Priory Hospital Burgess Hill Elizabeth Anderson ward Carer Handbook 2020
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Contents Contents.................................................................................................................................. 2 Your role as a carer ............................................................................................................ 3 Introduction to the ward: Elizabeth Anderson ........................................................ 3 Our aims for patients ......................................................................................................... 4 Our aims for carers ............................................................................................................. 4 Contact information ........................................................................................................... 5 The Patient experience ..................................................................................................... 5 Safety and Security ............................................................................................................ 6 Restricted and contraband items .................................................................................. 6 Legal information, advice and advocacy .................................................................... 8 The triangle of care ............................................................................................................ 8 Care and treatment ............................................................................................................ 9 Discharge and transition ................................................................................................ 10 Information on mental health conditions ................................................................ 11 Glossary ................................................................................................................................ 12 2
Priory Hospital Burgess Hill is a specialist site, set in attractive grounds in a rural setting in West Sussex, providing Secure Service for females with mental illnesses and personality disorders in a Low Secure care environment. This hospital also has two Psychiatric Intensive Care Units (PICUs) – one male and one female, an acute male-only service and a specialist Dialectical Behaviour Therapy (DBT) ward for female patients with Personality Disorders. The hospital is a spacious, purpose-built environment, which is set in attractive grounds in a rural setting, with good links to local amenities. The hospital offers clinical therapy, physical exercise, education and other meaningful activities for patients. Burgess hill provides a wide range of therapies to help rehabilitate our patients and equip them with the skills needed to return to the community, where possible. Your role as a carer A carer is considered to be anyone who provides support by a range of means for an individual who is under the care services. This may include emotional support or being a representative to act as their advocate. The role of carer is also implied if the individual no longer resides with you or is admitted to hospital at the time. The term carer in this booklet is used to describe all family and friends who have a significant role in providing support or input into the care of a patient. This is the official term used in government policies, in the law and by professionals, therefore it may be beneficial to recognise that the term may apply to you even if you chose not to use it yourself. In some cases, it may be that as a carer you have additional needs yourself such as having mental health needs wherein you require support, you are a young carer, have young children or are caring for other relatives. Please inform us if this applies to you, so that we can ensure your individual needs as a carer are met. If someone you care for is admitted to hospital it can be a difficult and confusing time. You may be unsure of what to expect, who to contact or your involvement in the patient’s treatment and care planning. The purpose of this handbook is to provide general information about what you can expect, how to request help and any further information regarding an admission to provide clarity. Details of the team involved directly in the patient’s care planning and how they can be contacted will also be included. As a carer you may want to provide information which you do not wish to share with the patient. While it is not a breach of confidentiality for a healthcare professional to listen to and acknowledge the concerns of carers, the healthcare team may need to disclose information received from others (including carers) to the patient in some cases – for example, if it has influenced the assessment and treatment of the patient. We will also require the patient’s consent in order share information. We hope this booklet provides an overview of the services we deliver and what you may expect for the person you care for. Introduction to the ward: Elizabeth Anderson Elizabeth Anderson ward is a female PICU (Psychiatric Intensive Care Unit) ward. We are a 10 bedded unit that admits adult females (aged 18-65) with a mental disorder and associated challenging behaviour or aggression. The goal is to progress recovery to a point 3
