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THE PROJECT ECHO® DIABETES REFLECTIONS NEWSLETTER THERE'S A LOT TO SEE INSIDE! 2 What's ECHO® All About? 3 The Geography of ECHO Diabetes 4 ECHO Champion Spotlight 5 Support Coach Spotlight 6 Featured Articles 7 Tele-ECHO Curriculum 8 Presentations & Publications 9 Our Latest Press Release 10 ECHO® Resources JULY 2021
WHAT IS ECHO ALL ABOUT? ® A NOTE FROM THE PROJECT ECHO DIABETES LEADERSHIP GROUP DR. ASHBY THE PROJECT EXTENSION FOR In June of 2021 we welcomed 10 new spokes WALKER COMMUNITY HEALTH OUTCOMES to the ECHO Diabetes program in Florida (UF) (ECHO®) DIABETES PROGRAM EMPOWERS and California – officially launching the PRIMARY CARE PROVIDERS (PCP) TO implementation of a stepped-wedge design DELIVER BEST-PRACTICE DIABETES CARE and pragmatic clinical trial aimed at evaluating TO THEIR UNDERSERVED PATIENTS. patient-level, provider-level, and spoke-level DR. MICHAEL outcomes. Over 100 PCPs and staff members Funded by a $7.69 million grant from the Leona HALLER representing our existing and new spokes M. and Harry B. Helmsley Charitable Trust, The (UF) attended virtual kick-off events in Florida University of Florida and Stanford University and California. In December of 2021 we will are implementing ECHO Diabetes in Florida welcome 10 additional centers in the second and California to reach the most vulnerable phase of the stepped-wedge design. patients living with diabetes and participating DR. DAVID MAAHS health centers (or “spokes”). They receive We are profoundly grateful for the opportunity (Stanford) tele-education for PCPs, real-time support to work alongside our spokes to improve with complex medical decision-making, the lives of people living with diabetes from access to Diabetes Support Coaches for underserved communities. patient engagement, and access to an online repository of diabetes care resources. The DR. ANANTA ECHO Diabetes hub team is a multidisciplinary ADDALA group of dedicated diabetes specialists (Stanford) including endocrinologists, APRNs, certified diabetes care and education specialists (CDCES), clinical health psychologists, medical sociologists, epidemiologists, and DR. RAYHAN LAL public health professionals. The ECHO® model (Stanford) is particularly promising for reaching patients at risk for health disparities as underserved communities are much more likely to visit a PCP than a subspecialist and have more continuity of care therein. THANK YOU FOR YOUR SUPPORT! 2
THE GEOGRAPHY OF ECHO DIABETES THE ECHO DIABETES PROGRAM SPANS (1) Identifying Federally Qualified Healthcare representing elevated health risks for A DIVERSE RANGE OF GEOGRAPHIC Centers (FQHC) and (2) using provider communities. Our pioneering methods were CATCHMENT AREAS IN TWO OF THE MOST geocoding and the Neighborhood Deprivation published in a feature article in the Journal POPULOUS STATES IN THE U.S.: FLORIDA Index (NDI). of Clinical Endocrinology and Metabolism AND CALIFORNIA. in September of 2020 and the article can be The NDI is calculated based on 20 different found here. In a strategic effort to recruit health centers neighborhood factors covering 7 domains serving medically underserved communities, including poverty, occupation, housing, Using these methods, Florida is working with a dual-pronged approached to identify high- employment, education, racial composition, 18 spokes with 62 different clinic locations and need catchment areas was used that involved: and residential stability with higher NDI scores California is working with 23 spokes with 45 different clinic locations. CALIFORNIA Anderson Valley Health Center Salud Para La Gente Communicare Samahan Health Centers Desert AIDS Project Santa Rosa Community Health Dora Street Health Center Shasta Cascade Health Centers Harmony Health Medical Center Shasta Community Health Center Health Service Alliance Shingletown Medical Center Hill County Clinic Solano County Family Humboldt Independent Health Services Practice Association St. Agnes Medical Center La Clinica Tahoe Forest Mendocino Coast Clinics Multispecialty Clinics Open Door Community United