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multiple news
Multiple Sclerosis Auckland Magazine September 2017 | Issue 38
Sam Smith at our comedy night
Laughter may not be the best medicine,
but it is the most fun to take!
inside
MS energise mobile app
access matters
food & recipe
Christine returns
from Singapore…..
Shhhh, Aubagio at work*
If you’re living with relapsing MS, there
is a treatment that may suit you.
Aubagio is a well-tolerated treatment that
effectively delays disability progression
and reduces relapses and MRI lesions.
Aubagio, working to help quiet MS.*
A once-daily pill, ask your doctor if
Aubagio is right for you.
*AUBAGIO has demonstrated a significant and consistent reduction in multiple measures of
disease activity in relapsing forms of MS, while its most common adverse events included
diarrhoea, rashes/itchy skin, which rarely required treatment discontinuation.
For full information on side effects, please read the Consumer Medicines Information available
at www.medsafe.govt.nz.
AUBAGIO® (teriflunomide, 14 mg tablets) is a Prescription Medicine for the treatment of patients with relapsing forms of Multiple Sclerosis to reduce the frequency
of clinical relapses and to delay the progression of physical disability. AUBAGIO has risks and benefits. For more information read the Consumer Medicines Information
available at www.medsafe.govt.nz. Ask your doctor if AUBAGIO is right for you. Use strictly as directed. If symptoms continue, or you have side effects, see your doctor.
AUBAGIO is a fully funded medicine. Special authority criteria apply. Normal doctors visit fees apply. References: Aubagio Approved Data Sheet November 2016.
Additional references to support the information in this advertisement are available on request. Sanofi New Zealand. Level 8, 56
Cawley Street, Ellerslie, Auckland. GZANZ.AUBA.16.02.0009. February 2017. GEAB12114. TAPS MR5167.
in this issue.
4. a few words from Ingrid
5. taking charge of cognitive
changes
6. from the field
7. from MS nurses
8. volunteer profile
9. hydrotherapy
10. Christine returns from
Singapore
11. food & recipe
12. street appeal
13. laughter is the best medicine
14. to complain or not to complain…
16. Be. employed internship
17. access matters
18. MS energise mobile app
20. support groups
our people.
Patrons Secretary Business Manager Projects Assistant
Dr. E. Willoughby Kerri Hoy Mark Blackie Tessa Pitney
Dr. J. Pereira
Committee Field Workers Thank you to Susan
Ambassadors Michael Cole Dianne Bartlett (South) from Underdog Design
John and Lorraine Street Carol Andrews (Central) www.underdogdesign.co.nz
Robert Irving
Diane Hampton (North) for the magazine design,
Joan Thomson and Print Monkey
President Andrea Kortas (West)
Carolin Perkins www.printmonkey.co.nz
Neil Woodhams
Fran Watts for the printing.
Project Co-ordinator
Vice-President Graham Wear
Kirsty Whitehouse
Louise Reed Maureen Wood
Administration/Volunteer
Treasurer General Manager
Co-ordinator
Peter Wood Ingrid Minett
Becky Tucker
Thank you to Pub Charity
For more information Like us on Facebook Limited for funding Multiple
visit www.msakl.org.nz www.facebook.com/multiplesclerosisakl News for 2017.
DISCLAIMER
Please don’t rely on the information in these pages to imply any diagnosis or course of treatment. You should not rely on this information in place of a visit, call, consultation or
the advice of a physician or other qualified healthcare provider. Content neither indicates nor reflects the views of MS Auckland. Any research, study, clinical trial, event, news
or other item included in Multiple News is not intended to imply endorsement or approval of it by the Society. Although we have made a conscientious effort to provide high
quality information, MS Auckland disclaims any implied guarantee about the accuracy, completeness, timeliness or relevance of any information.
September 2017 | 3
a few words
from Ingrid.
Our General Manager Th e re al
To D o Lis t
>
- Laugh
Adios winter! Hello Spring! Spring officially begins in
- Sin g
my books with the Spring Equinox on Saturday the 23rd - Re ad un
d er a tree
of September - coincidently, the same day as the NZ - Co unt y
o ur bles s in
election. I have a feeling that there will be a fair bit of - Hop e gs
change in the air, with both the political climate and the
- H u g yo u
amount of sunshine hours. Time will tell! r little one
- Walk ba s
refoot in th
As I write this I am thinking about my upcoming brief trip - Give th a e gra s s
nks
to Vancouver to visit with my mother. My mother is 83 - Love
and is physically very weak and reliant on her wheelchair - Keep on
– hence access issues are at the top of my mind. I’m lovin g
- Take d e
hoping to take my mother to some of her favourite ep bre ath
- Jump in s
places, like the Art Gallery, the beaches, the theatre and
cafes – yet I have to think if I can get her to all these
places. I have no idea how accessible Vancouver is as
I’ve never had to think about accessibility issues before. I hope you enjoy this edition of the magazine as much
Wouldn’t it be great if all places were accessible always? as I enjoyed pulling it together. I’m always fortunate
I’ve gotten involved in the Access Matters campaign and to have great contributors and wonderful people to
I hope you have a look at it and decide to add your name meet and interview. Huge thanks always to Susan from
to the campaign as well. Let’s make Auckland a fully Underdog Design, who designs and sets the magazine
accessible city! Find out more on page 17. out so we can send it to you in this lovely format.
We are so lucky to have found her!
There is always a lot to do when I get back from some
time away from the office. I came across this ‘real’ Happy spring! With warm wishes,
To Do List to help keep me grounded: Ingrid
our new MS ambassador – Lady Henry!
MS Auckland is thrilled to have Raewyn Henry join us Raewyn has friends with MS
as an MS ambassador, joining long time ambassadors and knows all too well
John and Lorraine Street. how unpredictable and
challenging it can be to live
Raewyn has never been one for the spotlight, happy for with the condition.
her husband, former All Black coach, Sir Graham to take
the spotlight. However earlier this year we saw Raewyn As our MS ambassador she
in the spotlight, when she put on her Centre Bib and will be helping to increase public
played in the World Masters Netball team. Netball is awareness of MS and raise funds to
clearly still one of Raewyn’s passions, however she is also support people living with MS. Thank you, Raewyn!
actively involved in helping out a number of charities.
MS Auckland office is located at Phone number: 09 845 5921 info@msakl.org.nz
5 The Strand, Takapuna e-mail addresses:
Office Hours Ingrid@msakl.org.nz Kirsty@msakl.org.nz
Monday – Friday 9am to 5pm Mark@msakl.org.nz Becky@msakl.org.nz
4 | ms. multiple news
events for September
/October
your calendar.
