGBT Forum, Kingston LGBT Support (Mind in Kingston) and Community HIV Matron. Compared with the above, more responses were gained when asking how often the respondents used LGBT services/groups outside Kingston. Only 19 (15.2%) claimed they never used any LGBT services from outside Kingston; 11 of them (8.8%) never used those from inside Kingston either. Social groups, community groups and condom (and lube) services are slightly more commonly used than others. 45 40 35 30 25 20 15 10 5 0 Over a year ago Once in the last year 2-4 times in the last year More than 4 times in the last year Figure 9 Use of LGBT services/groups inside/outside Kingston From those who did not use LGBT services, reasons were given below in order of preference: I don’t think I need any LGBT specific service/group I don’t know where to go The location is not convenient for me The opening time is not convenient for me I am afraid to expose my sexual orientation I don’t want to be seen in the LGBT specific venue Not interested Nearly 10% (n=21) said they didn’t know where to seek LGBT services, especially those inside the borough. 15
Kingston upon Thames LGBT Needs Assessment I've lived in RBK for 40 years and was totally unaware that there are LGBT services here now! How can this be? What's gone wrong? 5.5 Experience 42.4% (n=53) hadn’t come out to their GP/doctor. 7 out of 9 (77.8%) respondents with transgender identities hadn’t been given relevant information by a healthcare professional. A large proportion of respondents (56.8%, n=71) didn’t think that their needs were fully understood by the health staff. Table 9 lists the details. Table 9 Occurrence of issues in the last 5 years Occurrence Yes No Not Sure Come out to your GP/doctor 49 39.2% 53 42.4% 7 5.6% Been given information by a healthcare professional 2 1.6% 7 5.6% relevant to your gender identity?* Been given information by a healthcare professional 63 50.4% 44 35.2% 5 4.0% relevant to your sexual orientation? Felt that your needs weren’t fully understood by the 31 24.8% 71 56.8% 8 6.4% health staff Felt that the service you received was negatively 15 12.0% 87 69.6% 7 5.6% impacted by your sexual orientation or gender identity? Experienced homophobia from healthcare services? 17 13.6% 90 72.0% 4 3.2% Experienced transphobia from healthcare services? * 1 0.8% 7 5.6% 2 1.6% * Answers from respondents identifying with transgender history only. Questions around experiences with specific problems (e.g. discrimination, negative attitudes) from listed health care services because of sexual orientation or gender identity were asked. Most of the respondents (76%, n=95) didn’t have such problems. However, 8.8% (n=11) had some problems with GP/local health practices and 7.2% (n=9) with NHS hospitals. Some respondents kindly shared their experiences with us. After becoming aware of my sexuality, they immediately assumed I was sexually promiscuous and then started talking about HIV. I underwent a dental procedure at a local dentist. When I identified that I was HIV+ the dentist decided to wear three pairs of gloves and was immensely rude stating: “It may be better if I found another dentist". I find that when I mention my sexuality it is either not relevant to the issue being discussed, or just isn't talked about whatsoever. Although I've not 16
WLGMP had a bad experience I find that some doctors have a hard time talking about it, especially the more mature ones. More details were given by lesbian respondents: Assumption of a heterosexual relationship. Staff visibly uncomfortable when discussing homosexual sexual relationship. Unaware of possible different needs of a lesbian relationship. Leaflets and information for heterosexual relationships only. My sexuality was questioned by a nurse as I was admitted to Kingston Hospital for surgery. As I was being admitted she questioned a) why I had a girlfriend and b) why I wanted her to be my ‘in case of emergency’ contact. Sexual health services not being very helpful/knowledgeable about lesbian sex health issues, GPs not being understanding/reacting badly about me being young and gay a few years back, suggesting I might need counselling. On the other hand, good experiences were also shared: Access and support from Dean Thompson Community Nurse with Medication and other life issues. Easy to contact and approachable. As a full time worker I use Kingston Aid evening group which is once a month on a Tuesday evening. Access to support and information when I need it. Every time I visit here (K2 at Wolverton Centre) it's been great service and very informative. Community HIV Nurses very supportive and culturally aware, able to be very supportive to my specific needs and questions. Evening drop in service once a month run in Surbiton provides access to advice and support locally to home without taking time off from work. Roland and Dean provide support and advice for living and working with HIV. 17