Indian Health Services Health Centers Valley Diabetes and Obesity Ritter Center New Existing FLORIDA Banyan Health Systems Miami Beach Community Borinquen Medical Center Health Centers Community Health Centers Orange Blossom Family Health Care Center Community Health Centers of Pinellas Premier Community Healthcare Community Health UF Student Health Care Center of South Florida Tampa Family Health Centers Empower U Treasure Coast Healthcare Network of SWFL Community Health Jessie Trice Community UF Family Medicine Health System New Existing SPOKES AVERAGE NDI MIN NDI MAX NDI Overall (CA & FL) 1.420 -3.644 7.745 CA 0.930 -3.644 6.740 FL 1.783 -2.033 7.745 SPOKES NDI 1.76 OR HIGHER - N (%) NDI LESS THAN 1.76 - N (%) Overall (CA & FL) 46 (43%) 62 (57%) CA 16 (35%) 30 (65%) FL 30 (48%) 32 (52%) SPOKES HRSA METRO AREA - N (%) HRSA RURAL AREA - N (%) Overall (CA & FL) 93 (86%) 15 (14%) CA 32 (70%) 14 (30%) FL 61 (98%) 1 (2%) A score of 1.76 or higher is the threshold of significance for the NDI, signifying a high health risk area. For information on defining rural population, click here. 3
ECHO CHAMPION SPOTLIGHT WHO MAKES ECHO DIABETES POSSIBLE? WE'D LIKE TO SHED SOME LIGHT ON SOME VERY SPECIAL PROFESSIONALS WHO BRING THE ECHO DIABETES PROGRAM TO LIFE. DR. LAWRENCE Chief Medical Officer of Jessie Trice, Miami Florida (ECHO Diabetes Champion) DR. LAWRENCE GREW UP IN LIBERTY CITY AND ATTENDED MIAMI NORTHWESTERN SENIOR HIGH SCHOOL. She continued her education as a pre-med student at Spelman College in Atlanta and completed medical school at the University of Arizona School of Medicine. Dr. Lawrence returned home to complete her residency in family medicine at the University Miami/ she was the Medical Director of the Dr. John Jackson Hospital. She continued her studies T. Macdonald Foundation School of Health and preparation of her life’s work as an Initiative, provided hands-on leadership to the DR. LAWRENCE continues to be actively educator by completing a fellowship at the Jefferson Reaves Family Health Center, as well involved in health care issues aimed at University of North Carolina at Chapel Hill as a being the preceptor for University of Miami improving the health status of the community. fellow in faculty development programs. Family Medicine residents. She is now serving Her overall goal is to reduce health care Dr. Lawrence is devoted to serving as the Chief Medical Officer for Jessie Trice disparities and adverse social determinants underserved communities who are faced with Community Health System (JTCHS) where of health by bringing needed current and adverse social determinants. She has held a she promotes needed policies and procedures innovative strategies and tools to the variety of leadership positions at the University centered on excellent health delivery systems, population served by JTCHS. of Miami, Department of Family Medicine and provides clinical oversight to the organization, Office of Community Affairs. Most recently and delivers direct patient care. CRAIG RHOADES, PA, RD Harmony Health, Marysville California (ECHO Diabetes Champion) I WAS BORN IN ALTURAS, A SMALL RURAL TOWN IN THE VERY NORTHEASTERN PART OF CALIFORNIA. I attended school at Butte Community College followed by Chico State and graduated with a BS in Nutrition. I was accepted in a dietetic internship through Fresno State. After completing masters studies with internship and boards I worked as a clinical Registered Dietitian (RD) for 3 years and was accepted in PA school at UC Davis Medical. I have worked as a PA for 13 years and RD for 19 years. I enjoy family medicine and focus on disease prevention and wellness through DO YOU KNOW SOMEONE WHO diet and lifestyle. I have also volunteered for the Western Farmworkers Association for the past YOU THINK WE SHOULD EMAIL US AND TELL US WHY! 8 years, donating medical services and time to help migrant workers without insurance. I have SHED A SPOTLIGHT ON? been fortunate to be a part of Stanford ECHO® for nearly 3 years. I enjoy spending time with family, woodworking and Crossfit. 4
