QUALITY JOBS ARE ESSENTIAL - CALIFORNIA'S DIRECT CARE WORKFORCE AND THE MASTER PLAN FOR AGING - PHI
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PHI works to transform eldercare and disability services. We foster dignity, respect, and independence for all who receive care, and all who provide it. As the nation’s leading authority on the direct care workforce, PHI promotes quality direct care jobs as the foundation for quality care. Author: Robert Espinoza • Contributors: Arielle Altman, Stephen Campbell, Kezia Scales, Jodi M. Sturgeon • Design: RD Design • Photography: Kristen Blush @kristenblush (p.8, p.20, p.21, p.25, and p.26); Constanza Hevia H. @constanzaheviah (inside front cover, p.1, p.3, p.11, p.13, p.17, p.19, p.22, and p.23-upper right; Rachael Porter @porterfiles (cover, p.5, p.23-bottom left, p.24, p.27, and p.29); and Dave Sanders @dave_sanders (p.14 and p.15)
TABLE OF CONTENTS 2 Introduction 4 In Their Own Words: Marichu Buenaventura 6 A Detailed Snapshot of California’s Direct Care Workforce 10 In Their Own Words: Kao Saephan 12 C alifornia’s Master Plan for Aging and the LTSS Subcommittee Report 13 Primary Goal: Caregiving That Works 17 Additional Goals, Strategies, and Initiatives 28 In Their Own Words: Teresita Sattar 30 Summary: Creating 1 Million High-Quality Direct Care Jobs in California 31 Appendix 1: Comparison of Key Direct Care Workforce Recommendations in LTSS Subcommittee Report to California’s Master Plan for Aging 37 Appendix 2: Profile of Direct Care Workforce in California 39 Appendix 3: PHI Framework: The 5 Pillars of Direct Care Job Quality Quality Jobs Are Essential: California’s Direct Care Workforce and the Master Plan for Aging 1
Introduction INTRODUCTION At the beginning of 2021, California released sector increase consumer spending, decrease its Master Plan for Aging, a comprehensive public assistance expenditures, and help 10-year blueprint designed “to ensure all prevent unnecessary emergency department people in California are engaged, valued, visits, hospital admissions, and other costly and afforded equitable opportunities to health outcomes. thrive as we go through different ages and stages of life.”1 The Master Plan speaks to a This report, Quality Jobs Are Essential: profound concern: as California’s population California’s Direct Care Workforce and continues to age rapidly and becomes even the Master Plan for Aging, provides an more diverse, will the state’s aging and long- in-depth analysis of the Master Plan’s term care systems be adequately prepared? approach to direct care workforce needs. Moreover, how precisely should California The report opens with a detailed snapshot strengthen its response to the state’s aging of the direct care workforce in California and equity realities, and where should it that looks closely at key demographics, job invest its resources? characteristics, and future job projections. We then examine each of the goals, Critical to these questions and the Master strategies, and initiatives in the Master Plan for Aging is California’s direct care Plan for Aging that pertain to the direct workforce—nearly 696,000 workers who care workforce, comparing these ideas serve as the paid frontline of support for against the recommendations offered in a older adults and people with disabilities separate and earlier Long-Term Services in various settings throughout the state. and Subcommittee (LTSS) Stakeholder These workers are central to the health Report (described hereafter as the “LTSS and overall wellbeing of California’s aging Subcommittee Report”).3 The purpose population, as well as to the state’s economy, of Quality Jobs Are Essential is to describe as this job sector is projected to add nearly how the Master Plan supports this 200,000 new jobs between 2018 and 2028.2 workforce, highlight where it incorporated Unfortunately, despite their profound value, the LTSS subcommittee’s ideas, and direct care jobs in the state are often poor propose where and how the Master Plan in quality, as reflected by low compensation, can be strengthened. Because direct care insufficient training, limited career paths, workers offer important and unique insights and other dimensions. Undervalued and on this sector, this report also includes impoverished, these workers often leave the several worker stories told in their own field for other roles, threatening services and words. We end our report by summarizing supports for older adults and people with how direct care workers should be disabilities. The Master Plan for Aging can incorporated into California’s Master Plan play a meaningful role in correcting these to transform aging throughout the state inequities—improving economic security for over the next 10 years. workers and care for consumers, while also boosting the economy. Good jobs in this 2 Quality Jobs Are Essential
“[The] pay for these jobs isn’t a living wage here in the Bay Area.” RIKA HONAN, Care Supervisor, E Caregiver Emergency Response Team (CERT) Provider at Homebridge in San Francisco, CA California’s Direct Care Workforce and the Master Plan for Aging 3
In Their Own Words CAREGIVER AT COURAGE LLC AND MEMBER OF PILIPINO WORKERS CENTER LOS ANGELES, CA 9 YEARS AS A DIRECT CARE WORKER MARICHU BUENAVENTURA ON WHY SHE DECIDED TO BECOME ON SUPPORTING DIRECT CARE A DIRECT CARE WORKER: WORKERS DURING THE PANDEMIC: “I’ve been working as a caregiver since I came “I am currently employed with the [homecare here from the Philippines in 2012. When I cooperative] Courage LLC. There are a lot first got here, I had no job, and I needed to of benefits working at the cooperative, and I make ends meet. Back home, I took care of receive better compensation with them than my grandmother until she died at 101-years- I did with other clients before. I know they old. Someone from my church talked to care for us workers, especially during the me about how I could use this caregiving pandemic. I’ve been fortunate to get support experience to get job security. My first job from both Courage LLC and the Pilipino I had here was taking care of a patient with Workers Center (PWC) during this time. progressive supranuclear palsy—so I started They notify me of how to apply to programs from there. It takes courage and patience to that can help, like cash assistance, delivery of take good care of others. It can be so hard care boxes with food, and other emergency dealing with sick people, but I have empathy funds and subsidies. And then I also have for others and really enjoy this work.” support from other co-caregivers and friends at PWC who I can confide in. ON THE IMPACT OF COVID-19: I used to take the bus to work, Monday “When we got the stay-at-home order last through Saturday, up to an hour each way, March, I stopped working because I’m just but now I take a carpool because I am too so scared of the virus. I experience panic scared to ride the bus. Otherwise, I might attacks because I’m all alone in the