where community care can either be considered or delivered. We aim to deliver the care in a personalized manner, and in the least restrictive way. We understand that many of our admissions are precipitated by service user’s experience of crisis in the community. We aim to support them (and their families) through that crisis and help achieve a move back towards ongoing community based recovery usually via a step down procedure with an interim return to acute inpatient services in the patient’s own locality. Each ward has a multidisciplinary team. These are groups of staff with different areas of Our aims for patients The Multi-disciplinary team expertise and training. Some staff work across different wards. We have a variety of staff that • If patients are out of their own locality area we aim all have a role in supporting recovery. Our team to work with them and their cares and community teams to return them at the earliest opportunity on Elizabeth Anderson ward include: • Comprehensive assessment and treatment with Dr. Amitabh Chatterjee equality in service delivery. Consultant psychiatrist • Reducing length of stay in hospital to the minimum. Natasha Uff • More timely, streamlined and supported discharge Speciality Doctor planning. Role currently being recruited to • Provider Collaborative working together to create a regional approach for patients with very specialist Psychologist needs which cannot be met locally. Ian Brown Lead Social Worker Mark Smith Lead Occupational Therapist Our aims for carers Nicholas Holland Ward Manager • An inclusive and welcoming approach by all staff and providers. John Breen • Identifying the multi-disciplinary team with their main Charge Nurse task being direct liaison with family and carers. • Recognition within the Provider Collaborative, of the Bonnie Segwagwe ‘Triangle of Care’ (Patient / Provider / Carer) and the Charge Nurse significant role of family and carers’ within this. 4
Contact information Our location Priory Hospital Burgess Hill, Gatehouse Lane, Goddards Green, Hassocks, West Sussex, BN6 9LE Telephone: 01444 231 000 Email: info@priorygroup.com Web: www.priorygroup.com/burgesshill The Patient experience Referrals This is a request by a person or organisation on behalf of the patient when they believe that a placement in a secure hospital is the best way to meet their needs. The referral is discussed by all Providers at a weekly referrals meeting and the most appropriate unit is asked to undertake an assessment. Assessment Admission to Elizabeth Anderson ward will usually follow a process where referrals are screened by a central triage service. Carers may be entitled to a carer’s assessment under the provisions of the Care Act (2014). Carers can have different needs based on their circumstances. A carer’s assessment will assess these needs and oblige local authorities to provide relevant support depending upon meeting eligibility criteria. Such support might include assistance for a carer’s own health and wellbeing needs or help with travel. It is worth noting that visitors to service users detained for an extended period may not necessarily be deemed a carer under Care Act definitions, until the point that the service user is about to be discharged into the community. When Patients are First Admitted It can be a very difficult time when a patient is admitted to hospital. Whilst we are a hospital, as a secure hospital we have restrictions designed to ensure the safety of all people. Our hospital social work team endeavour to get into contact with carers of someone admitted to the hospital as soon as possible after admission. 5
Following admission the patient will usually be subject to one or more assessments. Initially, these assessments are normally about fact finding i.e. talking about symptoms/anxieties, stressors, the patient’s life story and ways that the staff can offer help and support. These assessments will also include physical observations, evaluating occupational therapy needs, psychological needs, benefits/finance and establishing a support network of communication for the patient. Safety and Security Being a secure hospital means we offer care to patients who are liable to be detained under the Mental Health Act (1983) and whose risk to harm others, themselves or to abscond from hospital can no longer be safely managed in other mental health settings. There are specific standards, determined by NHS England, of physical and procedural security that low secure hospitals are required to meet. The Priory Hospital Burgess Hill aims to meet these standards whilst implementing reductions in restrictive practice. Physical security includes aspects such as airlocks throughout the hospital and secure furniture. Procedural security includes an adept authorised leave recording process and facilitating visits safely. Safety measures ensure the safety and security of patients and the public and ensure appropriate treatment can be offered. Restricted and contraband items For the safety of all patients and staff, some items (often referred to as ‘Sharps’) are restricted. Patients’ access to items defined as ‘Sharps’ such as those used for arts and crafts and razors for personal care may need to be supervised by ward staff. This will be decided in the regular reviews conducted by staff with the patient and documented in the patient’s care notes. It may also be dependent on the individual ward. Certain items are contraband on the wards and others are restricted. This is to keep everybody safe. Some items are restricted on the ward and in the bedrooms due to potential risk and the use of them is considered on a case by case basis. BANNED AND RESTRICTED ITEMS The following items are banned in all healthcare units Alcohol • Plastic bags in communal areas e.g. for Explosives including fireworks household waste Illicit drugs • Psychoactive substances Knives - excluding cutlery provided and managed by staff • Weapons or replica weapons Non-prescribed medication • Wire coat hangers 6