SUPPORT COACH SPOTLIGHT THE ECHO DIABETES SUPPORT COACH IS AN INTEGRAL PART OF WHAT MAKES ECHO® SO SPECIAL. HERE'S JUST A FEW PEOPLE WHO GIVE THEIR TIME AND EFFORT TO SUPPORT THEIR PEERS IN NEED. outlook on diabetes. The encounters with her treatment for the past 12 years. About 4 years sparked my passion of wanting to help people ago, my older brother passed away from with diabetes. complications related to T1D. These events have inspired a desire in me to help patients Over the years as I cared for my daughter and living with diabetes in my local community. her diabetes, I felt it was my duty to advocate For the past 2 years I have inspired others and spread diabetes awareness. My family and living with diabetes by sharing my personal I joined every support group in our community stories, organizing social events and working to support parents of newly diagnosed with providers by creating weekly groups children. We experienced and know that where patients are able to consistently seek diabetes education and awareness provides education and treatment. empowerment. In addition, I have one-on-one coaching My daughter’s journey of living with diabetes sessions with each mentee that made the has inspired me to continue my career in the decision to work with me. During these diabetes medical field. I thank her every day encounters, we discuss challenges they may for being such an amazing inspiration to me. face and I work to provide solutions or help She is my hero. them overcome any problems related to AMY MCCLELLAND diabetes based on similar problems I may have ECHO Diabetes Support Coach, California faced. In cooperation with my teammates, we have developed a resource guide designed MY NAME IS AMY MCCLELLAND, to assist patients and providers with local AND I AM A DIABETES SUPPORT resources specifically for patients living with COACH WITH STANFORD diabetes. UNIVERSITY’S ECHO DIABETES. In short, working as a Diabetes Support Coach ECHO® is the beginning of my professional has not only changed my life, but those who career working with people with diabetes. I mentor as well. Many have shared how they I am also employed with Harmony Health wished this existed many years ago. Medical Clinic Family Resource Center in my hometown of Marysville, California, where I provide support in obtaining insurance approval for diabetes devices, and work with people with diabetes who have high A1cs and need support in getting to the clinic for help. Harmony Health has played an important role in keeping my family healthy over the last 21 years. LEON BAIN DO YOU KNOW A SUPPORT ECHO Diabetes Support Coach, Miami, Florida Eleven years ago, my daughter was COACH WHO YOU'D LIKE TO MY NAME IS LEON BAIN, AND I diagnosed with type 1 diabetes (T1D). It was a very difficult time for our family. While my AM A DIABETES SUPPORT COACH SHED A SPOTLIGHT ON? daughter was hospitalized and receiving WITH UNIVERSITY OF FLORIDA, care for diabetes, we had the most amazing ECHO DIABETES. EMAIL US AND experience; everyday a Diabetic Health About 22 years ago, I was diagnosed with type TELL US WHY! Worker would come and talk with us. She 2 diabetes (T2D) and received treatment for had answers to all of our questions. She was almost 10 years. Eventually, an endocrinologist one of the most inspiring people and had a changed the diagnosis to T1D at which huge impact on my daughter and my family’s point I began receiving the appropriate 5
FEATURED ARTICLES A PIPELINE FOR HEALTH EQUITY: DIABETES TECHNOLOGY TO UNDERSERVED COMMUNITIES IN THE U.S. THERE ARE WELL-DOCUMENTED DISPARITIES IN TABLE 1 UTILIZATION OF DIABETES TECHNOLOGIES LIKE CONTINUOUS Pilot Data for Use of Diabetes Support Coaches and Continuous GLUCOSE MONITORS (CGM) AND INSULIN PUMPS BASED ON Glucose Monitors* SOCIOECONOMIC STATUS AND RACIAL AND ETHNIC MINORITY STATUS. 3 MONTH CHANGE IN HBA1C n Mean Change SD 95% CI p-value Through critical community partnerships with spokes established in the 24 -0.44 1.39 (-1.03, 0.15) 0.1375 ECHO Diabetes platform, and generous contributions from the Leona 6 MONTH CHANGE IN HBA1C M. and Harry B. Helmsley Charitable Trust (HCT) and Insulin For Life, n Mean Change SD 95% CI p-value undeserved communities are able to access these vital technologies. 