house, have to stop working again. Fortunately, I and paranoia that I’m going to get sick. was able to get the first dose of the vaccine I feel emotionally and mentally drained. at the facility where my client lives and will Sometimes I get mental blocks, and I can’t get my next dose soon. I was happy to be think straight because I’m too worried about able to get the vaccine because I know many my present situation. I started working other caregivers haven’t gotten it yet. So again in August because I was a few months many people are infected with COVID-19 behind in paying my rent and was so worried at the facility, so we are all truly at risk. about getting evicted. Right now, I’m just Luckily, we have N-95 masks and not just working once a week. I would like to work surgical masks for protection. But even with more, but it feels too risky. I pray a lot so I’m the vaccine and PPE, I still have paranoia, still strong for my children. They are in the especially with the new variant of the virus.” Philippines, and I haven’t seen them since I spent New Year’s with them before the pandemic. I always miss them and cry for them. That’s the saddest part.” 4 Quality Jobs Are Essential
In Their Own Words As a direct care worker for nine years, Marichu has struggled financially during this pandemic and has not been able to work remotely. California’s Direct Care Workforce and the Master Plan for Aging 5
A Detailed Snapshot of California’s Direct Care Workforce A DETAILED SNAPSHOT OF CALIFORNIA’S DIRECT CARE WORKFORCE4 Direct care workers support older adults and of job titles in the field. Direct care workers people with disabilities with daily tasks and who are employed directly by consumers, either activities in a range of settings, from private through Medicaid programs or private-pay homes to residential settings (such as assisted arrangements, are often called “independent living) to skilled nursing homes. This workforce providers.” Workers who support individuals comprises three main occupational groups— with intellectual and developmental disabilities personal care aides, home health aides, and are known as “direct support professionals.” nursing assistants—but are known by a variety DIRECT CARE WORKER EMPLOYMENT BY OCCUPATION IN CALIFORNIA, 2009 TO 2019 ▪ Home Health Aides and Personal Care Aides 595,760 (519% GROWTH) ▪ Nursing Assistants ▪ All Direct Care Workers 100,190 (-7% DECLINE) 695,950 (242% GROWTH) 96,320 107,310 203,630 2009 2010 2011 2012 2013 2014 2015 2016 2017 2018 2019 6 Quality Jobs Are Essential
AA Detailed Detailed Snapshot Snapshot ofof NewCalifornia’s Jersey’s Direct Care Workforce Despite their enormous value to Californians, LARGEST OCCUPATIONS IN CALIFORNIA, 2019 direct care workers struggle to work and survive financially in jobs characterized Direct Care Workers by poor job quality, growing demand, and 695,950 significant pressures, including most recently Fast Food Workers the COVID-19 crisis—all detailed in the 436,540 figures to the right. Throughout this section, Cashiers we also include national figures to compare 431,140 California’s direct care workers with their Retail Salespersons counterparts nationwide. 418,900 Laborers and Movers 393,460 A Large and Expanding Workforce California is home to nearly 696,000 direct care workers—a rapidly growing workforce that currently outnumbers every single occupation OCCUPATIONS IN CALIFORNIA in the state. This workforce has grown WITH MOST JOB GROWTH, 2018 TO 2028 dramatically over the past decade, as demand for LTSS has increased—between 2009 and Direct Care Workers 2019, California’s direct care workforce surged 199,700 nearly 250 percent from 203,630 to 695,950 Laborers and Movers workers. Nationwide, the direct care workforce 66,300 includes 4.6 million workers. Fast Food Workers 65,400 Workforce Diversity Registered Nurses 53,400 The demographic composition of California’s Cooks direct care workforce is predominantly 53,000 female (81 percent) and very diverse: 77 percent are people of color and 48 percent are immigrants. The median age for direct care workers in the state is 47, and 31 percent OCCUPATIONS IN CALIFORNIA of direct care workers are aged 55 and older. WITH MOST JOB OPENINGS, 2018 TO 2028 Nationally, 87 percent of direct care workers are women, 59 percent are people of color, Direct Care Workers 27 percent are immigrants, and 27 percent 1,247,900 are aged 55 and older. The national median Cashiers age for direct care workers is 43. 846,000 Laborers and Movers 690,000 Waiters and Waitresses Charts Sources: U.S. Bureau of Labor Statistics (BLS), Division of Occupational Employment Statistics. 2020. May 2009 to 656,700 2019 State Occupational Employment and Wage Estimates Fast Food Workers California. https://www.bls.gov/oes/current/oes_ca.htm; 643,900 Projections Central. 2020. Long Term Occupational Projections (2018-2028). https://www.projectionscentral.com/Projections/ LongTerm; analysis by PHI (September 2020). California’s Direct Care Workforce and the Master Plan for Aging 7
A Detailed Snapshot of California’s Direct Care Workforce A NOTE ON RACIAL AND GENDER EQUITY FOR DIRECT CARE WORKERS Systemic racism has long among others. Additionally, harmed the lives and jobs caregiving has historically of people of color in direct been defined as “women’s care—from the creation work” and is still often of these poor-quality jobs, dismissed as a labor of love through the decades-long that requires only minimal exclusion of home care compensation and support, workers (and other domestic perpetuating poor job workers) from federal wage quality in this sector. When and overtime protections, focusing on direct care to the widespread racial workforce development, discrimination that people we must center and uplift of color and immigrants women, people of color, and continue to face regarding immigrants—these workers employment, housing, deserve good jobs rooted education, and health care, in equity and justice. 8 Quality Jobs Are Essential