Saturday
30th September
Upcoming Wellness Workshop
events 10am to noon
‘Taking Charge of
Cognitive Changes’
Saturday 11th November Sunday
10th December
Newly Diagnosed Day
These half day events are very beneficial for people who have
been newly diagnosed. Attendance is generally by invitation, Christmas Lunch
however if you have not been to one, or feel you could benefit Mark this date in your
from a refresher please talk to your Field Worker or the MS Nurse calendar! More information
about attending, or call the office. will be coming out shortly.
Breaking News! - Bike the Bridge, which usually takes place in November will now be on Sunday the
18th of February 2018! This gives you lots of time to take your bike out over the summer months and prepare
for this fun, family event.
The best way to keep in touch regularly with upcoming special events is through our e-newsletter and website.
If you do not receive the monthly e-newsletter you can sign up on our website – www.msakl.org.nz or contact
Becky at the office on 09 845 5921.
taking charge of cognitive changes.
Taking Charge of Cognitive Changes in MS About the Facilitator:
Dr John Davison is a senior clinical
30th September 2017 | 10:00 am - 12:00 pm psychologist with experience in both
Remuera Club| 27-33 Ohinerau Street clinical and academic positions in
Remuera, Auckland 1050 New Zealand, Australia and Singapore.
This workshop will aim to help you understand the brain changes that can occur in MS,
recognise cognitive changes specific to MS, and more importantly, take charge of these
changes rather than be controlled by MS.
More about the Workshop:
People with MS often experience mild to moderate changes in their thinking abilities and feel that their thinking is
‘not what it used to be’. Changes in cognitive functioning can be an effect of brain changes (which are different for
everyone) and can be exacerbated by other symptoms of MS, such as fatigue and sleep problems. Cognitive changes
can be frustrating, make us feel less confident in ourselves, and sometimes lead to us withdrawing from daily activities
or social situations. However, more often than not, people with MS are able to develop effective ways for managing
these cognitive changes, adapt to their circumstances, and live productive, fulfilling lives. Learning skills early on to
compensate for cognitive changes can be especially important to maintaining cognitive abilities as MS progresses.
September 2017 | 5
from the field.
In this article, Dianne sets out to remind everyone who your Field Workers are and what they can do for you.
I’m Dianne Bartlett. We have two Dianne’s working as Field Workers for the MS Society and
this can cause a little confusion at times. So to differentiate, my name is spelt with two 'n’s'.
If you wish to email me, please make sure you put the two n’s in your email otherwise your
email will go to 'the other one' I have worked for MS Auckland now for 9 years.
My email address is dianne@msakl.org.nz My cell phone is 021 845 903 or you can reach
me on 09 845 5921 extension 220. I look after the South Auckland and East Auckland areas,
which is quite a large geographical area, from Mangere Bridge in the West, the Eastern Beach
area in the east down as far as Kaiawa on the east coast. Tuakau is the southern most area
and up on the Waiuku peninsular and any area in between. This is largely the Manukau DHB
region.
The 'other one' is Diane Hampton spelt with one 'n' Diane has worked for the MS Auckland
for some 13 years now. Diane’s email is (and remember only one 'n') diane@msakl.org.nz
Diane’s cell phone is 021 859 187 or you can reach her on 09 845 5921 extension 219.
Diane covers the North Shore from Devonport, Bayswater, Belmont, Takapuna, Milford,
Castor Bay to Long Bay. Northote, Birkenhead, Birkdale, Beachhaven to Glenfield through to
Greenhithe, Paremoremo, Albany, Albany Heights.
Carol Andrews has been with us now for four years and some of you will know her through
the Minimise Fatigue, Maximise Life (MFML) course that she facilitates. Carols email
address is carol@msakl.org.nz. Carol’s cell phone is 021 959 187 or she can be reached on
09 845 5921 extension 222. Carol covers central Auckland and surrounding areas such as
Ellerslie, Mt Wellington, Panmure, St Helliers, Mission Bay, The Orakei Basin, Pt Chevalier, Mt
Albert, Avondale and Blockhouse Bay. She also covers Waiheke Island - actually the Auckland
DHB area.
Last but by no means least, is Andrea Kortas. Andrea joined us just over a year ago now.
Andrea’s email is andrea@msakl.org.nz. Andrea’s cell phone number is 021 959 189 or
she can be reached 09 845 5921 extension 221. Andrea’s area covers West Auckland and
Rodney within the Waitemata DHB including Green Bay and Titirangi and surrounding areas,
West Coast beaches up to Kumeu and Riverhead, Whenuapai, Herald Island, Hobsonville,
Kaukapakapa, the Whangaparaoa Peninsula up to Wellsford and everything in between.
Another large geographical area!
What do we do -
We are here to support you. Google tells us that support is “the perception and actuality that one is cared for, has
assistance available from other people, and that one is part of a supportive social network”. And that is exactly
what we do.
If we break that down further, here are some of the ways in which we can support you:
1. We visit your home so that we can talk together in a non- threatening environment. We are generally not
governed by a clock so that we can talk openly about all sorts of things MS no matter how silly you may
think they are. Over the years we build a good strong relationship with each other so hopefully you will feel
comfortable contacting us if the going gets a little tough.
2. We extend our support those you are indirectly impacted by MS – such as your family and friends.
6 | ms. multiple news
3. We can connect you with other people who have MS, so that you have someone who knows and understands
just what you are going through.
4. We provide you with books, brochures, pamphlets and other written information all free for you to keep as future
reference.
5. We can refer you to such places as Physiotherapists, Occupational therapists, Needs Assessments to assist you
getting some personal care help and house work done, Lottery Grant applications, just to name a few, to make
sure you get the services you need to help you lead an active and independent life.
6. We advocate for you. This is a biggie. We are often asked to go to work places to explain MS and how employers
can help make work life a little easier on an employee living with MS. We are also available to accompany
you when you visit other places such as WINZ, Housing new Zealand, and other places of 'officialdom' and
where ever you may feel you need some support.
7. We listen. Sometimes it’s good to dump, to share the load and hopefully we can help lead you in the direction
you feel you need to go. Or not. Just listen!
8. We work closely with the MS nurses and often collaborate with them on projects and run workshops with them.
They look after the clinical side of MS and we look after the community.
9. We run wellness workshops that you are all invited to. We advertise these in this magazine and also talk about
them in the support groups.
10. We run Newly Diagnosed Days, providing time and space for people to gather more information and a better
understanding on a new diagnosis of MS.
11. We run Support groups and Water therapy groups (dates, venues and times are all in this magazine for you).
12. We publish and send out our quarterly magazine to you all and to other interested people in the community.
This is free to everyone. This hopefully will keep you in touch with things MS.