19 -1.21 1.49 (-1.93, -0.49) 0.0023 To date, more than 2000 CGM sensors have been provided to patients at participating spokes in Florida and California. Pilot data from these efforts found that providing underserved populations with access *Demographics: Data are from n=24 adults ages 18 and older from two large FQHCs in Miami; 19 T1D, 5 T2D MDI; 12 Non-Hispanic Black, 12 Hispanic; 14 Female and 10 male to CGM and Diabetes Support Coaches combined for a synergistic Note: (all HbA1c data presented here are from pre-COVID time period) reduction in HbA1c (Table 1). The HCT provided additional COVID relief funds to spoke sites which were utilized to provide other supplies like insulin, test strips, gas cards, grocery vouchers, and funding for Wi-Fi connection to families in need during the pandemic. PEER POWER: USING DIABETES SUPPORT COACHES IN A TIME OF COVID-19 THE PROJECT ECHO® DIABETES PROGRAM Given the devastating impact of COVID-19 AN ECHO DIABETES SUPPORT PROVIDES COMMUNITY PARTNERS WITH for underserved communities, the work of COACH RECIEVES THE FOLLOWING ACCESS TO A DIABETES SUPPORT COACH. the Diabetes Support Coaches has never ACCREDITATION AND TRAINING: been more imperative to addressing systemic Through an innovative combination of the American Association of Diabetes inequalities in the U.S. During COVID the Community Health Worker (CHW) role and Care & Education Specialists (ADCES) Diabetes Support Coaches have hosted virtual peer support models, the Diabetes Support Diabetes Paraprofessional Level 1 town hall meetings and increased efforts of Coaches reside in the geographic areas certification patient engagement throughout Florida and they serve and, importantly, they also have California at Federally Qualified Health Centers University of California San Francisco first-hand knowledge of what it is like to that ECHO Diabetes is partnering with. (UCSF) Center for Excellence in live with diabetes. The Diabetes Support Primary Care Health Coach Training Coaches spearhead regular social events for communities with diabetes, create local Access to the American Diabetes resource guides (in English, Spanish, and Association’s Community Health Creole), facilitate support groups, and serve Worker (CHW) annual membership and as a one-on-one peer mentor for patients with toolkit diabetes. HIPAA, human subjects, and IRB compliance trainings 6
ECHO DIABETES TELE-ECHO CURRICULUM PLEASE JOIN US FOR OUR UPCOMING TELE-ECHO SESSIONS! WE'RE LOOKING FORWARD TO SEEING YOU AND LEARNING WITH YOU. WEEK CLINIC DATE LECTURE TOPIC WEEK CLINIC DATE LECTURE TOPIC JUNE SEPTEMBER The Pillars of Success:Knowledge, 78 6/10/2021 90 9/2/2021 Introducing Diabetes Technology to Patients Community& Resilience Screening forDepression and Diabetes 79 6/17/2021 GlycemicTargetsandGlucoseMonitoring 91 9/9/2021 Burnout Carb Counting andDietary Management in 80 6/24/2021 Continuous GlucoseMonitoringSystems 92 9/16/2021 T1D JULY 93 9/23/2021 Making a Diagnosis of Diabetes in Primary Care T2D Management in Established 81 7/1/2021 Atherosclerotic Cardiovascular Disease 94 9/30/2021 Diabetes & Hypertension Management (ASCVD) T2D Management inHeart Failure (HF) 82 7/8/2021 andChronic Kidney Disease(CKD) OCTOBER T2D Management: Promoting Weight Loss 83 7/15/2021 95 10/7/2021 Dyslipidemia & Diabetes Using Glucose-Lowering Medications T2D Management: When Medication Cost is 84 7/22/2021 96 10/14/2021 Exercise Strategies in T1D & T2D a Major Issue 85 7/29/2021 Using & Interpreting Data from CGMs 97 10/21/2021 Diabetes and Complications Screenings AUGUST 98 10/28/2021 Diabulemia and Disordered Eating 86 8/5/2021 Types of Insulin Analogs NOVEMBER Initiating Insulin and Dose Calculation in T1D 87 8/12/2021 99 11/4/2021 Motivational Interviewing and T2D Calculating Insulin Doses for T1D & T2D: NO TELE-ECHO SESSION TODAY: 88 8/19/2021 11/11/2021 Case-based Approach VETERAN’SDAY Sick Day Management and 89 8/26/2021 Initiating Insulin Pump Therapy 100 11/18/2021 Severe Hyperglycemia NO TELE-ECHO SESSION TODAY: 11/25/2021 THANKSGIVING 7