A Detailed Snapshot of California’s Direct Care Workforce Low Wages, High Poverty Poor Job Quality Drives a Crisis In California (and across the country), low A variety of factors—increased longevity, wages in direct care force many workers high turnover driven by poor job quality, into poverty. The median hourly wage for direct care worker retirement trends, and direct care workers in California is $13.18— more—are significantly increasing the a wage that, adjusted for inflation, actually need to fill job openings in direct care. decreased by $.86 between 2009 and 2019. California’s long-term care sector will The annual median income for California’s need to fill 1,247,900 job openings in direct direct care workers is $17,200. In turn, 44 care between 2018 and 2028, including percent of the state’s direct care workforce 199,700 new jobs and just over one million lives in or near poverty, nearly half (49 separations caused by workers who percent) access some form of public leave this occupation or the labor force. assistance, and 19 percent do not have Nationally, long-term care providers will health coverage. How do these figures need to fill 8.2 million job openings in direct compare to the national profile of these care between 2018 and 2028, including 1.3 workers? For direct care workers in the U.S., million new job openings and 6.9 million job the median wage is $12.80, median annual openings as existing workers leave the field earnings are $20,300, 45 percent live in or or exit the labor force altogether.5 near poverty, 47 percent access some form of public assistance, and 15 percent do not COVID-19’s Repercussions have health coverage. The COVID-19 pandemic has further strained this job sector in California and throughout the country, though the precise DIRECT CARE WORKER WAGES BY effects are still being measured.6 Ongoing OCCUPATION IN CALIFORNIA, 2009 TO 2019 coronavirus-related impacts on the state’s direct care workforce and long-term care $16.78 system include: the disproportionately $15.34 high number of COVID-19 cases and deaths $14.04 among direct care workers and their clients $13.18 $12.59 $12.58 and residents; the exacerbated impacts on workforce supply and long-standing job quality challenges in direct care; the economic fallout on workers, consumers, and state resources; and the necessary shift by the state to focus on navigating this emergency, which could affect how the state attends to long-term, systemic needs in the long-term services and supports system. 2009 2019 2009 2019 2009 2019 Chart Source: U.S. Bureau of Labor Statistics (BLS), Division ▪ Home Health Aides and Personal Care Aides of Occupational Employment Statistics. 2020. May 2009 to 2019 State Occupational Employment and Wage Estimates ▪ Nursing Assistants California. https://www.bls.gov/oes/current/oes_ca.htm; ▪ All Direct Care Workers analysis by PHI (September 2020). California’s Direct Care Workforce and the Master Plan for Aging 9
In Their Own Words HOME CARE PROVIDER, CAREGIVER EMERGENCY RESPONSE TEAM (CERT) PROVIDER AT HOMEBRIDGE SAN FRANCISCO, CA 1 YEAR AS A DIRECT CARE WORKER KAO SAEPHAN ON WHY HE DECIDED TO BECOME reduce the spread of the virus. I get to hear A DIRECT CARE WORKER: their stories and learn how they became homeless and bridge that gap between us. “I was incarcerated for 16 years, starting at It’s humbling that I can put so much energy age 19. Towards the end of my incarceration, and strength and motivation into my job I had the honor of working with a hospice and make a difference in their lives.” program at a medical facility in a role that was similar to home care. During that time, ON THE IMPACT OF COVID-19: I got to evaluate myself, and I became the loving and caring person who I now “When the CERT team came about, I saw it know I was brought into this world to be. as an opportunity to do even more good and I knew when I got out that I wanted to serve people with the most need. Homebridge help people in my community and care for prepared me in more ways than I can wrap my the vulnerable. Fortunately, Homebridge head around, and I follow their instructions gave me that chance.” and CDC guidelines on how to keep myself safe. Even so, there are always still potential ON HIS RELATIONSHIP WITH risks of contracting the virus and getting sick. HIS CLIENTS: But that is out of my control. “Each client has their own unique personality It can all be very emotionally draining, and and characteristics that make them so the stress takes a big toll on me some days. special. Before the pandemic, I worked with I go to work and help people, come home, go people who were in housing programs, and to sleep, and then do the same thing all over I was assigned to clients who I saw regularly again the next day. I’m not able to see my and built relationships with. I provide parents, friends, or other family. In a sense, personal care, emotional support, domestic it can feel like I am in prison all over again. work, and even run errands. I’m there for My parents are refugees from Laos, and my clients if they need or want anything, in the Mien culture, I should be the one offer an extra hand to help or an extra ear giving them the care they need. I am an only to listen, and let them know they are not child, and they are getting older. But they alone and that there is somebody out there are hundreds of miles away, and now I can’t who cares about them. even see them. They are worried about me, When the pandemic started, I volunteered and I’m worried about them. Sometimes to join Homebridge’s Caregiver Emergency I feel like I am neglecting them, but they Response Team (CERT) to care for the assure me I’m doing a good job.” homeless population in San Francisco that is currently sheltering in hotel units to 10 Quality Jobs Are Essential
In Their Own Words As a home care worker whose work has intensified during the pandemic, Kao recognizes both the value and strain in delivering quality care. California’s Direct Care Workforce and the Master Plan for Aging 11
California’s Master Plan for Aging and the LTSS Subcommittee Report CALIFORNIA’S MASTER PLAN FOR AGING AND THE LTSS SUBCOMMITTEE REPORT California released its Master Plan for the plan’s current goals, strategies, and Aging in January 2021—the culmination of initiatives against the LTSS Subcommittee’s a process that began in June 2019 when recommendations. We begin with the California Governor Gavin Newsom issued Master Plan’s fourth goal—”Caregiving an executive order to create a blueprint That Works”—which speaks most directly to for how the state supports both a rapidly the policy issues facing California’s direct growing and diverse demographic of care workers. This goal sets an ambitious older adults and all Californians as they target of creating one million high-quality age across the lifespan.7 The Master Plan caregiving jobs within the next 10 years, recognizes the opportunities that this mainly through three core initiatives under sizable aging demographic shift poses for the banner of “Good Caregiving Jobs the state, as older adults contribute “in Creation”: supporting family caregivers, untold ways to make the state more vibrant,” strengthening the direct care workforce and the profound challenges facing older (described in the plan as the “caregiving people across five areas outlined in the workforce”), and expanding virtual care to Master Plan: housing; health; inclusion, meet the needs of caregivers of all types. equity, and isolation; caregiving; and Later in Quality Jobs Are Essential, we economic security. highlight additional objectives from the To inform the development of the plan, Master Plan that could also help transform California sought extensive public input California’s direct care jobs by 2031. and formed four subcommittees comprised of diverse stakeholders and key experts The Master Plan is described as a “living to deepen key dimensions of the Master document for years to come,” which Plan. One of those subcommittees—the opens the door to new initiatives as the Long-Term Services and Supports (LTSS) state implements this plan and as other Subcommittee—issued its final report in concerns emerge. In this spirit, Quality May 2020.8 This report identifies five broad Jobs Are Essential discusses how each objectives for the Master Plan to strengthen aspect of the Master Plan that relates to LTSS in the state, including one objective direct care workers could be strengthened focused on creating a “highly-valued, and extended, drawing from the guidance high-quality” direct care workforce. offered in the LTSS Subcommittee Report and from the California-based experts This report, Quality Jobs Are Essential, who helped inform our thinking (see examines how the Master Plan supports Acknowledgements on page 41.) the direct care workforce, comparing 12 Quality Jobs Are Essential