Kingston upon Thames LGBT Needs Assessment GP has good understanding of my HIV status and no breaches of confidentiality My general practitioner is absolutely excellent. She confided with me that she was not familiar with HIV medicine but would do everything to help. She also has been great in securing services and as a general support resource. Staff at K2 are welcoming, polite and understanding The (West London) Gay Men’s Project 24's (condom service) and the West Middlesex Hospital GUM clinic have excellent staff 5.6 Needs Respondents were asked how important the given criteria were when choosing a service. The most important consideration is confidentiality and opening time; both were chosen by 91.2% (n=114) of the respondents. Comprehensive sexual health screening and location were also very important and were both chosen by 88.8% (n=111) of respondents. Table 10 displays the full list of results. Table 10 Criteria for choosing a service Very Not so Doesn’t Important important important matter at all Confidentiality 94 75.2% 20 16.0% 5 4.0% 4 3.2% Opening time 77 61.6% 37 29.6% 8 6.4% 1 0.8% Comprehensive sexual health 77 61.6% 34 27.2% 9 7.2% 3 2.4% screening Location 68 54.4% 43 34.4% 8 6.4% 2 1.6% Environment & Atmosphere 59 47.2% 48 38.4% 13 10.4% 3 2.4% Accessibility 75 60.0% 25 20.0% 15 12.0% 8 6.4% Visibly welcoming to LGBT people 48 38.4% 42 33.6% 18 14.4% 12 9.6% Specialised Services 43 34.4% 38 30.4% 31 24.8% 7 5.6% LGBT specific 31 24.8% 37 29.6% 37 29.6% 15 12.0% Staff who are LGBT 25 20.0% 29 23.2% 43 34.4% 23 18.4% Respondents were given a comprehensive list of services at the end of the questionnaire, and asked to select the ones that they would use if provided in the borough of Kingston upon Thames. Here is the result arranged in order of preference. 18
WLGMP Table 11 Interested in accessing particular service Services Number selected % Social Groups 47 37.6% Local LGBT groups 44 35.2% Café Space 44 35.2% Counselling 42 33.6% Drop In 39 31.2% Outdoor activities i.e. walking groups 30 24.0% Health services 29 23.2% Drama / Theatre / Music 28 22.4% Volunteering opportunities 26 20.8% Safe Meeting Space 25 20.0% Befriending 25 20.0% Groups for older people I.e. Over 40, Over 60 25 20.0% Sporting Activities 23 18.4% Mental Health Specific Programme or events 22 17.6% Carers Support / Advice 21 16.8% Homophobic / Transphobic Crime Support 20 16.0% Creative Art Projects 19 15.2% Housing Advice 19 15.2% Remote Police Reporting to report homophobic incidents 17 13.6% Self Help Groups (alcohol, disability, weight etc) 17 13.6% Health Related Workshops 16 12.8% Alcohol Free Social Space 14 11.2% Alcohol Education Awareness / Programmes 14 11.2% Health outreach 14 11.2% Youth Groups / Age specific Groups 12 9.6% Internet access 12 9.6% Lesbian & Bisexual Women’s Health 12 9.6% Spiritual and/or religious group / support 11 8.8% Support into work 11 8.8% Erectile dysfunction clinic 8 6.4% Immigration/ asylum service 8 6.4% Ethnic Minority Interest 8 6.4% Adult Literacy 8 6.4% Smoking cessation groups 8 6.4% Dealing with Domestic Abuse 8 6.4% Advocacy 7 5.6% Adult Numeracy 7 5.6% Substance Misuse Awareness / Programmes 7 5.6% 19
Kingston upon Thames LGBT Needs Assessment Services Number selected % Transgender Health 5 4.0% Others 4 3.2% 5.7 Focus group 5.7.1 Issues facing LGBT people The discussion fell into 3 areas: emotional, physical and sexual. More issues were raised when discussing emotional issues facing LGBT people, which included: Bullying in schools Assault and physical threat Family acceptance / marriage Coming out at college / to family / workplace (fear of rejection) Facing prejudice and a lack of understanding Guilt when living up to family expectations Parenthood issues Hurt dealing with homophobia Battle with religion Physical issues were discussed around body image and peer pressure to look a certain way and assault and physical threat. As is confirmed in Kingston’s 2008 sexual health needs assessment1, the survey found there might have been a general assumption in the field of sexual health that there has already been plenty of STI and HIV education; however our participants still expressed concerns about a lack of appropriate information and unclear answers to certain questions regarding HIV/AIDS stereotypes. The group agreed to the increasing risk of STI transmission and valued the importance of awareness of diseases that are specific to LGBT people and the relevant support needed for them. The discrimination and segregation of LGBT people at clinics, and feeling uncomfortable to discuss issues with health care professionals were also some of the presenting issues. 5.7.2 The best and worst designed clinics for LGBT people The suggestions were given as follows: Best 20
WLGMP Free healthcare including antibiotics Integrating testing into society (saunas, clubs, coffee shops) Social, friendly space Walk-in/ drop-in counselling (no waiting list) Give results quicker, e.g. lab on site Home testing/sampling kits more freely available 24/7 clinics HIV specialist always on site to offer advice and Post-exposure prophylaxis (PEP) / Pre- exposure prophylaxis (PrEP) More HIV clinics PEP/PrEP easily available (only for high risk if no other choices) Worst Non person-centred (hidden agendas – e.g. targets) No website No drop-in Judgemental/ blaming staff Hetero-centric magazines Difficult to access Aligning HIV and gay all the time (there’s more to being LGBT than sexual health) Charging for healthcare Homophobic / not-aware staff Assumptions about genders and relationships Non-trans friendly toilets Poor confidentiality, not discrete Just offering one type of condom – no dental dams or lube Limited opening hours Badly groomed staff Dirty/smelly setting Bad customer service No outreach No specific nights 21