13. We try to raise the awareness and understanding of MS by talking to community groups and whoever wants to
listen!
So now you know who we are, what areas we cover, how to contact us and how we go about doing things. Do feel free
to contact us any time no matter how big or small your questions may be. If we are visiting someone and are unable
to answer your call straight away, then do leave us a message and we will get back to you as soon as we can.
We all feel that it is a privilege to be invited into your homes and lives and thank you for being part of our lives.
Cheers from Dianne with 2 'n’s' - Field Worker – South Auckland
from the MS nurses.
The MS Nurses, Fiona and Nazila, each work part-time. Together
they cover Monday to Friday from 9am to 4pm. During holidays
they have reduced availability. This will be reflected in their phone
messages and automatic e-mail responses.
Multiple Sclerosis Nurse Specialists
Auckland City Hospital
e-mail – MSNurse@adhb.govt.nz
Phone – 09 307 4949 ext. 25885#
September 2017 | 7
volunteer profile.
Beverley Kempthorne - Beachlands Street Appeal Coordinator
They say if you want something done ask a busy person.
Beverley is certainly a busy person! She was always a
very active and outgoing person prior to developing
MS. While her MS has slowed her down a bit physically,
it certainly hasn’t slowed down her enthusiasm for life
and her desire to look after herself and give back to her
community.
Three times a week you will find Beverly in a gym
working out, once a week doing a hydrotherapy class at
Lloyd Elsmore Pool and one day a week on her favourite
horse with Riding for the Disabled.
Beverley has also been the Street Appeal area
coordinator for the Beachlands area now for the past
three years. She gets other volunteers from her local
MS support group to help her out and also manages to
get a free advertisement in the Pohutakawa Coast times You can find Beverley and her volunteers during Street
calling for more volunteers over the two days. Appeal outside the Beachlands Postshop, or by the
Countdown, or they may also be at sites in Maraetai or
Whitford.
The annual Street Appeal is an important event on the
MS Auckland calendar, raising much needed funds to
keep the society running. All people collecting over
the two days are volunteers with hundreds needed to
get the reach throughout all communities. We are so
thankful for Beverley, and others like her, who lead a
local area. It takes so much pressure off the office staff
to be filling all the sites!
Thank you, Beverley! You are a star!
Sofia Radak – running for MS.
On Sunday the 29 of October Sofia will be getting up probably before the crack of dawn
to get to the starting line of the Auckland Half Marathon. While she is quite an active
person, this will be her first time running a half marathon. Her motivation is her father,
who lives with MS. Sofia saw this as an opportunity for her to help out the MS society
that supports her father and others in Auckland living with MS.
Sofia is training every day, with the occasional rest day. She feels the hardest part is in
preparing her body, both physically and mentally, for the 21 kilometer run. Sofia has set up a
give-a-little page so that people can support her efforts by donating to MS Auckland. She is very
grateful to all those who have already donated, and hopes over the coming weeks to raise more funds.
To support Sofia to raise funds for MS Auckland please go to https://givealittle.co.nz/fundraiser/running4ms
8 | ms. multiple news
hydrotherapy.
There are so many studies now that show how exercise
can improve a host of MS symptoms – including walking
speed, balance, brain fog, fatigue and depression.
It’s important to find an exercise that you enjoy. That
way it is more likely that you will stick with it. It’s also
important to choose something that matches your level
of ability.
If you haven’t tried Hydrotherapy yet then we highly
recommend that you give it a go. You get your first 2 classes study published in the European Journal of Experimental
free to see if it is something that you enjoy and want to Biology, researchers offered 30 men with MS 8 weeks of
continue. After that the cost is only $50 for 10 classes. one hour aquatic exercises. Another 30 men with MS
were in the control group and received no intervention.
Hydrotherapy isn’t just a good workout that can be The result showed overwhelmingly that the group with
adapted to almost all levels of ability; it's a lovely social the weekly water exercise had improved balance.
activity. Many of the swim groups will meet afterwards
for a coffee and a chat. One group even gets together for To find out more about Hydrotherapy Classes please
the occasional evening outing with their partners. And contact your MS Field Worker or the MS office (on
what’s more, they are all very friendly and welcoming to 09 845 5921). The classes are available for people
new people to join them. with other neurological conditions as well on the
recommendation of one of the Physiotherapists at Rope
Water exercises are considered to be one of the most Neuro Rehabilitation, who conduct the classes. Rope
adaptable and effective ways to get moving. In a 2014 can be contacted on 09 623 8433.
2017 Weekly Sessions
Tuesday Wednesday Wednesday
Lloyd Elsmore Pool Millennium Pool Manurewa Leisure
Sir Lloyd Drive 17 Antares Place Sykes Road
Pakuranga Rosedale Manurewa
11.00am - 12.00 noon 10.30am - 11.30am 11.00am - 12.00 noon
Contact: Contact: Contact:
Dianne Bartlett Diane Hampton Dianne Bartlett
09 845 5921 Ext 220 09 845 5921 Ext 219 09 845 5921 Ext 220
dianne@msakl.org.nz diane@msakl.org.nz dianne@msakl.org.nz
Thursday Friday Saturday
Epsom Girls Westwave Aquatics Diocesan Girls
Silver Road 20 Alderman Drive Clyde Street
Epsom Henderson Epsom
10.30am - 11.30am 11.00am - 12.00 noon 10.00am - 11.00am
Contact: Contact: Contact:
Carol Andrews Andrea Kortas Carol Andrews
09 845 5921 Ext 222 09 845 5921 Ext 221 09 845 5921 Ext 222
carol@msakl.org.nz andrea@msakl.org.nz carol@msakl.org.nz
September 2017 | 9
Christine returns from Singapore.
Short hair and big smiles! Ingrid talks to Christine 2 months after returning from
Singapore
In March this year I talked
to Christine just before
she left for Singapore
about her upcoming trip
to Singapore for HSCT
treatment. This was
written up in our March
magazine.
Christine is now back! I met up with her in a café in
Parnell. She looked fabulous! Here are some of the
things we talked about:
Me: What was the whole experience in Singapore
like for you?
Christine: In total I was 2 and a half months in Singapore.
Of that I only had 2 weeks in hospital. It wasn’t pleasant,
but it certainly wasn’t as bad as I had expected. I only
had one really bad day with the chemotherapy. I needed Christine in Rotorua
to have 3 blood transfusions, which was unexpected,
and because I have 0 negative blood which is not that there, the hope is that no new ones appear. I am feeling
common, they had to run around to find the blood I great though. I had been walking with a walking stick
needed! for about 6 months prior to the procedure, but don’t
use one at all now. I have so much more confidence.