A Detailed Snapshot of New Jersey’s Direct Care Workforce Pandemic Puts Spotlight on New Jersey’s Direct Care Workforce Shortage PRIMARY GOAL: CAREGIVING THAT WORKS In this section, we walk through the three main initiatives outlined under the fourth goal of the Master Plan for Aging that are aimed at improving direct care jobs and bolstering this workforce. For each initiative, we describe why it matters and how it could be strengthened. California’s Direct Care Workforce and the Master Plan for Aging 13
California’s Master Plan for Aging and the LTSS Subcommittee Report MASTER PLAN GOAL 4 / CAREGIVING THAT WORKS STRATEGY B / DIRECT CARE JOB CREATION / INITIATIVE 111 “Convene a Direct Care Workforce Solutions Table to address workforce supply challenges and opportunities in skilled nursing facilities.” How This Could Be Strengthened The LTSS Subcommittee Report recommends creating a Direct Caregiver Workforce Development Task Force to study the entire workforce, examine training and workforce development programs, explore public-private partnerships, and much more. Accordingly, this initiative in the Master Plan should be broadened to include home care workers and residential care aides, two other segments of the workforce who would also benefit from a multi-stakeholder approach to identifying problems and generating solutions. Low compensation—a primary challenge facing these workers, and one Why This Matters which is inextricably linked to inadequate reimbursement rates under Medicaid— Bringing together stakeholders with should also be addressed as part of this different perspectives to strengthen the solutions table.10 direct care workforce has been a successful approach in many states throughout the country.9 A well-funded, properly coordinated “workforce solutions” table would help ensure that the many distinct DID YOU KNOW? challenges facing California’s nursing assistants in nursing homes are explored In California, the direct care worker median wage—currently at $13.18— and solved. is $3.86 less than the median wage for all other occupations with similar entry-level requirements (such as janitors, retail salespersons, and customer service representatives) and $1.11 less than occupations with ▸ Source: PHI. Competitive Disadvantage: Direct Care lower entry-level requirements (e.g., Wages Are Lagging Behind. PHI: Bronx, NY. https:// phinational.org/resource/competitive-disadvantage-direct- housekeepers, groundskeepers, and care-wages-are-lagging-behind/. food preparation workers). 14
California’s Master Plan for Aging and the LTSS Subcommittee Report MASTER PLAN GOAL 4 / CAREGIVING THAT WORKS STRATEGY B / DIRECT CARE JOB CREATION / INITIATIVE 112 “Consider expanding online training platforms for direct care workers—including opportunities for dementia training for IHSS family caregivers seeking a career ladder and more—to meet need as funding available.” Why This Matters Direct care workers deserve effective, competency-based, and adult learner- centered training that equips them with the skills, knowledge, and confidence to succeed in their roles and deliver quality care.10 When properly designed and evaluated for effectiveness, online training and e-learning approaches can help meet this goal, efficiently reaching vast numbers of workers in different locations as the need arises.12 Online training has also been a beneficial approach during COVID-19, allowing training programs to be delivered without safety risks for trainers or trainees. Overall, this initiative highlights the importance of expanding training opportunities for direct care workers development and career ladder training.” to ensure they are prepared to provide While online training should be an integral high-quality, condition-specific care (such part of California’s statewide training as dementia care) and to strengthen career strategy for direct care workers (as ladders within the workforce.13 described in Initiative 112), in-person and blended training programs rooted in adult How This Could Be Strengthened learner-centered principles remain the gold standard for training in this sector.14 The LTSS Subcommittee Report offers In line with the LTSS Subcommittee Report, various recommendations related entry-level and ongoing training programs to strengthening training for direct for direct care workers deserve adequate care workers; the report’s strongest funding, testing, and expansion. recommendation is to “invest in local, regional, and statewide workforce California’s Direct Care Workforce and the Master Plan for Aging 15
California’s Master Plan for Aging and the LTSS Subcommittee Report MASTER PLAN GOAL 4 / CAREGIVING THAT WORKS STRATEGY B / DIRECT CARE JOB CREATION / INITIATIVE 113 “Diversify pipeline for direct care workers in home and community settings by testing and scaling emerging models (e.g., Healthcare Career Pathways; High-Road Direct Care; Universal Home Care Workers; more), to meet need as funding allows.” Why This Matters How This Could Be Strengthened As detailed earlier in Quality Jobs Are The LTSS Subcommittee Report provides Essential, the number of job openings a range of strategies that could help build in direct care is expected to increase the pipeline into direct care, beyond significantly in the next 10 years—a trend those named in the Master Plan. These driven mostly by workers leaving this additional strategies include: streamlining sector for other fields (primarily because and coordinating training requirements, of poor job quality), growing demand, worker licensure, certification, and registry and retirement trends. Strengthening across state agencies; launching public and diversifying the pipeline of workers education efforts; and offering employment entering this field through robust models supports such as providing stipends and related to recruitment, training, care loan forgiveness for students entering integration, and advanced roles—as well the field and compensating caregivers for as new models for this occupation, such training time and mileage. Paired with as the universal home care approach— adequate compensation for workers, all merits this level of attention in the Master these approaches and more should be Plan.15 These models have been shown to explored as part of an initiative to diversify improve job satisfaction and retention the pipeline for direct care workers across for workers, care for consumers, and cost the entire LTSS system. The home care savings for employers and the full system.16 cooperative model, which has historically To be successful, these models need created high quality jobs with low turnover, substantial funding and further testing should also be explored in this initiative.17 and implementation. 16 Quality Jobs Are Essential