Kingston upon Thames LGBT Needs Assessment 5.7.3 Experiences of sexual health services The experiences shared in the group discussion echoed the responses from the questionnaires. Lacking LGBT awareness is still a common phenomenon among health care services, especially for lesbians; and homophobia is still experienced. Both lesbian participants had experienced staff at GPs not being sensitive to the fact that they are lesbian (with GPs notes reflecting this) and still being asked questions about the possibility of being pregnant and being recommended contraceptive medication and devices. One woman said that it is very difficult to find a clinic specifically for lesbians. One gay man was treated rudely with unhelpful comments from staff after he disclosed his sexual orientation. Another gay man was told he should attend the clinic on an alternative night specifically for MSM and was refused entry. 3 people experienced poor confidentiality in the clinic reception areas: being asked their name, date of birth and sexuality in public. One man reported when registering with a local GP service that when he spoke of his partner he was asked his wife’s name. Participants also found it difficult to put down a member of the same sex as next of kin on medical forms as it is often questioned since it implies not a relative. 22
WLGMP 6 Conclusion and Recommendations This report aims to convey the health and well-being needs of a sample of the local LGBT population and establish whether existing health and other services are meeting identified needs, and to make recommendations on how current service provision could be improved and/or enhanced. It must be acknowledged that, due to the small numbers of respondents, this assessment only provides a snap-shot of evidence, which the following conclusions and recommendations are based on. 6.1 Conclusion There was under representation of the bisexual population as the national data suggests that the bisexual population is over half of the gay and lesbian population6. The Lesbian population might have been underrepresented with a ratio of 12%. However, it is generally acknowledged to be difficult to predict the size of this group and the proportion of it. The proportion of respondents with a transgender history was also small, reflecting the lack of visibility of this population. Black, Asian and Minority ethnic LGBT people (7.2% in total) are underrepresented; however this reflects the general ethnic composition of Kingston. There might be a lack representation of White British and a slight over representation of White European groups as the latest national census data suggests 63% of the Kingston population is White British7. The needs assessment highlighted the need to work closely with the current services i.e. GUM clinics, GP and family planning services, in addressing concerns expressed by LGBT service users. The main concern was that the health needs of LGBT people is not fulfilled within the current service structure and clinical pathways. Due to the defined remit and limited amount of time available no data was collected from service providers in this study. Most LGBT respondents were ‘out’ to their friends and fewer individuals were ‘out’ to their GPs or health care professionals. There is a general assumption that gay and bisexual men have already received HIV education, however there were still 8% of gay, bisexual male and MSM respondents who had never tested for HIV before. More than 80% of LGBT respondents had experienced mental health issues. There is strong evidence of a need to support mental well-being amongst this community. 23
Kingston upon Thames LGBT Needs Assessment The findings regarding high rates of smoking; binge drinking and drug use support the findings in similar research8. However, given the small size of the sample of the survey it is not possible to interpret the data in any further depth. The needs assessment highlights that the majority of LGBT people within Kingston have not heard of many of the services available, despite many of them being sure of the type of services they require. Most LGBT people within this study clearly wanted a higher profile of services. However it is worth noting that the majority of respondents had previously made use of at least one of the services, with many respondents indicating that they had used a number of services. Heteronormativity (presumption of heterosexuality) seemed to be a common negative experience for service users. Such assumptions/reactions were further highlighted with some experiences from lesbian respondents. Service providers should re-visit diversity training to be able to better identify issues that affect LGBT people as required by the Equality Act 2010. LGBT people socialise in a variety of settings where direct client contact work could be done successfully, for example bars, clubs and social groups. There is a strong need for services to offer confidential and comfortable environments for LGBT clients to discuss health issues and experiences. The respondents raised the importance and value on simply meeting and talking to each other, gaining support and confidence from others through sharing their experiences. Use of local LGBT specific services was low with evidence suggesting that people did not want to engage with LGBT specific services as they did not want to be treated differently. However, low