The following items are restricted in all healthcare units Adhesive tape of any kind (e.g. Cellotape) Aerosol containers Any mirrors, including make-up sets Bath oil/bubble bath Batteries including lithium batteries Cables/wire with particular reference to wire bound notebooks Cans and tins Cigarettes, e-cigarettes and vaping devices Curling tongs/Hair Straighteners Dental floss Devices with access to the internet and/or a recording/camera facility False nails Glass and metal nail files Glass bottles Hair dryers Herbal remedies High caffeine e.g. energy drinks Lighters, matches Magnets Mobile phones and SIM Cards Nail clippers Nail polish remover Plastic bags for personal use e.g. carrier bags Razor blades Scissors Sewing and knitting needles Sharp items Solvents/glue Wire bound books Wool/string The following clothing may also need to be restricted dependent on the patient’s risk assessment and type of service being provided Clothing with draw strings Loops in clothing Hoodies Scarves Shoelaces Tights Belts Dressing gown cords Any wrapped gifts e.g. birthdays and Christmas will need to be opened in front of a staff member. Partially used or open food items cannot be brought in to the Centre. 7
Legal information, advice and advocacy All patients who have been detained in hospital under the Mental Health Act are informed about what the specific section means and are told why they have been detained. Solicitors and Independent Mental Health Advocates are available and visit the wards regularly. Mental health advocates work alongside service users and carers to support the individual admitted, provide information and help them understand their rights. An advocate is independent of any person who is professionally involved with the service user’s medical treatment and works for a separate organisation. General advocacy – NYAS Provided by NYAS (national youth advocacy service). Our advocate is currently on site Monday from 9.30am – 4.30pm and Thursdays from 9am – 2pm and are available to provide support with general patient advocacy requirements. Helpline – 08088081001/ help@nyas.net/ Freepost NYAS IMHA – Independent mental health advocates Provided by MIND and the local authority. This is suitable for patients who have been detained and require input regarding rights, treatment and tribunals etc. Helpline - 01243642121 Free legal advice and support for Mental Health Tribunals is available and legal aid may be available for appealing to the Hospital Managers. A summary of the sections and their meanings is contained at the back of this handbook. The triangle of care This is a therapeutic alliance between carers, service users and professionals. It aims to promote safety and recovery and to sustain wellbeing in mental health by including and supporting carers. The Priory Burgess Hill has committed to applying for Triangle of Care accreditation. If you require further information, please ask the ward manager. The Triangle of Care was initially developed to improve mental health acute services by adopting six principles. It is widely accepted that these key principles can be applied to all service areas. The six key principles: Carers and the essential role they play are identified at first contact or as soon as possible thereafter. Staff are carer aware and trained in carer engagement strategies. Policy and practice protocols re confidentiality and sharing information are in place. Defined post(s) responsible for carers are in place. A carer introduction to the service and staff is available, with a relevant range of information across the acute care pathway. A range of carer support services is available along with a self- assessment tool. 8
Care and treatment The care pathway is the plan which sets out the journey each individual patient will go through. Patients will progress at different rates so it is difficult to be specific about how long patients will remain as inpatients. The wards are staffed twenty four hours a day and patients are allocated a multidisciplinary care team, including a primary nurse to oversee care and support. Family, friends and supporters are encouraged to be involved in the Care Pathway with the patient’s consent. However, you may share information or concerns with staff even if staff cannot disclose personal information about patients to you. Every six months (3 months following admission) a Care Programme Approach (CPA) review will be held. This is an opportunity to review progress with the MDT. Relatives, friends and supporters are welcome to be part of discussions about care and treatment with the patient’s agreement. Therapeutic Activities and Treatment A wide range of therapies will be available that may include - Psychological therapy (individual and group) - Art Therapy - Music Therapy - Cooking - Gardening/Allotment - Facilities - Gym - Cafe - Sports - Recreation room - Day trips