A Detailed Snapshot of New Jersey’s Direct Care Workforce California’s Master Plan for Aging and the LTSS Subcommittee Report ADDITIONAL GOALS, STRATEGIES, AND INITIATIVES In this section, we examine how other goals, strategies, and initiatives in the Master Plan for Aging can be leveraged to improve jobs for direct care workers. For each initiative, we describe why it matters and how it could be strengthened to support direct care workers. California’s Direct Care Workforce and the Master Plan for Aging 17
California’s Master Plan for Aging and the LTSS Subcommittee Report MASTER PLAN GOAL 2 / HOUSING FOR ALL STAGES & AGES STRATEGY D / EMERGENCY PREPAREDNESS / INITIATIVE 27 “Conduct after-action analyses of COVID-19, including the impact on older, disabled, and at-risk adults, as one way to identify strategies to prevent future pandemic, emergency, and disaster-related deaths and disparities in deaths by age, ability, income, race, language, and other equity measures.” Why This Matters The COVID-19 pandemic has devastated The LTSS Subcommittee Report and COVID-19 California, with more than 3.3 million cases and over 41,000 deaths since its In its preface dated cuts to critical LTSS onset (as of February 3, 2021, according to May 26, 2020, the LTSS programs, acknowledges The New York Times). The pandemic has Subcommittee Report widespread inequities acknowledges that facing older adults and had a disproportionate impact on older the subcommittee had people with disabilities, adults, people with disabilities, and people unanimously approved and signals the importance of color, among other at-risk populations.18 the recommendations for of “creative problem It has also had a profound effect on the its report in March 2020, solving and a willingness state’s direct care workforce and long-term before the COVID-19 to act expeditiously.” Thus, care sector. An in-depth, “after-action” pandemic. Nevertheless, the LTSS Subcommittee the report affirms the Reports’ recommendations analysis of this pandemic would educate value of their original on this topic are relevant the state and long-term care field on how recommendations, both during the crisis and to navigate this crisis and protect against expresses concerns about far beyond it. future health crises. possible state budget How This Could Be Strengthened Direct care workers must be an explicit a problem that has worsened as employers focus of these analyses. As essential have needed these supplies to administer workers on the frontline of this crisis, vaccines.19 The direct care workforce direct care workers have been uniquely and also shrunk during the pandemic’s initial disproportionately affected by COVID-19. stage; national research shows that about PHI’s experience in the field shows that 280,000 direct care workers exited the many workers contracted—and a notable LTSS field between March and May 2020.20 portion of them died from—the coronavirus Additionally, new issues have surfaced (though the data on this topic is limited). related to vaccine hesitancy and rollout Unfortunately, direct care workers and that would impact this workforce and the their employers continue to lack adequate individuals they support. supplies and support to manage this crisis, 18 Quality Jobs Are Essential
California’s Master Plan for Aging and the LTSS Subcommittee Report MASTER PLAN GOAL 2 / HEALTH REIMAGINED STRATEGY A / BRIDGING HEALTH CARE WITH HOME / INITIATIVE 33 “Advocate with the new federal Administration to create a universal Long-Term Services and Supports benefit and assess opportunities for federal/state partnership (e.g., Milliman study, Washington State model).” Why This Matters A universal LTSS benefit would help Since direct care workers are the paid California consumers cover the high and frontline of support for LTSS consumers, unpredictable costs of long-term care a universal LTSS benefit should explore without impoverishing themselves to how to include and fund a range of policy qualify for Medicaid.21 This benefit would improvements for direct care jobs so that a also ease the pressure on strained state robust direct care workforce can effectively Medicaid programs, allowing for other deliver those services. These improvements improvements in the system, including could include increased compensation, efforts to strengthen the direct care enhanced training requirements and workforce. a stronger training infrastructure, the creation of advanced roles in this sector, How This Could Be Strengthened improved training and robust requirements for supervisors in direct care, an innovation The LTSS Subcommittee Report fund and state-level advocate to improve recommends creating a statewide recruitment and retention, a robust data universal LTSS benefit program, relying collection system, and more.22 on stakeholder partnerships, an actuarial study, and focus groups, among other strategies, to craft this program. “I’m there for my clients if they need or want anything, offer an extra hand to help or an extra ear to listen, and let them know they are not alone and that there is somebody out there who cares about them.” KAO SAEPHAN, Home Care Provider, Caregiver Emergency Response Team (CERT) Provider at Homebridge in San Francisco, CA California’s Direct Care Workforce and the Master Plan for Aging 19
California’s Master Plan for Aging and the LTSS Subcommittee Report MASTER PLAN GOAL 2 / HEALTH REIMAGINED STRATEGY A / BRIDGING HEALTH CARE WITH HOME / INITIATIVE 43 “Reformulate an LTSS aging and disability stake- holder group to advise on long-term services and supports for all older adults and people with disabilities, drawing on stakeholders with experience on MPA LTSS Subcommittee and Olmstead Advisory, as well as new members, with increased diversity and continued participation by older adults, people with disabilities, and care providers.” Why This Matters An LTSS aging and disability stakeholder group builds upon the work and relationships created through the LTSS Subcommittee Report and establishes a platform for a broad range of stakeholders in LTSS to advise how this system address the lives and experiences of older adults and people with disabilities. Such a platform ensures that stakeholders with different and, at times, competing ideas—on long-standing challenges and new ones—can convene to resolve those differences under the shared goal of improving LTSS. How This Could Be Strengthened force to focus exclusively on direct care The LTSS Subcommittee Report workforce challenges, the stakeholder recommends creating a Direct Caregiver group described in Initiative 43 of the Workforce Development Task Force (noted Master Plan could also include direct care earlier in this report) and a time-limited workforce advocates to ensure that their workgroup to address staffing issues. While concerns are integrated into broader LTSS it remains important to convene a task improvement efforts. 20 Quality Jobs Are Essential