They put tubes in your neck which you have in for about People are noticing a big difference in me too. I go to
2 weeks. It’s awkward and makes it a bit hard to sleep. the gym regularly and do pilates and both trainers say
When they come out they put a tube in your chest. there is a big difference in my abilities. I still have to
be careful though. If I overdo things I start noticing a
It was great to have my partner there and both my sons tingling in my legs. Then I have to stop and rest. I also
came over to see me for some of the time. One lives in avoid crowded places as much as possible. I have been
the UK and the other in New Zealand. well since coming back but I don’t want to take any risks
as my immune system is probably still weak.
Me: Did you spend much time preparing yourself
for this? I have so much more confidence now. I had some friends
Christine: Well I did get my affairs in order. The treatment visiting from overseas and we went to Rotorua together.
is still experimental and while the risk is small it is still I actually went on a native forest zipline tour with them.
there. It’s something I never would have had the confidence
to do before. I let the guide know that I might be a bit
I worked hard at getting myself in peak physical slow, but in the end I felt good because I kept up with
condition. I think you’re chances of a smooth recovery the group and I wasn’t even the slowest!
is better if you’re in good shape going in.
Me: Any regrets?
Me: You said that all you wanted from the Christine: None at all. Going to Singapore suited me.
treatment was for the progression to halt. There was only a 3 months waiting list which was good.
Do you think this has been achieved? I didn’t want to wait any longer as I felt I was going
Christine: It’s hard to know because the treatment downhill rapidly.
hasn’t been around long enough. Even if it halts
things for 5 to 10 years it will be great. I will have an Me: What are your plans now?
MRI every 6 months. While the old lesions will still be Christine: My plan is to live!
10 | ms. multiple newsfood & recipe.
Our recipe this quarter has been kindly provided by our volunteer, Wendy Wood.
Wendy has MS and is a strong follower of Overcoming MS (https://overcomingms.
org/) which promotes the integration of diet and lifestyle changes into standard
medical management of MS. The OMS programme was developed and rigorously
researched by Professor George Jelinek who was diagnosed with MS in 1999.
This recipe came from the Mana retreat that Wendy attended in 2012.
Red Dragon Pie
Serves 4-6
First catch your dragon!
Ingredients
1 1/4 cups brown or green lentils (or 2 x 400gm cans, drained)
Bay leaf
2 onions, chopped
4 cloves of garlic, chopped
Big thumb of ginger, chopped
2 sticks of celery, chopped
2 carrots, chopped
Can of tomatoes
1/4 cup tomato puree.
3 tablespoons soy sauce or tamari
Generous handful of herbs, chopped - parsley, chives, marjoram, rosemary etc
1kg root vegetables, peeled and chopped - potato, kumera, pumpkin etc
‘Milk’ - soy, rice etc
Extra virgin olive oil
Salt and pepper to taste
Instructions
Cover lentils and bay leaf in water and cook until tender - 30 - 40 minutes. I use a pan that can also go in the oven.
Steam onions, garlic, carrot, celery and ginger until soft.
Add to lentils with tomatoes, tomato puree, soy sauce or tamari and plenty of chopped fresh herbs, and cook until
soupy.
Cook a selection of root vegetables (potato, carrot, parsnip, pumpkin, yams) until soft and mash with soy or rice milk
and a splash of extra virgin olive oil.
Tip: I cook them in the water left over from steaming the onions etc, then drain the final vegetable cooking water
into the lentil mix.
Check seasoning of lentil mixture and mashed vegetables.
Top lentils with mashed vegetables and bake at 180 deg C for 45-50 minutes until golden.
Tip: I keep a bag of chopped onions, garlic, and celery in the freezer ready to add to things like this. Food processor
saves effort too.
September 2017 | 11street appeal.
Our Annual Street Appeal over for another year. This event sees hundreds of
volunteers take to the streets collecting funds and raising awareness of MS.
We are so very, very grateful to you all!! We could not do this without you. Your
support helps us support people in the Auckland region who develop MS – a life-
long and life changing condition for which we still have no known cause or cure.
A big thank you to the BNZ! Staff members took the day off from banking as part
of their ‘closed for good’ community support and delivered resource boxes to Mt Roskill
collector’s homes throughout Auckland.
Unfortunately we were not given permission this year to collect from a number
of our top sites. Many stores now have rules around collections, such as only
allowing one a month, or only one or two of their nominated charities to collect,
or even not allowing any more collection outside their store at all. This will likely
have an impact on the funds we can raise. Hopefully the impact isn’t too hard!
If you didn’t see a collector over Appeal weekend and would like to donate
please go to http://www.msakl.org.nz/donate, or phone the office on
09 845 5921.
Thank you!
Countdown Pukekohe
Greenlane
Newmarket
Navy collectors in Devonport
St Peter's Boys Takinini
12 | ms. multiple newslaughter is the best medicine.
comedy night sponsored by Harcourts Cooper & Co
There is nothing better than a good giggle, or better yet a big belly laugh. Is it the best medicine? Probably not, but
research shows that laughing triggers the release of endorphins, our body’s feel good chemical and natural pain killer.
But that’s not all –laughter is credited with lowering blood pressure, reducing stress hormones, working your abs and
improving your cardiac health, and boosting your immune system!
‘Laughter is the Best Medicine’ event was held at The Comedy Classic on Queen Street on the 29th of August to launch
MS Awareness Week. The event was sold out within a couple of weeks with 120 people enjoying a fabulous night out,
thanks to the 6 top comedians who donated their time on the time and gave us all a great show and tears of laughter.
A great big thank you to:
Brendon Green, Tarun Mohanbhai, Louise Beuvink, Guy Williams, Dai Henwood and our very own Sam Smith, who
was also the Master of Ceremonies on the night.
Macpac who have been good supporters of MS, primarily through the ‘Mastering Mountains’ scholarship, donated 6
drink bottles which were passed on to the comedians help show our deep appreciation for their generous support.
MS Auckland Treasurer Peter Wood and his wife and Committee member Maureen, donated the top raffle prize of a
week long stay in a luxury apartment on Lake Taupo. This prize along with the 2nd prize of 4 cinema tickets and 3rd
prize tickets for 4 people to attend the filming of Jono and Ben, made for a great raffle on the night.
A big thank you also to our community sponsor Harcourts Cooper & Co – they have been so wonderful with their
support of us over the years. And thank you too to The Comedy Classic Club for hosting us. We hope to make this
event an annual one in our calendar!