with Occupational therapy team Risk Assessment Risk assessment is an important way that we can show how the work patients have done has reduced the risks posed to themselves and others. Risk management plans help patients test themselves and recover more quickly. We do this in collaboration with patients so that everyone understands the concerns and what needs to happen to reduce the risks. Each patient has a risk meeting every 6 months where they can work with the team on formulating updated risk assessments. There will be opportunities in between these meetings as well, as part of the care planning. De-escalation, Restraint and Seclusion Patients may rarely require a period of support away from the main ward and some wards have a de- escalation area, where staff can spend time with a very distressed or angry patient in a low stimulus environment. Seclusion is supervised confinement, isolating a patient from others when the patient presents an immediate risk of attempting an assault. The MDT makes a decision to locate a patient in a de-escalation area or seclusion if it decides this is necessary to prevent more serious harm. Seclusion runs for the shortest period possible. There are strict procedures about how this is managed and reviewed on a regular basis. 9
Being nursed in seclusion may mean that patients do not have immediate access to a telephone to maintain contact with their family and friends. Therapeutic hold (restraint) is rarely used on the wards. Where there is considered to be an immediate and serious risk to a patient or others, staff may use authorized methods to restrain someone to prevent harm. As soon as it is considered safe to do so, staff will release the hold. Staff will try methods other than restraint first, wherever possible, such as talking to the patient in an attempt at de-escalation, or offering medication to reduce an angry emotional state. Leave There are different levels of leave: Escorted on the grounds of the hospital Unescorted on the grounds of the hospital Escorted outside of the grounds Unescorted or shadowed outside of the grounds Leave is individually risk assessed prior to being granted. Discharge and transition From the moment of each patient’s arrival we are considering their future care pathway and planning treatment to work towards recovery. We want patients to be able to move on and live as independently as possible. When a decision has been made at a CPA meeting or Recovery Review that a patient is ready to move on, there are a number of different factors which affect where this move will be to and how quickly it takes place. Locked and open rehabilitation services provide a step down between hospital and community living for those patients who need a longer period of rehabilitation. With patients’ permission we aim to fully involve carers/family in discharge planning. Discharge to the Community Throughout all patients’ admissions, the MDT maintain links with the relevant community mental health teams in the patient’s home area. As patients approach discharge, the relevant community team will attend meetings with the patient and start getting to know them if they did not know them prior to admission. Patients may be discharged to a variety of different placements or accommodation when they leave hospital. This will be dependent on their individual needs, their home area, any exclusion zones and available options in the relevant area. Funding Decisions When patients move on from hospital they may need support for a variety of different needs. Depending on what support is needed, this will effect where the funding for the care comes from. It may also depend on where the patient’s home area is. Different Local Authority Departments (for social care) and/or Clinical Commissioning Groups (for health care) may need to fund moving on and locating the right services to meet people’s needs. Section 117 This is often referred to as Section 117 (S117) aftercare and is the specific section of the MHA which relates to aftercare. Aftercare is the help someone may need in the community after leaving hospital. This can cover a variety of health and social care needs. Entitlement to s117 after-care applies following hospitalization under sections 3, 37, 45A, 47, or 48 of the Mental Health Act 1983. Entitlement to S117 10
aftercare will be reviewed periodically by the NHS Trust and Local Authority that have joint responsibility for the patient. Compliments and Complaints We welcome feedback about the Service we deliver as this helps us make improvements. Please let a member of staff know where there are aspects of the service you would like more information about, disagree with, have valued, or wish to share your feelings about. Discussing issues with the relevant Primary Nurse, Social Worker or Ward Manager initially may well solve the issue most quickly. In addition, you can put any concerns you may have in writing to the Ward Manager or Hospital Director. You can give feedback at any point, however there will be occasions when you will be contacted and asked to complete a short survey so that we can be sure everyone’s views are considered. Visiting All units welcome approved visitors and value the role friends, supporters and relatives play in an individual’s recovery. All visits are individually risk assessed and all visitors are contacted by the ward directly to arrange the visit. Please contact ward nurse in