Endometriosis Obstetrics & Gynaecology Women and Children's Group - This leaflet has been designed to give you important information about your ...
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Endometriosis Obstetrics & Gynaecology Women and Children’s Group This leaflet has been designed to give you important information about your condition / procedure, and to answer some common queries that you may have.
What is endometriosis? and 20% of women with fertility problems will have endometriosis. Furthermore if your Endometriosis is the presence of tissue sister or mother has endometriosis then your similar to the womb lining, occurring outside risk of endometriosis increases. the womb (uterus). This endometrial- like tissue can implant in many places in the What are the symptoms of pelvis including the ovaries, bladder and bowel, on the ligaments attached to the back endometriosis? of the uterus and the space between the Endometriosis may present with a number of vagina and bowel. Endometriosis may also different symptoms though some women develop outside the pelvis in abdominal may not have any symptoms at all. The surgical scars, the lungs and kidneys, in fact following symptoms may be caused by in almost any other organ in the body. endometriosis – painful periods (dysmenorrhea), painful intercourse How does endometriosis start? (dyspareunia), chronic pelvic pain and ovulation pain. There are many theories that may explain how endometriosis starts. One of the Pain may also be felt on opening the bowels explanations supports the idea of backward (dyschezia) or on passing urine and on menstruation. This suggests that at occasions blood may be passed from these menstruation, some menstrual blood flows organs at menstruation. Some women may backwards through the fallopian tubes onto only experience non-specific symptoms such pelvic organs. The blood contains some as bloating, nausea and vomiting. viable endometrial cells which then seed and Endometriosis may significantly adversely grow into endometriosis implants within the affect the outcome of fertility depending on pelvis. its severity. In another theory, endometrial cells at menstruation may enter blood vessels in the How does it produce symptoms? uterus and be carried to distant sites outside Endometriotic cells that have implanted and the pelvis. In some women cells of one type grow outside the uterus respond to of tissue may spontaneously change into hormones that are produced during a endometrial cells. We do not know why woman’s normal menstrual cycle. Just as endometrial deposits continue to grow in the endometrial tissue inside the uterus some women but not in others but this may bleeds monthly, so do the ectopic be because of an altered immune response endometrial deposits outside the uterus in women who later develop endometriosis. (womb). Some women may have a genetic The endometriotic deposits bleed, irritating predisposition for endometriosis. the surrounding tissue and then heals over by scarring. The scar tissue may form into a What is the risk of getting tender nodule or, if the endometrial tissue is endometriosis? in the bowel or bladder, it may cause Endometriosis is a common condition and bleeding when passing urine or stools at the occurs in about 5-10% of the female time of a period. Adhesions, (scar tissue) population. 1 in 6 women with pelvic pain formed as a result of endometriosis, may
cause fixation of the normal movement of Medical Therapy some organs such as the bowel and this will usually result in pain. Drug treatment may include analgesia (pain relief tablets) or hormone therapy. Analgesia How is the diagnosis made? that helps to control pain in endometriosis may include paracetamol codeine phosphate Internal (vaginal) examination revealing a and drugs that will suppress the pain of fixed uterus, tender support ligaments of the painful periods like ibuprofen (Nurofen), uterus or enlarged painful ovaries suggest mefanamic acid, or diclofenac (Voltarol). endometriosis. Visible endometriotic nodules This is useful in patients who are desirous of can also sometimes be seen in the vagina or pregnancy or prior to surgery. The mainstay on the cervix (the neck of the uterus). of treatment is surgery but medical therapy Ovaries that are enlarged by endometriotic may be the choice if there is delay in surgery deposits (called endometriomas) can usually especially in the early stages of the disease. be diagnosed by ultrasound or other imaging Medication should be taken as per the techniques. However visual inspection of the manufacturer’s instructions. pelvis by a laparoscopy, (an operation at Hormonal medication prevents cyclical which a telescope is inserted into the tummy bleeding and can make endometriosis tissue when you are asleep), is the best way to become inactive and this may help to make a diagnosis of endometriosis. improve symptoms. Hormones may be administered in the form of progesterone What does endometriosis look like? tablets or the oral contraceptive pill. Either of At laparoscopy endometriosis may appear as these is usually taken for 6-9 months without dark brown or black powder burn patches on a break. This may mean that you do not the peritoneum (the lining of the inside of the have a monthly bleed - this is not abnormal abdomen or tummy). Other endometriotic and may in fact help to reduce new lesions may comprise bluish black nodules or endometriotic tissue growth by reducing red implants. backward menstruation. Endometriotic cysts swell the ovaries and Hormonal treatment for endometriosis can may contain thick dark tar like fluid also be delivered by the Mirena intrauterine surrounded by scar tissue. Biopsy of any of coil and there is good evidence that these lesions may help in establishing the symptoms from pelvic endometriosis are diagnosis of endometriosis but may not improved. necessarily be conclusive. Another type of hormone prevents oestrogen production from the ovaries, thereby stopping How is endometriosis treated? stimulation of endometriotic tissue. These Endometriosis may be treated by medication drugs are called Gonadotrophin–Releasing or surgery. The aims of treatment are to try Hormone Analogues (GnRHa). GnRHa is an to suppress endometriosis associated pain, injection administered on a monthly basis for improve quality of life, or to help you try and 6 months. Longer use may result in thinning get pregnant, when appropriate. of the bones though this can be prevented by the additional administration of hormone replacement therapy (HRT).