‘A day without laughter is a day wasted’
– Charlie Chaplin
Guy Williams, Brendon Green and Sam Smith
Raewyn Henry doing the prize draw with Sam and Kirsty Kirsty from the MS office thrilled to meet Guy Williams
September 2017 | 13to complain or not to complain… Kiwis tend to be quite complacent people and not ones to generally complain. Sometimes though, especially when it comes to your health, or the health of others it is important to let service providers know that they need to do better. In this article West Auckland/Rodney Field Worker, Andrea Kortas, looks at the process of making a complaint. At some point in your life, you have probably all been in a situation where you were not happy with the health or disability service that you received (or a lack thereof )! We all have the right to make a complaint, but sometimes the process can seem daunting, or perhaps you don’t know where to start? This article will provide some key tips to make the process easier for you and some specific information on complaining to the District Health Boards (DHBs). Know your rights! Before making a complaint, it’s important to know your rights when receiving a health or disability service. The Health and Disability Commissioner (HDC) has a Code of Health and Disability Services Consumers’ Rights. Most good health and disability services will have a copy of this available on their wall, or in a brochure. You can read and download the Code of Rights here: http://www.hdc.org.nz/the-act--code/the-code-of-rights We usually have copies of this brochure available in our MS Auckland office. Please contact your Field Worker if you wish to receive a copy of the brochure. HDC also provides the brochure in many languages other than English. If you are unsure of whether or not your rights have been breached, you may request to seek free legal advice from a lawyer at your local Citizen’s Advice Bureau or you may phone Auckland Disability Law (ADL) (see details below), who provide free legal services to disabled people associated with their disability legal issues. Where to start? Now that you know your rights, you may wish to make a complaint. As a general rule, it is best to make a complaint in writing so that there is written evidence of the complaint being made. Ideally the complaint should be made as soon as possible after receiving the service that you wish to complain about. If you are unable to write, have someone you know and trust help you to write it. Who do I write to? It is best to write your complaint directly to the person or organisation that gave you the service, as a first port of call. If you do not receive a resolution that you are happy with, that would be the time to take the complaint to the next level up in the hierarchy. In some cases, the person or organisation may request to meet with you to discuss your complaint, if it cannot be resolved through written communication. If you feel uncomfortable doing this on your own, have a friend or relative support you. You can also access the support of an independent Health and Disability Advocate through the HDC, which is a free service (see details below). Climb your way up the chain of command until you reach the top level of management and if you are still not happy that your complaint has been resolved then you can seek the assistance of the Health and Disability Commissioner or Auckland Disability Law, to assist in resolving the matter. You may also make a complaint directly to the Health and Disability Commissioner about the quality of health or disability services provided to you or someone else by completing their online complaint form here: http://www.hdc.org.nz/complaints/making-a-complaint/online-complaint-form or contacting them on the details below. They recommend that this is done as a last resort, after following all of the above procedures. Tips for writing the letter: When writing your complaint letter, you will need to outline exactly what you are complaining about, followed by the requested outcome that you hope to achieve through writing your complaint. Also include a time frame 14 | ms. multiple news
within which you hope to receive a response and resolution. If you have any evidence of what happened, be sure
to attach this to your letter. When writing, it is best to list the facts, describing what happened and to remain polite.
You may describe how you felt as a result of the incident you are writing about, but I would advise against writing
in an abusive or accusatory manner. No matter which level of the hierarchy you are complaining to, follow this same
process. If you need help with how to format your letter, you can find some tips, templates and examples here:
http://www.wikihow.com/Write-a-Complaint-Letter-to-a-Company
Key contact details:
The Health & Disability Commissioner Contacting an advocate:
Postal Address: PO Box 1791, Auckland Free Phone: 0800 555 050
Phone: (09) 373 1060 Email: advocacy@advocacy.org.nz
Other areas: 0800 11 22 33 Free Fax: 0800 2 SUPPORT / 0800 2787 7678
E-mail: hdc@hdc.org.nz Or view the following link:
Website: www.hdc.org.nz advocacy.hdc.org.nz/find-an-advocate
Auckland Disability Law
Postal address: PO Box 43-201, Mangere, Auckland
Physical Address: Mangere Community Law Centre, Unit 9, Shop 27, Mangere Town Centre
(wheelchair access available)
Phone: (09) 257 5140
Fax: (09) 275 4693
Mobile Number: 027 457 5140 (text only)
E-mail: info@adl.org.nz
Website: aucklanddisabilitylaw.org.nz
Complaining to the District Health Boards
Use the following procedures first, but remember if you are not happy with how your complaint was handled, you can
also contact the Health and Disability Commissioner. When writing a complaint to a DHB, remember to include the
patient’s name, date of birth, NHI number (if you know it), and the contact details of the patient or the person writing
the letter – including address, phone number and email. If relevant, also include the dates of the patient’s care and
location, for example, the ward name or clinic name. The DHBs love positive feedback too!
Auckland DHB Counties Manukau DHB Waitemata DHB
The following link provides all you need The following link provides all you need The following link provides all you need to
to know: http://www.adhb.health.nz/ to know: http://cmdhbhome.cwp.govt.nz/ know: http://www.waitematadhb.govt.nz/
contact-and-feedback/compliments-and- for-patients-and-visitors/concerned-about- patients-visitors/tell-us-what-you-think/
complaints. your-care/ You may contact their Quality Team using
the following details:
You can either speak to those providing If you are concerned about your treatment Phone: (09) 486 8920 Ext 3153
your care, or the charge nurse or midwife or care (or that of a family member) you Online, using the customer feedback form
on the ward or clinic where you are being may ask any staff member for a "Happy here: http://www.waitematadhb.govt.nz/
treated. If you feel uncomfortable talking or Unhappy with our Services" brochure, contact-us/
to these people, or you have a concern and complete the form and return to the
aren’t satisfied with their response, please Freepost address, or you can ask to speak to Mail to: Waitemata District Health Board,
contact their Consumer Liaison Team using the Duty Manager after hours. You can also Quality Team, Private Bag 93-503, Takapuna,
the following details: choose to speak to a staff member or ask for Auckland 0740
Email: feedback@adhb.govt.nz a Manager (E.g. Charge Nurse, Clinical Nurse
Phone: (09) 375 7048 Leader or Team Leader) in the department You can also enter your feedback into the
clinic or ward. complaints, suggestions and compliments
Mail to: Consumer Liaison Team, Auckland box in the main foyer of the hospital you are
DHB, Private Bag 92024, Auckland Mail You may also contact them using the in. Where an investigation is required they
Centre, Auckland 1142 following details: aim to complete it within 14 calendar days.