levels of awareness do suggest a gap in the profile of local services. Some respondents raised concerns about access to services. It was clear that services needed to be accessible outside normal working hours i.e. 9am-5pm, particularly sexual health services and support services. Offering services outside these times will help to increase accessibility for some potential clients. There is the possibility that the discrimination in health services not only reduces the control people have over their own lives; it also reduces access to services and compromises the effectiveness of services. It is important to remember that no matter how free of prejudice professionals may be, it may still be rational for LGBT clients to have expectations of inequitable treatment because of a history of such treatment9. 24
WLGMP 6.2 Recommendations The following recommendations were derived from the findings: GP and Primary Care It is essential to improve accessibility and appropriateness of mainstream services. Mainstream health care providers should revisit diversity training to ensure that it raises awareness of how to effectively meet the needs of LGBT people, given that 42% of respondents had not disclosed their sexual identity to their doctor, and 78% of transgender respondents were offered no relevant information, with 57% saying their needs were not fully understood. Health and social care staff should be equipped with the skills to work more sensitively with their LGBT patients, and adopt a standard of care to ensure that all LGBT people are treated fairly , appropriately and respectfully. Health and social care professionals should be trained to focus on the health issues that specifically relate to LGBT people. Mainstream health care providers should review EVERYTHING YOU ALWAYS WANTED TO KNOW ABOUT SEXUAL ORIENTATION MONITORING... BUT WERE AFRAID TO ASK, a practice guide to monitoring sexual orientation commissioned by NHS North West, aimed at the public sector carrying out monitoring of staff and service users. Mental health and well-being Services need to target LGBT people specifically for lifestyle issues, i.e. smoking; alcohol and drug use. Treating service users holistically will ensure appropriate and effective signposting and service delivery with better health outcomes for individuals. An assessment of lifestyle issues at the time of other assessments for risk taking behaviours, e.g. sexual risk taking, should be integrated into pathways. Increase access and availability to mental health (i.e. counselling) support. Promotion should target positive mental well-being across LGBT communities given that 80% of respondents experienced mental health issues, with 29% having suicidal thoughts. Assessments of clients’ mental health needs could usefully be integrated into any assessment of their sexual health need, with robust signposting and referrals pathways identified. Younger LGBT respondents report higher levels of eating disorders and self harm and identification of these additional issues need to be worked into individual risk assessments 25
Kingston upon Thames LGBT Needs Assessment when working with this group. To combat bullying and heteronormactivity, integrate awareness of LGBT rights and health and well-being issues into school education. This can be delivered by including LGBT specific resources and signposting and including an LGBT element into general health and well-being literature. Sexual Health With 26% of MSM having 5+ sexual partners in the last 6 months, and 35% having 2 to 4 sexual partners, and 12% of MSM HIV positive there are is clear evidence of sexual health risk taking behaviour. A one to one behaviour change intervention for high risk MSM, designed along NICE guidelines for effective interventions could benefit this group. Sexual Health Promotion needs to be targeted at lesbian and bisexual women as well as gay men, recognising that they may attend different services to MSM. Service providers should develop practical strategies that narrow the gap between an understanding of safer sex and actual practices. It is important to identify, develop and disseminate sexual health information aimed at lesbian and bisexual women as well as for MSM Targeted work with the 40% of MSM who use hook up websites or apps to meet other MSM. This could be via online outreach (Netreach). Local LGBT specific services are perceived to be very limited. LGBT specific health promotion in popular venues where LGBT people socialise can raise the profile of the local LGBT groups and services, and also increase awareness of LGBT health and well-being. Integration of HIV testing availability into general activities such as saunas, clubs and groups, and faster test results offered. Condoms and lubricant are sought outside the borough currently but could be made more readily available to Kingston residents via sexual health services and 24s condom scheme, both of which were praised by respondents. Raise awareness of local LGBT groups and services with LGBT people and other mainstream services; develop and strengthen service networks in-between. This can be achieved through many different methods including allowing general health promotion with LGBT representation and distribution into mainstream outlets/services. Service Access and integration 26
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