California’s Master Plan for Aging and the LTSS Subcommittee Report MASTER PLAN GOAL 2 / HEALTH REIMAGINED STRATEGY E / DEMENTIA IN FOCUS / INITIATIVE 64 “Promote screening, diagnosis, and care planning by health care providers for patients and families with Alzheimer’s and related dementias, through hub and spoke training model of health care providers; direct caregiver training opportunities; and consideration of how dementia standards of care could be further incorporated in Medi-Cal and Medicare managed care.” Why This Matters The growing rates of Alzheimer’s disease all licensed settings.24 The Dementia and other forms of dementia require Care Specialist role that has already building dementia care competency within been pilot-tested in California provides a the health and long-term care workforce in robust model that could be adapted to the California.23 As Initiative 64 acknowledges, direct care workforce, boosting dementia training for direct care workers should be care competency in this workforce while a key priority in building this competence. providing a much-needed career pathway Additionally, dementia-specific training in direct care.25 for direct care workers has been shown to improve job satisfaction and reduce stress, which can spur a range of positive care- and cost-related outcomes. How This Could Be Strengthened The LTSS Subcommittee Report recommends various approaches to promote dementia care competency among direct care workers that support this initiative, including building certification and career ladder programs related to dementia specialization, and adopting the Alzheimer’s Association Dementia Care Practice Recommendations across California’s Direct Care Workforce and the Master Plan for Aging 21
MASTER PLAN GOAL 2 / HEALTH REIMAGINED STRATEGY F / NURSING HOME INNOVATION / INITIATIVE 68 “Produce ‘COVID 2020’ report on skilled nursing facilities and COVID-19, with California lessons learned and recommendations for national (CMS) policy reform.” Why This Matters How This Could Be Strengthened The COVID-19 crisis has had a profound While nursing homes have borne the and disproportionate impact on nursing brunt of COVID-19, this health crisis has home residents and workers in California indubitably strained the state’s entire long- (as in every state across the country), term care system—even if the data are not raising pressing questions about the need as available for home and community-based for reform in this sector at the state and services as for nursing homes. The report federal level. By examining and learning proposed by Initiative 68 should examine from nursing homes’ experiences, the state the effects of COVID-19 on all long-term will be better prepared to weather this and care settings in California with a clear focus future crises, strengthening the delivery of on workers as well as consumers. care in nursing homes and the quality of nursing assistant jobs. 22 Quality Jobs Are Essential
California’s Master Plan for Aging and the LTSS Subcommittee Report MASTER PLAN GOAL 2 / HEALTH REIMAGINED STRATEGY F / NURSING HOME INNOVATION / INITIATIVE 69 “Continue to expand transparency on state data on nursing homes, including quality, staffing, financing, both in COVID-19 and ongoing.” Why This Matters One of the greatest barriers to improving quality in nursing homes and other long- term care settings is the lack of consistent information and accountability.26 COVID-19 has underscored the long-standing need for greater transparency about long-term care ownership, management, experiences, and outcomes—not least with regards to staffing. With greater transparency across the field, stakeholders will be able to better identify the most pressing challenges and effective solutions. How This Could Be Strengthened The LTSS Subcommittee Report In this spirit, the state should strengthen recommends that the state institute its commitment to data collection and comprehensive workforce quality and transparency across the board, not just in safety standards for all LTSS businesses nursing homes. To better track job quality in California. in direct care across long-term care settings, as one key priority, the state should include measures related to workforce volume, stability, compensation, and training/credentials (among other variables), accounting for workers employed through both agencies and in consumer-directed programs. “It takes courage and patience to take good care of others. It can be so hard dealing with sick people, but I have empathy for others and really enjoy this work.” ARICHU BUENAVENTURA, Caregiver at M Courage LLC and Member of Pilipino Workers Center in Los Angeles, CA 23
California’s Master Plan for Aging and the LTSS Subcommittee Report MASTER PLAN GOAL 2 / HEALTH REIMAGINED STRATEGY F / NURSING HOME INNOVATION / INITIATIVE 71 “Explore additional value-based payment methodology changes in skilled nursing, focused on care quality, job quality, equity, and health outcomes.” Why This Matters How This Could Be Strengthened Because they provide the majority of While the LTSS Subcommittee Report paid care to nursing home residents, does not specifically address California’s significantly influencing residents’ health value-based payment program, this outcomes, nursing assistants are central initiative holds promise for leveraging and to achieving value in skilled nursing—for strengthening the direct care workforce. example, by helping to reduce potentially This initiative should be broadened avoidable hospitalizations, among other to include home and community-based costly outcomes.27 Including the workforce services, where home care workers in value-based payment approaches continually shape care and cost outcomes.28 could be an avenue for incentivizing Further, as the Master Plan is adapted improvements in direct care jobs and over time, this initiative should consider amplifying the positive contribution of the range of job quality indicators relevant these workers. to value-based arrangements, including compensation, training, turnover, retention, and more. (See Appendix 3 for PHI’s framework on direct care job quality.) “It’s so unfortunate that in the world we live in, the caregiving profession receives the lowest category of pay. Yet it requires a lot of intelligence.” ALLEN GALEON, Caregiver and Worker Leader, Pilipino Workers Center in Los Angeles, CA 24 Quality Jobs Are Essential