Complaints/feedback phone: (09) 277 1667
Email: customerservice@superclinic.co.nz
Mail to: Quality Assurance Manager,
Counties Manukau Health, Private Bag
93311, Otahuhu 1640, Auckland or fill out
the online feedback form here: http://
cmdhbhome.cwp.govt.nz/contact-us/
feedback-form/
September 2017 | 15Be. employed internship.
It’s a challenge all students and recent graduates know their big event, Clash of the Hemispheres. This experience
too well: how do you get your foot in the door when was fantastic and the team were supportive and
it seems every available position asks for experienced understanding. I have now continued working 10 hours
applicants? a week with MS Auckland to help with their annual street
appeal. I am extremely appreciative of Be.accessable and
Social change enterprise Be. Accessible offers a MS Auckland for providing this opportunity and giving me
solution for eligible students through the Be. Employed much needed experience. I am looking forward to starting
Internship programme - a 4 to 16-week placement in working full time for an organisation in my field of study
a role that reflects the student’s area of study. We are shortly and continuing on in my working career still with
excited to offer the Be. Employed Programme to tertiary the team at Be. supporting and guiding me on my way."
students and graduates who are looking to kick-start
their career aspirations. Apply for the Internship programme now via
the online application http://www.beaccessible.org.
Be. Employed Relationship Manager Jake Mills says the nz/be-employed/internship-checklist2 or for more
programme is about providing experience and work information, contact Be. Employed Relationship
opportunities for young people with disabilities, or Manager Jake Mills on 027 699 6974 or jake@
access needs. beaccessible.org.nz.
The programme is now entering its fourth year following Visit www.beaccessible.org.nz to find out more about
a successful pilot in 2014. They have matched students the work of Be. Accessible and the Be. Employed
with a wide variety of businesses including, ACC, programme.
Wellington DHB, Hamilton City Council, BNZ Auckland
“I enjoy my job because we see massive growth in people
as they develop their confidence and skills in a meaningful
work environment,” says Jake. “We received lots of great
feedback from our interns and the businesses we’re
working with, about the value of the programme.”
The purpose of the programme is not only to create
opportunities for young people with access needs, but
also to establish a more diverse, open and accessible
workplace culture in New Zealand.
“Access citizens are overrepresented in under-
employment stats in nearly all OECD countries. In New
Zealand, more than 60% of people with access needs
are unemployed or underemployed.”
Tessa came to MS Auckland through the Be Accessible
Be Employed programme and has this to say about it:
”In 2016 I Graduated from AUT with a bachelor of
international hospitality management. Finding work was
not easy as I have a visual impairment which affects my
working ability particularly in my field of studies.
During my time at uni I was lucky enough to build up a
great relationship with Be. Accessible and was welcomed
on to their Be Employed program which helps to find those
with access needs internships to gain valuable experience
and confidence in the work place. I was so happy to be
offered a place by the MS Auckland team working on
Be. Employed Relationship Manager Jake Mills
16 | ms. multiple newsaccess matters.
The Access Matters Campaign aims to achieve new laws
around accessibility so that people get to participate in
all areas of life like everyone else. All too often people
with multiple sclerosis are not able to access every day
activities and are treated differently from others because
of their disabilities.
Multiple sclerosis should not be a barrier to employment,
and people’s attitudes about it and all disabilities need
to change. In employment, it can sometimes be difficult
for people:
• During the job application process when questions
are asked that force us to disclose our multiple
sclerosis
• To gain the supports and accommodations
(changes) needed so that we can do the job like
everyone else
• To keep our jobs when things change in the The Access Matters campaign is led by a coalition of
workplace, for example, due to restructuring and/or disabled people, disability organisations and supporters.
our multiple sclerosis. Get involved today because access matters!
The Access Matters campaign is about creating To find out more and get involved go to:
law which put in place enforceable standards, for http://aucklanddisabilitylaw.org.nz/access-matters-
example, employment processes, job supports and campaign/
accommodation plans, which promote access for all. http://www.accessalliance.org.nz/
The campaign is also about changing thinking around https://www.facebook.com/AccessForAllNZ/
disability and access.
Power Chair?
OR
Mobility Scooter?
It can be BOTH
INDOORS & OUTDOORS or Fold it to TRAVEL
“Freedom Chair”
A life changing Experience
Call Paul on: 0800 466 626
Email: paul@montec.nz
Web: www.freedom-chair.nz
September 2017 | 17it’s here! MS energise mobile app to
assist people with MS fatigue!
At the end of August, after few years in the making, MS
Energise was launched in New Zealand. MS Energise
is a comprehensive research-supported application
for people experiencing MS based fatigue. It has been
developed for iPhones and iPads but the Research
Team behind MS Energise is intending to launch the
Android version in the near future. Information
on MS Energise can be found on their website –
https://msenergise.com
MS Energise is the only mobile app available which
focuses specifically on fatigue, the most disabling
symptom of MS, and it is based on clinical evidence.
Wilson and Duncan
As their website states: Fatigue is the most disabling,
invisible multiple sclerosis symptom which is Despite its efficacy, CBT is not generally available for
experienced by majority of MS patients and it affects people with MS due to prohibitive cost and scarcity
all spheres of their lives. MS Energise uses clinically of qualified clinicians. Fatigue may be discussed with
proven approach to help MS patients to maximise an MS Nurse, Field Worker or during a review with the
their energy. Neurologist, but for a symptom which affects people so
profoundly, it is not given much attention.
The MS Auckland GM, Ingrid, met with two of the
team – Associate Professor Duncan Babbage, from AUT MS Energise is divided into six areas all which impact
University, and Wilson Huang, from AUT Ventures, a few on fatigue – Behaviour, Thoughts, Emotions, Body
weeks before the launch, to learn a bit more about MS (physiological), World (environment) and Future. In
Energise and what we could expect. Needless to say each area you are learning, interacting and applying
they both were very excited to be bringing the product information to your day to day life. With hours of
to people with MS. material, you work through it at a pace that suits you.
Field tests are on-going, both in New Zealand and in the
MS Energise uses a cognitive behaviour therapy (CBT) UK, with continuous updates and developments being
approach to manage fatigue. This particular CBT made to MS Energise.
for fatigue management has been developed and
proven to be effective by the Research Team behind Even though MS Energise is designed to be a stand-alone
MS Energise. Multiple trials showed a reduction in self-management fatigue programme, MS Energise is
fatigue severity and fatigue self-efficacy four months also a great way to compliment the Minimise Fatigue,
after the CBT intervention compared to the usual care. Maximise Life (MFML) course. For more information on
Both the content and the mode of delivery of the MS the next MFML course in Auckland, please contact our
Energise intervention are novel but underpinned by a office on 09 845 5921.
robust evidence base.