PRESENTATIONS & PUBLICATIONS RECENT CONFERENCE PRESENTATIONS FROM ECHO DIABETES ADVANCED TECHNOLOGIES & TREATMENTS FOR DIABETES POSTERS: Oral, Virtual (June 5th) 471-P | Using Peer Power to Reduce Health Disparities: Implementation of Using tele-education with the ECHO® model to reach primary care providers a Diabetes Support Coach Program in Federally Qualified Health Centers in rural areas to improve the level of care for people with diabetes 549-P | Understanding PCP Perspectives in a Project ECHO® T1D AMERICAN DIABETES ASSOCIATION SCIENTIFIC SESSIONS Program Using the Consolidated Framework for Implementation Research Oral, Virtual (June 26) Session Type: Symposium Session Title: Systemic Racism and Disparities in Pediatric Diabetes Management Presentation Title: ECHO-Diabetes—Delivering Care to the Underserved Presentation Time: 9:00am - 9:30am Eastern Time ECHO DIABETES PUBLICATIONS TO DATE PRIMARY CARE PROVIDERS IN THE NEIGHBORHOOD DEPRIVATION DEMOCRATIZING TYPE 1 DIABETES CALIFORNIA AND FLORIDA REPORT INDEX AND PROVIDER GEOCODING SPECIALTY CARE IN THE PRIMARY LOW CONFIDENCE IN PROVIDING TYPE 1 IDENTIFY CRITICAL CATCHMENT AREAS CARE SETTING TO REDUCE HEALTH DIABETES CARE: Clinical Diabetes FOR DIABETES OUTREACH: Journal of DISPARITIES: Project Extension for View Here >>> Clinical Endocrinology and Metabolism Community Healthcare Outcomes (ECHO®) View Here >>> T1D (In press, BMJ Open Diabetes) TELE-ROUNDS AND CASE-BASED View Here >>> TRAINING: PROJECT ECHO® BARRIERS TO TECHNOLOGY USE TELEMENTORING MODEL APPLIED TO AND ENDOCRINOLOGY CARE FOR COMPLEX DIABETES CARE: Pediatric UNDERSERVED COMMUNITIES WITH TYPE Clinics of North America 1 DIABETES: Diabetes Care View Here >>> View Here >>> 8
OUR LATEST PRESS RELEASE PATIENTS WITH TYPE 1 DIABETES SAID THEIR EXPERIENCES WITH ENDOCRINOLOGISTS CREATED A SIGNIFICANT BARRIER TO OPTIMAL CARE. EXPERTS RECOMMEND THE USE OF of COVID-19 on underserved communities “I feel like sometimes I don’t even want to go CONTINUOUS GLUCOSE MONITORS AS demonstrates the dire need to address to the doctor because I’m getting a lecture,” THE GOLD STANDARD FOR MANAGING longstanding systemic inequalities in a participant said. “I’m getting like in trouble. TYPE 1 DIABETES. health outcomes.” I feel like a little kid who’s going to the Yet many adult patients, particularly those principal.” For the study, researchers conducted 16 focus with lower socioeconomic status and from groups in Florida and California in 2018 and Many participants said they had stopped underrepresented minority groups, are not 2019 with 86 adults with Type 1 diabetes. In going to endocrinology appointments because receiving the technology or regular care from order to include people who have traditionally they did not feel it was improving their overall specialists known as endocrinologists. been underrepresented in research, health. A new study from University of Florida and investigators targeted individuals who had “We hope these findings generate an Stanford University researchers finds the most “no shows” at two or more consecutive awareness about the importance of cultivating commonly cited reason patients with type 1 endocrinology appointments, had been positive provider-patient relationships and diabetes don’t receive optimal care is negative hospitalized in the past year for a serious treating people with type 1 diabetes with interactions with endocrinologists. complication known as diabetic ketoacidosis empathy and respect in clinical encounters,” and had received primary care at a Federally “The feelings of shame, stigma and judgment Walker said. “These findings also point Qualified Health Center, which provides care people with type 1 diabetes experience in to the ripple effect of industry-driven to underserved groups. clinical encounters creates a barrier for rules surrounding what it takes to obtain obtaining technologies and for receiving Participants noted system-level barriers to technologies like continuous glucose monitors preventive care from an adult endocrinologist,” receiving continuous glucose monitors — as these