charge or ward manager to arrange and book visits. The safety of children is very important to us and if children or young people under eighteen are planning to visit, special arrangements and agreements will need to be made. There is a separate approval process for children visiting and the relevant Social Worker will discuss this with the parents if appropriate. All people holding Parental Responsibility must give consent and Children’s Services will be contacted to check that there are no specific concerns about the child that may affect whether they can visit. Information on mental health conditions If you would like information on diagnoses or medication or general treatment options, then please speak to the ward staff. They will be happy to arrange an appointment with the Consultant or other members of the MDT who may be well placed to give you information. With patient agreement the care team may be able to provide more specific information about the diagnosis, treatment received and to discuss options and future care needs. There are many different mental health problems and patients may be given one or more diagnoses. Sometimes the diagnosis can change over time as the multi-disciplinary team make further assessments or gather more information. If you would like further information regarding diagnoses, we recommend these websites: Improving Carers Experience http://iceproject.co.uk Mind For Better Mental Health https://www.mind.org.uk/about-us/contact-us/ NHS England have developed “The Carers Toolkit” Please follow the link for this: https://www.england.nhs.uk/commitment-to-carers/carers-toolkit/ Royal College of Psychiatrists https://www.rcpsych.ac.uk/ 11
Glossary Capacity: in mental health, this is the term used to establish whether someone is able to make their own decision about something at a particular time. If someone lacks capacity then they have been assessed as being unable to make a decision about a specific issue at a particular time. It is designed to protect patients and could include decisions about clinical matters, such as treatment (including medication) or other issues, such as relationships or finances. Code of Practice: Both the Mental Health Act and the Mental Capacity Act have codes of practice which are guidelines staff are required to follow in order to observe the law. Contraband: is a term commonly used to refer to items that are restricted or prohibited within the hospital. Detained: A person is detained if they are being kept in hospital under a section of the Mental Health Act and are not free to leave. This is also sometimes referred to as ‘sectioned’ or ‘compulsorily admitted’. Hospital Managers: Hospital managers are a panel appointed specially to look at whether people should be discharged. They are independent of the hospital, Clinical Commissioning Group, Local Health Board or any organisation that runs the hospital, because they cannot be officers or employees. Independent Mental Health Advocates: An IMHA is an independent advocate who is trained to work within the framework of the Mental Health Act to support people to understand their rights under the Act and participate in decisions about their care and treatment. Mental disorder: is a specific term and is also used in the MHA. It can include any ‘disorder or disability of mind’. Mental Health Act: (MHA) is the law in England and Wales which allows people under certain circumstances to be detained in hospital. It can only be used if certain criteria are met. Mental Health Tribunal (officially ‘First-Tier Tribunal Mental Health’): (MHT) is a panel which you have a right to apply to (under certain sections) so you can be discharged from your section. Tribunal hearings usually take place in the hospital where the patient is sectioned and detained, but they are totally independent of the hospital. My Shared Pathway: is an approach that emphasises outcomes and improves collaboration between patients and the MDT, with a focus on recovery under eight headings: mental health recovery; harm-related behaviours; insight; problems with substance misuse; nature of future plans; physical health status; life skills; relationships. Nearest Relative: This is a legally defined term under the MHA and describes a relative who has certain responsibilities and powers under certain sections of the MHA. It gives the right to information and to request discharge in some situations for patients under certain sections. It is not the same as next of kin. The law sets out a list to decide who will be the Nearest Relative and it can be changed under certain circumstances. The rights of the Nearest Relative are reduced or stopped if people are subject to certain sections of the MHA. Nearest relative rights vary depending on which section of the MHA the relative is detained under. Responsible Clinician: (RC) is the Approved Clinician who has been given overall responsibility for a patient’s care. Certain decisions such as renewing detention under the MHA, granting s17 leave or decisions regarding Community Treatment Orders can only be taken by the RC. 12
Section 17 leave: (s17) this section of the Mental Health Act (1983) allows the Responsible Clinician (RC) to grant a detained patient leave of absence from hospital. It is the only legal means by which a detained patient may leave the hospital grounds/secure perimeter. 13
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