Feedback on MS Energise to date has been very
positive. Being so new, there is no long-term outcome
data yet on its use, but with the brilliant team behind
this app I feel confident that we will see many happy
users experiencing good results with MS Energise.
The MS Energise Research Team
AUT - A/Prof Duncan Babbage; Dr Kirsten van Kessel
and Ann Sezier. UK - University of Brighton Prof Paula
Kersten; Bournemouth University Dr Sarah Thomas and
Prof Peter Thomas.
18 | ms. multiple newsresearch on what people with RESEARCH
MS require in order to receive
first world care.
In New Zealand there has been an increased demand for MS services - but
organisations and professionals that provide the services are experiencing
reducing funding. This means that about 4,000 people living in NZ with
MS and their families are not being adequately supported.
The following information has been condensed from an MSNZ discussion
paper that was given to various political parties.
What does first world care look like? Recent overseas research identified
4 things which MS organisations and key MS clinicians worldwide endorse:
1. Early access to disease modifying treatment (DMTs) drugs to preserve brain
and spinal cord tissue
2. Early diagnosis and treatment
3. Regular monitoring and recording of the disease
4. A full range of therapies – to improve the chances of finding the best option for each person with MS
Currently New Zealand is not meeting these key recommendations. MSNZ is asking us all to reach out to our local MPs
and political groups to gain their support and commitment to improve the standard of care in NZ.
What people with MS in NZ deserve is:
• Early diagnosis and treatment – This is crucial. Currently access for specialist assessments, MRIs and other
diagnostic and monitoring procedures are not provided in a timely manner by many DHBs. Also people with MS
often report symptoms of MS years before a diagnosis is made. Early symptoms are often misdiagnosed due to a
lack of knowledge about the condition.
• Guidelines for the minimum level of treatment and support – There are no National guidelines for MS treatment
which would help all people receive the same services, information and support wherever they live. Such
guidelines are available in the UK and elsewhere in the world. Every New Zealander should have the right to
access a neurologist within one month of referral, an MRI following their first symptom presentation and an
annual review for all those diagnosed, including an annual physiotherapy review. Regular monitoring is essential
and will enable personalized treatment for every person with MS.
• Access to the best frontline treatments - PHAMAC has funded some new MS treatments in recent years, but the
funding criteria imposed by PHARMAC are more restrictive than overseas and not supported by current research.
• Access to specialists within a reasonable timeframe – Delays run the risk of people being unable to qualify for
drug treatments by the time they are seen by a neurologist. Annual reviews must be completed on time or
people risk being taken off treatment.
• Integrated multidisciplinary care – Currently DHB services are not well integrated internally. Many DHBs are not
working as best as they can with services available in the community.
• More MS neurologists and specialist MS nurses – There are 34 full time equivalent Neurologists in New Zealand.
By international standards there should be 74.
• Residential care in appropriate facilities – There is a lack of respite and long term residential care facilities for
people with MS. This has been a long-term issue and there are no solutions in sight.
• Funded services – Funding for the charity sector is shrinking and funding for volunteer-based organisations that
fulfil function that should be funded by central government is increasingly difficult to come by.
The full paper can be viewed on our website – www.msakl.org.nz
September 2017 | 19support groups. MS Support Groups meet throughout Auckland. In Support Groups you are able to talk to other people who truly understand what you are going through and share the type of practical insights that can only come from first-hand experience. There are many benefits to joining a support group. If you haven’t been to one yet, why not come along and see what it’s all about? Talk to your Field Worker if you are unsure which group to go to, or if you are interested in having a support group set up in your area. Location Contact Date/ Time South / East Auckland Beachlands Support Group Dianne Bartlett Fridays / Six Weekly Pepper Jacks Café 021 845 903 11.30am Pukekohe Café Group Dianne Bartlett First Thursday / Month Different Venues 021 845 903 11.30am Botany Café Group Dianne Bartlett Third Thursday / Month Whitcoulls Coffee Lounge (Botany Town Centre) 021 845 903 11.30am Manukau Café Group Dianne Bartlett Last Tuesday / Month Friendship House (Manukau) 021 845 903 10.30am Central City Evening Group Carol Andrews Wednesday / Six Weekly Scarecrow Café 021 959 187 6.00pm Greenlane Café Group Carol Andrews Second Saturday / Month Mama Rich Café (205 Great South Rd, Greenlane) 021 959 187 11.00am Stonefields Café Group Carol Andrews Third Wednesday / Month Stonebake Café (Lunn Avenue, Mt Wellington) 021 959 187 10.30am Onehunga Group Carol Andrews Second Tuesday / Month Frolic Café (Manukau Rd, Royal Oak) 021 959 187 10.30am West Auckland & Rodney Kumeu Café Group Andrea Kortas First Tuesday / Month Different Venues 021 959 189 10.30am Henderson Garden Café Group Andrea Kortas First Thursday / Month Espresso Garden Café (inside Mitre 10 Mega, 186 Lincoln Rd) 021 959 189 11.00am North Café Groupies Andrea Kortas Third Wednesday / Month Kings Plant Barn (Silverdale) 021 959 189 10.30am North Auckland Mayfield Coffee Morning Diane Hampton First Thursday / Month Kings Plant Barn (1 Forrest Hill Road, Milford) 021 859 187 10.30am Shore Lunch Group Diane Hampton Last Wednesday / Bimonthly Palmers Planet Café (cnr Hugh Green Drive/Greville Rd, Albany) 021 859 187 12.00 noon North Shore Café Group Diane Hampton First Saturday / Month Kings Plant Barn (1 Forrest Hill Road, Milford) 021 859 187 12.30pm 20 | ms. multiple news
Consumer Information Gilenya® (fingolimod) 0.5mg is a prescription medicine available as capsules for the treatment of patients with relapsing multiple sclerosis to reduce the frequency of relapses and to delay the progression of disability. Gilenya is a fully funded medicine under Special Authority Criteria. Normal doctor visit fees and prescription charges apply. Out-patient monitoring will be necessary for administering the first dose. You should avoid becoming pregnant while taking Gilenya and for two months after you stop taking it. It is important not to stop taking this medicine without your doctor’s advice. Gilenya has risks and benefits. Cautions are infections, vaccinations, visual disturbances, decrease in heart rate, signs of liver disorders, sudden onset of severe headache, nausea, and vomiting, or any abnormal skin growths or changes (e.g. pearly nodules, patches, or open sores or unusual moles). Talk to your doctor right away if you experience any of these, or experience worsening of your MS symptoms. Side effects can include headache, liver enzyme increased, diarrhoea, cough, influenza, sinusitis, and back pain. Refer to consumer medicine information at the website www.medsafe.govt.nz for full details. Ask your doctor if Gilenya is right for you. Use strictly as directed. If symptoms continue or you need further information or you have side effects see your doctor. Gilenya is the registered trademark of Novartis AG. Novartis New Zealand Ltd, Auckland NZ-00109 07/2017 TAPS MR4974 essence NV8472 MSMAG Reference: 1. Gilenya Consumer Medicine Information available at www.medsafe.govt.nz Model is for illustrative purposes only Only think about your MS once daily Relapsing multiple sclerosis may be there every morning, but that doesn’t mean it has to always be on your mind. With a treatment routine as simple as one pill a day1, Gilenya can let you focus on the life you want. Ask your doctor about Gilenya.