California’s Master Plan for Aging and the LTSS Subcommittee Report MASTER PLAN GOAL 3 / INCLUSION & EQUITY, NOT ISOLATION STRATEGY A / INCLUSION & EQUITY IN AGING / INITIATIVE 75 “Continue to expand culturally and linguistically competent communications to older adults, people with disabilities, and families.” Why This Matters Culturally and linguistically competent communication ensures that all older adults, people with disabilities, and families in California—especially people of color and immigrants with limited English- proficiency—can genuinely access the resources they need to age successfully and in good health.29 Without equitable access to aging- and health-related resources, these populations will continue to struggle with long-standing barriers and disparities related to health, aging, financial security, and more.30 How This Could Be Strengthened The LTSS Subcommittee Report recommends that the state identify best practices in cultural responsiveness within Additionally, effectively reaching direct LTSS, as well as design culturally and care workers—who themselves need linguistically responsive LTSS workforce culturally and linguistically competent training across a range of topics. In line health and aging-related resources— with these recommendations, Initiative might require developing a targeted 75 in the Master Plan should include the outreach approach rooted in worker- creation of training modules for direct specific frames, messages, and care workers that build their cultural and communications platforms.31 linguistic competence and help them better support their diverse clients and residents. California’s Direct Care Workforce and the Master Plan for Aging 25
MASTER PLAN GOAL 3 / INCLUSION & EQUITY, NOT ISOLATION STRATEGY A / INCLUSION & EQUITY IN AGING / INITIATIVE 107 “Promote current state paid family leave benefits to older Californians, people with disabilities, and family caregivers.” Why This Matters How This Could Be Strengthened California’s Paid Family Leave program The LTSS Subcommittee Report calls allows individuals to take paid time off for more funding to support paid family from work to care for a loved one who is leave outreach, focusing on underserved sick, bond with a new child, or participate communities and the need for community- in certain events when a relative in the based partnerships and culturally and military has been deployed to another linguistically competent information. country.32 As low-wage workers who cannot Efforts to implement Initiative 107 should typically afford to take unpaid time off for draw on these recommendations to these purposes, direct care workers stand effectively reach diverse and underserved to benefit significantly from this program— older adults, people with disabilities, but they must be made aware of the family caregivers, and the direct care program to reap the benefits.33 workers who support them. 26 Quality Jobs Are Essential
California’s Master Plan for Aging and the LTSS Subcommittee Report MASTER PLAN GOAL 3 / INCLUSION & EQUITY, NOT ISOLATION STRATEGY A / INCLUSION & EQUITY IN AGING / INITIATIVE 108 “Assess participation in state paid family leave, including recent legislation to expand equity, for equity, including LGBTQ, race, income, gender.” Why This Matters How This Could Be Strengthened As described above, the success of In the same spirit, the LTSS Subcommittee California’s Paid Family Leave program Report recommends an investment depends on broad participation from in paid family leave outreach that eligible individuals across the state, acknowledges the unique barriers facing including older adults, people with LGBTQ people, people of color, poor and disabilities, family caregivers, and direct low-income people, and women, as noted care workers. Yet too often, systemic above. Given the high percentages of inequities and a lack of culturally and immigrants in the state and the direct care linguistically competent information workforce, this assessment should include prevent people of color, immigrants, immigration status as well. The LTSS women, LGBTQ people, and low-income Subcommittee Report also recommends people from accessing programs like this, that the state allow a caregiver to designate even though their needs are significant.34 a “family of choice” within the paid family Assessing participation in paid family leave leave program, which would help prevent across race, immigration status, gender the exclusion of people without biological and gender identity, sexual orientation, family or spouses.35 income, and occupation would help the state understand which populations could benefit from targeted outreach. “We work so hard and sincerely from the heart. But we are being discriminated against, isolated, underpaid, and abused.” TERESITA SATTAR, Caregiver at Courage LLC and Worker Leader at Pilipino Workers Center in Los Angeles, CA California’s Direct Care Workforce and the Master Plan for Aging 27
In Their Own Words CAREGIVER AT COURAGE LLC AND WORKER LEADER AT PILIPINO WORKERS CENTER, LOS ANGELES, CA 10 YEAR AS A DIRECT CARE WORKER TERESITA SATTAR ON WHY SHE DECIDED TO BECOME Courage gave me a good job that allows A DIRECT CARE WORKER: me to support myself and my family, and I benefit from paid sick leave and approval “Ten years ago, I came to America with the for overtime pay. They have also sent me hope of pursuing a good life and happiness to a national conference for cooperative as I believe this is the land of opportunity home care workers, and this training as long as you work hard for it, using the has helped me work with clients more knowledge and skills that we have achieved effectively. I feel grateful to them for giving through our education and experiences. me these opportunities and the chance to I was an RN in the Philippines for 27 years become one of the co-owner members of before coming to America, but I did not the cooperative.” have a nursing license to practice here. By becoming a caregiver, I have been able to ON THE IMPACT OF COVID-19: continue my service to help others. I feel a sense of fulfillment when I know that I am “When the pandemic started, I decided to able to give clients quality care.” pause working because I am over 60 years of age, and I know that I am very vulnerable ON WHAT SHE FINDS MOST to this virus. I am staying home with my CHALLENGING IN HER ROLE: 10-year-old grandson right now while his school is closed and am waiting for the “When I became a caregiver, I learned that pandemic to go away. It’s a big challenge this job is often looked down on as the because I have no income to support my lowest class of workers. This job can be very family, but for now I have a little savings. much exploited, especially