rules create barriers for providers as said lead author Ashby Walker, Ph.D., an small devices implanted under the skin that well as patients.” assistant professor in the department of health automatically measure blood sugar — such Walker said the next step is to develop services research, management and policy in as financial coverage or navigating insurance and evaluate multilayered interventions to the UF College of Public Health and Health company policies. address health disparities in type 1 diabetes Professions, part of UF Health, the university’s But the most pervasive barrier to care that include efforts focused on provider-level academic health center. identified was participants’ communication implicit bias. The study, which appears in the journal with endocrinologists in face-to-face “We must also train and recruit a richly diverse Diabetes Care, is one of the few to consider interactions. Several participants said they ‘next generation’ of endocrinologists and the perspectives of underserved communities received discouraging statements from equip them with tools for addressing health in an effort to identify potential barriers to endocrinologists when they asked about disparities,” she said. care, Walker said. receiving a continuous glucose monitor, including feedback that the patient had poor Written by JILL PEASE “We must be intentional about understanding control over their disease or would not be Public Relations Director, College of Public the lived experiences of communities that able to handle the technology. Participants Health and Health Professions face elevated health risks in order to develop frequently described feeling demeaned, meaningful interventions,” said Walker, the CLICK HERE FOR THE FULL ARTICLE >>> belittled and misunderstood as a person living director for health equity initiatives at the with type 1 diabetes. UF Diabetes Institute. “Moreover, the impact 9
ECHO RESOURCES ® FEELING CONNECTED TO A COMMUNITY ALSO MEANS HAVING ACCESS TO GREAT RESOURCES. DO YOU HAVE SOME USEFUL RESOURCE LINKS? LET US KNOW! UNM's MetaECHO conference The METAECHO Conference is a global American Diabetes Association gathering for Project ECHO®. Surrounded by Health Equity Now hundreds of ECHO partners over three and a half days, we gather for world-renowned The ADA has just held their 35th Annual keynote speakers, share cutting-edge Clinical Conference on Diabetes, which is research and evaluation methods and learn normally held in Florida, but was virtual this how funding and policy are being impacted by year. The event sessions were recorded and ECHO work. We also hear inspirational ECHO are available here. All sessions will be recorded Talks and learn how ECHO programs are and available online until JULY 11, 2021, being run around the world. so if you were unable to attend during the conference dates, you will still be able to view Along the way, we celebrate each other's and receive CE credits. ECHO passion. HELPFUL LINKS Beyond Type 1 Getinsulin.org Beyond Type 1 is a nonprofit organization changing Beyond Type 1 advocates for high quality, modern what it means to live with diabetes. Through insulin to be available to people with diabetes platforms, programs, resources, and grants, Beyond regardless of employment or insurance status, Type 1 is uniting the global diabetes community and across all demographics, without barriers, and at an providing solutions to improve lives today. affordable and predictable price point. Beyond Type 2 JDRF Toolkits Launched in 2019, Beyond Type 2 is a program of Downloadable e-books to help you navigate all the nonprofit organization Beyond Type 1. Beyond aspects of life with T1D. Type 2 is a place for everyone impacted by Type 2 diabetes to share their stories, get connected to the Diabetes Wise community, and find resources on topics from daily Helping You Find The Right Diabetes Devices For management to mental health. Your Life. HAVE SOME QUESTIONS? PLEASE CONTACT US! IN FLORIDA CLAUDIA ANEZ canez@ufl.edu IN CALIFORNIA LAUREN FIGG lefigg@stanford.edu 10
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