Join the MS Auckland
Community
Please return this form to: Multiple Sclerosis Auckland
PO Box 33574, Takapuna, Auckland 0740
Email: info@msakl.org.nz, Telephone: 09 845 5921 www.msakl.org.nz
MS Auckland is a charitable organisation. You may join our community by donation. A tax receipt will be issued for all
donations either on receipt (annual donation), or at the end of the financial year (for regular giving).
Monthly donations of $30 or an annual donation of $360 or more also entitles you to free participation to our
Wellness Workshops and our annual Christmas Lunch. Financial membership is also available. Please contact the office for
more information.
Date: _____ / ______ / ______
Please select one of the following:
I have MS A family member has MS I am a health professional Other ___________________
First Name: ______________________________________ Date of birth: _____ / ______ / ______
Surname: ______________________________________ Email: __________________________________
Address: ______________________________________ Home ph: __________________________________
______________________________________ Work ph: __________________________________
____________________Post code__________ Mobile: ________________________________
I would like to make an annual donation of I would like to give a regular amount of
$30 $10
$50 $20
$100 $30
$360 $40
Other _____________________________ Other _____________________________
Frequency
per week per fortnight per month
Payment Options: I would like to pay by: Automatic debit (see account details below) Credit card
Visa or Mastercard Expiry Date _____ / _____ Name on card: ______________________________________________
Card No.
For regular giving via credit card we will contact you to confirm details.
I have enclosed my cheque payment of $___________________ Please make cheques payable to Multiple Sclerosis Auckland.
Deposited into MS Account No. 12 3047 0088939 00 ASB Bank. (Please use your first and last name as reference)our supporters.
MS Auckland is grateful to all organisations, families and individuals who support our work.
AJ Scott Fund Milestone Foundation
Auckland Council Ministry of Social Development
Biogen Mt Wellington Foundation
Blue Sky Community Trust North and South Trust
Blue Waters Community Trust North Shore Presbyterian Hospital Trust
COGS Novartis Pharmaceuticals
Constellation Communities Trust Pelorus Trust
Dragon Community Trust Perpetual Guardian
Elsie Steele Trust Pub Charity Limited
Foundation North Rehabilitation Welfare Trust
Four Winds Foundation Rob Webber & Associates
Grassroots Trust Roche
Infinity Foundation Rod Milner Motors
John Ilott Charitable Trust Sanofi
Lion Foundation Seqirus
Lottery Grants Board Sir John Logan Campbell Residuary Estate
Lou and Iris Fisher Charitable Trust Southern Trust
Louisa and Patrick Emmett Murphy Foundation The Strathlachlan Fund
Lynch Phibbs & Associates The Trusts Community Foundation
Maurice Paykel Charitable Trust
Special thanks also to our wonderful volunteers
who give us their time, expertise and support.
remember us with a gift in your will.
Most gifts are made by ordinary hardworking people
who would like to give lasting support to causes that
are important in their lives. A gift to MS Auckland in
your Will can be as much or as little as you want.
Help
If you would like further information on writing a Will our work
or leaving a gift to Multiple Sclerosis Auckland, or for
a confidential no-obligation chat about how your gift live on….
can make a difference, please contact Mark or Ingrid
on (09) 845 5921, or by e-mail to mark@msakl.org.nz or
Ingrid@msakl.org.nz.
For more information visit www.msakl.org.nz
September 2017 | 23TECFIDERA
®
Get started with (dimethyl fumarate)
1,2
An oral treatment for relapsing multiple sclerosis 1
PHARMAC
FUNDED FROM
FEB 2016 2
Talk to your neurologist to see
if TECFIDERA is suitable for you
TECFIDERA® (dimethyl fumarate) is a Prescription Medicine containing 120 mg or 240 mg dimethyl fumarate in a modified release capsule for oral use. Approved Use: TECFIDERA is used for the treatment of patients
with relapsing remitting multiple sclerosis (MS) to reduce the frequency of relapse and delay the progression of disability. Do not take TECFIDERA if you have any allergy to dimethyl fumarate or any ingredients listed in
the Consumer Medicine Information. Like all medicines, TECFIDERA has risks and benefits. Ask your doctor if TECFIDERA is right for you. Use strictly as directed. If your symptoms continue or you have side effects, see
your doctor, MS nurse or other health professional. Side Effects: Very common side effects include: flushing, diarrhea, nausea, stomach pain or cramps. Common side effects include: gastroenteritis, low white blood cell
counts (lymphopenia, leucopaenia), burning sensation, hot flush, vomiting, indigestion (dyspepsia), gastritis, gastrointestinal disorder, itchy skin (pruritis), rash, pink or red skin (erythema), feeling hot, protein (albumin)
present in urine, increased liver enzymes (aspartate aminotransferase and alanine aminotransferase) and white blood cell count decreased. Serious side effects include: signs of an infection. Serious side effects are rare.
Further Information: For further information see the TECFIDERA Consumer Medicine Information (CMI) available at www.medsafe.govt.nz or by calling 0800 852 289. Biogen NZ Ltd, 54 Carbine Road, Mt Wellington, Auckland.
References: 1. TECFIDERA Data Sheet (18 Nov 2015). 2. PHARMAC website – Proposals regarding multiple sclerosis treatments (16 October 2015). Available at: https://www.pharmac.govt.nz/
news/consultation-2015- 10-16-ms-treatments Accessed February 2017.
TECFIDERA is a funded medicine – a pharmacy charge and Special Authority criteria will apply. Normal doctors’ charges will apply.
Revision Date: February 2017. TECFIDERA® and BIOGEN® are registered trademarks of Biogen MA Inc.
TF-NZ-0027. TAPS PP9258. Date of preparation: February 2017. BIOG0364/EMBCYou can also read