with regards to But I am afraid that soon my savings will be immigrants of color, particularly women. gone, and I will have to find some other way As a caregiver, we are in very close contact to earn a living. with our clients, and I develop much closer one-on-one relationships than when I was a When people think of frontline workers, nurse. We work so hard and sincerely from they often think of doctors, nurses, or the heart. But we are being discriminated police. But COVID-19 affects caregivers, against, isolated, underpaid, and abused. too, and many of us are not being given the safety and protection that other workers are I experienced this myself with my first getting during this pandemic. Caregivers company, but I stayed for years because I are suffering. We work with our hearts and felt that my client really needed my help, our minds to give care to others, but I hope and I also needed to earn a living to survive. our elected leaders realize we also need Then I left that company to work with care and protection.” the [homecare cooperative] Courage LLC. 28 Quality Jobs Are Essential
In Their Own Words As a caregiver and worker leader, Teresita knows that direct care workers are essential yet worries how they are mistreated in these roles. California’s Direct Care Workforce and the Master Plan for Aging 29
Summary: Creating 1 Million High-Quality Direct Care Jobs in California SUMMARY: CREATING 1 MILLION HIGH-QUALITY DIRECT CARE JOBS IN CALIFORNIA By dedicating one of its five core goals to several of the initiatives focus too narrowly strengthening the direct care workforce and on nursing homes (and in turn, nursing creating one million high-quality direct care assistants) despite the clear need to also jobs by 2031, California’s Master Plan for address the state’s home and community- Aging has rightfully elevated and centered based services system and the home care these workers in its comprehensive strategy workers who sustain it. Additionally, to improve aging supports and LTSS across compensation-related initiatives—that the state. As detailed in this report, the plan would increase wages and benefits, matched also includes several other goals, strategies, by increased reimbursement rates under and initiatives that could—with the right Medicaid—are scant in the Master Plan, detail and funding—strengthen the direct despite the demonstrated effect that poverty- care workforce over the next 10 years level wages have on direct care workers’ through pipeline development, improved financial security, their retention in this sector, training and career pathways, better data and the quality and continuity of care they collection, increased paid family leave deliver. Finally, the Master Plan has a number uptake, and a heightened focus on equity of ancillary initiatives that were not included and cultural and linguistic competence in this report’s analysis but rely on a strong throughout LTSS, among other strategies. and stable direct care workforce, including: assessing “options to increase Adult Day The Master Plan also recommends the Services, especially for people with dementia” formation of key advisory bodies to focus (Initiative 66), creating “opportunities to on strengthening workforce development, increase stability for IHSS beneficiaries improving LTSS, and learning from COVID-19 through back-up provider systems and to better prepare for future crises—all relevant registries” (Initiative 38), and revisiting to the direct care workforce. Finally, the a “pilot for ‘small house’ nursing homes” Master Plan proposes creating a universal (Initiative 77). A direct care worker lens on LTSS benefit that would enhance affordability these initiatives would bolster their efficacy. and accessibility for consumers—which, this report argues, must also strengthen jobs for The Master Plan must tackle the concerns the direct care workers who are the backbone it outlines with authority, clear actions, and of the LTSS system. adequate funding. Older adults, people with disabilities, and direct care workers As a living document, the Master Plan for deserve nothing less. Aging has plenty of room for improvement over the next 10 years. As noted in this report, 30 Quality Jobs Are Essential
Appendix 1 COMPARISON OF KEY DIRECT CARE WORKFORCE RECOMMENDATIONS IN LTSS SUBCOMMITTEE REPORT TO CALIFORNIA’S MASTER PLAN FOR AGING LTSS Subcommittee LTSS Subcommittee Report Report Area Key Recommendation California Master Plan For Aging Expand Workforce “Establish a Direct Caregiver Explicitly Addressed in Master Plan, Needs Supply and Improve Workforce Development Task Strengthening: Goal 4 (Caregiving That Working Conditions Force, to be convened by the Works), Strategy B (Direct Care Job Creation), Labor & Workforce Development Initiative 111: Convene a Direct Care Agency.” Workforce Solutions Table Expand Workforce “Create and enforce comprehensive Implicitly Addressed in Master Plan, Supply and Improve statewide workforce quality and Needs Strengthening: Goal 2 (Health Working Conditions safety standards for all businesses Reimagined), Strategy F (Nursing Home providing LTSS services in Innovation), Initiative 69: “Continue to expand California, to be administered by transparency on state data on nursing homes, the state.” including quality, staffing, financing, both in COVID-19 and ongoing.” Expand Workforce “Coordinate across state agencies Implicitly Addressed in Master Plan, Needs Supply and Improve and identify ways to streamline Strengthening: Goal 4 (Caregiving That Working Conditions employee licensure, certification Works), Strategy B (Direct Care Job Creation), and registry.” Initiative 113: “Diversify pipeline for direct care workers in home and community settings by testing and scaling emerging models (e.g., Healthcare Career Pathways; High-Road Direct Care; Universal Home Care Workers; more), to meet need as funding allows.” Expand Workforce “Invest in local, regional and Explicitly Addressed in Master Plan, Supply and Improve statewide workforce development Needs Strengthening: Goal 4 (Caregiving Working Conditions and career ladder training. This That Works), Strategy A (Family & Friends could include public education Caregiving Support), Initiative 112: “Consider campaigns to attract employees to expanding online training platforms for direct the field.” care workers – including opportunities for dementia training for IHSS family caregivers seeking a career ladder and more - to meet need as funding available”; and Goal 4 (Caregiving That Works), Strategy B (Direct Care Job Creation), Initiative 113: “Diversify pipeline for direct care workers in home and community settings by testing and scaling emerging models (e.g., Healthcare Career Pathways; High-Road Direct Care; Universal Home Care Workers; more), to meet need as funding allows.” California’s Direct Care Workforce and the Master Plan for Aging 31
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