This may extend overall treatment with outlined in the leaflet on laparoscopic GnRHa to 9 months or longer. HRT may surgery. also help to make some of the side effects of In the very severe type of endometriosis GnRHa treatment which are similar to the affecting the ovary, removal may be menopause less intrusive. These include hot inevitable though the ovary can be flushes, night sweats, mood swings and conservered especially in the reproductive headaches. Though up to 7 in 10 patients age group. Nevertheless some women who will have improvement of their endometriois - have completed their families and have associated pain the benefits may be short severe endometriosis are best treated by a lived. hysterectomy and removal of both ovaries. Medical treatment suppresses endometriosis Hysterectomy is usually combined with symptoms but annual recurrence rates are 5- excision of all endometrial implants to 10% with recurrence rates of up to 75% after improve the benefits of the surgery. 5 years. Medical treatment is most effective in early stage disease, 2-3 months prior to Endometriosis can be quite a difficult surgery for advanced disease and after the condition to treat. Even though medical or operation to treat remaining invisible surgical treatment may initially cure your endometrial deposits. Medical treatment has symptoms, it is not unusual for similar not been shown to be effective in the presenting symptoms to return after a while. treatment of endometriosis associated If this happens to you, you will probably need infertility. further treatment and should make an appointment to see your General Practitioner Surgical Therapy for another referral to your Gynaecologist. The aim of surgery is to remove or destroy Treatment of Ovarian as much or all of the visible / palpable endometriosis to improve pain or help Endometriosis fertility. Surgery offers more long term and When endometriosis affects the ovaries it effective treatment for endometriosis without may present as deposits on the surface or by the unpleasant side effect of medical ovarian cysts called endometriomas. therapy. Conservative (uterine and ovarian Implants on the surface of the ovary can be sparing) surgery for endometriosis is ideally burnt or cut off with diathermy or laser. performed by the Laparoscope – Endometriomas can be treated by aspiration laparoscopic (keyhole) surgery. drainage of the cyst alone, or by aspiration Endometriotic deposits and scar tissue can and diathermy or stripping / excision of the be cut out or diathermised with cautery (heat) cyst wall. Studies show that recurrence rates or laser, whilst endometriotic cysts of the are highest with just aspiration alone (about ovaries can be drained and treated. Surgery 80%). Furthermore pregnancy rates in may also help women who have infertility by infertile women are highest with excision. releasing scarring around the fallopian tubes Laparoscopic surgery is the ideal way of or the ovaries. The procedure, risks and treating ovarian endometriosis. recovery from laparoscopic surgery are as
Occasionally your doctor may advise that the and planning the NHS, training and whole ovary needs to be removed if it is very educating staff, research etc.). badly affected by endometriosis or that a Everyone working for the NHS has a legal hysterectomy and removal of both ovaries is duty to keep information about you the best option for managing your confidential. Information will only ever be endometriosis. shared with people who have a genuine need for it (e.g. your GP or other Conclusion professionals from whom you have been Endometriosis affects many women and receiving care) or if the law requires it, for usually presents with pain or reduction in example, to notify a birth. fertility. It may significantly affect quality of Please be assured however that anyone who life but the symptoms can be treated by receives information from us is also under a either medication or surgery. Your doctor will legal duty to keep it confidential. discuss the best management option with you depending on your individual Zero Tolerance - Violent, circumstances. Threatening and Abusive Behaviour Concerns and Queries The Trust and its staff are committed to providing high quality care to patients within If you have any concerns / queries about any the department. However, we wish to advise of the services offered by the Trust, in the all patients / visitors that the following first instance, please speak to the person inappropriate behaviour will not be tolerated: providing your care. For Diana, Princess of Wales Hospital Swearing Alternatively you can contact the Patient Threatening / abusive behaviour Advice and Liaison Service (PALS) on Verbal / physical abuse (01472) 875403 or at the PALS office which is situated near the main entrance. The Trust reserves the right to withdraw from treating patients whom are threatening / For Scunthorpe General Hospital abusive / violent and ensuring the removal of Alternatively you can contact the Patient those persons from the premises. Advice and Liaison Service (PALS) on All acts of criminal violence and aggression (01724) 290132 or at the PALS office which will be notified to the Police immediately. situated on C Floor. Alternatively you can email: Risk Management Strategy nlg-tr.PALS@nhs.net The Trust welcomes comments and suggestions from patients and visitors that Confidentiality could help to reduce risk. Information on NHS patients is collected in a Perhaps you have experienced something variety of ways and for a variety of reasons whilst in hospital, whilst attending as an (e.g. providing care and treatment, managing outpatient or as a visitor and you felt at risk.
Please tell a member of staff on the ward or © NLGFT 2013 in the department you are attending / visiting. Moving & Handling The Trust operates a Minimal Lifting Policy, which in essence means patients are only ever lifted by nursing staff in an emergency situation. Patients are always encouraged to help themselves as much as possible when mobilising, and if unable to do so, equipment may be used to assist in their safe transfer. If you have any questions regarding moving and handling of patients within the Trust, you may speak to any member of the nursing staff, the designated keyworker within the department or the Trust Moving & Handling Coordinator. Northern Lincolnshire and Goole NHS Foundation Trust Diana Princess of Wales Hospital Scartho Road Grimsby 01472 874111 Scunthorpe General Hospital Cliff Gardens Scunthorpe 01724 282282 Goole & District Hospital Woodland Avenue Goole 01405 720720 www.nlg.nhs.uk Date of issue: December, 2013 Review Period: December, 2016 Author: Advanced Nurse Practitioner / Nurse Colposcopist IFP-781
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