CONNECTIONS - Conquering CHD

JANUARY 2021                                                 VOL.6

       CONNECTIONS
        INTERNAL NEWS & UPDATES FOR STATE CHAPTER LEADERS

IN THIS ISSUE

TWITTER CAMPAIGN           Twitter Campaign
                           During January, Conquering CHD National will host a
ACHD SURVEY & LIFESPAN
                           Twitter campaign directed to ACHD clinicians and
GOALS                      centers. Our goals are to:

ACKNOWLEDGING DONORS       1) Increase Conquering CHD’s visibility in the ACHD
                           clinical community; 2) Educate ACHD clinicians on
REMINDERS, UPDATES &       our educational resources for providers, patients, and
COMING SOON                families; and 3) Educate ACHD clinicians on our
                           support groups and activities for teen and adult

SPONSORSHIP                patients.

OPPORTUNITY
                           You can help by sharing content from your Twitter
                           accounts and tagging your local ACHD clinicians and
NATIONAL STAFF &           centers. For questions, please contact ACHD Director
VOLUNTEER SPOTLIGHT        Jennifer Weiner, jweiner@conqueringchd.org.

JANUARY 2021                                                              VOL.6

 ACHD Survey
 The National ACHD team is working on developing prenatal resources for ACHD patients.
 In order to gather feedback from the community, we have created a survey regarding
 existing resources and what this specific population still needs. Please help us distribute
 this survey by sharing it through your social media and support networks.

 Covering a Lifespan
 January 2021 marks the goal date to integrate ACHD leaders into all Chapters. In the last
 few months we have added several new ACHD Coordinators to State Chapter Boards. If
 your chapter is still in search of the right candidate, please reach out to ACHD Director
 Jennifer Weiner, jweiner@conqueringchd.org.

Sponsorship Opportunity
Late last year, Conquering CHD - Ohio generously
sponsored the translation of National's educational
resources into Spanish. As your State Chapters continue to
grow and branch into new communities, more languages
may be necessary,

The Translation Sponsorship Program is under development
and will allow State Chapters to cover the costs of
translating resources into language needed within their
communities. Stay tuned to the February newsletter for full
details!

JANUARY 2021                                                               VOL.6

Reminders
  1. National will begin launching our new mission - the WHY - this month.
    Share content on your State Chapter social media channels! Curated
    content on the new mission will also be shared in the closed Facebook
    group for State Chapters only.
  2. The Library has been updated to reflect the new mission - please make
    sure you are using the most current version of all documents.
  3. Quarterly Reports are due January 15th and dues by January 31st.

Updates
     New on The Library this month: Scavenger Hunt for New Board
     Members, Proclamation How To and Why (Thanks to CCHD Ohio)
     Effective January 1st, all quarterly reports should be sent to:
     reports@conqueringchd.org.
     Effective January 1st, all State Chapter dues should be payable
     to Conquering CHD (not PCHA) and mailed to:

                           Conquering CHD c/o Grobe & Associates
                                 37 Kessel Court, Suite 205
                                      Madison, WI 53711
Coming Soon
Educational resources in Spanish are in the final stages of translation. We
expect to have completed digital documents in early January. HOORAY! A
launch campaign is planned and curated content will also be shared in the
State Chapter Facebook group and the Spanish-speaking Facebook group.

CHD Wise: COVID-19 Vaccine Town Hall Wednesday, January 20, 2021
6 PT / 7 MT / 8 CT / 9 ET

Are you ready for HEART MONTH?! We are excited to see your plans and
proclamations being finalized. Stay tuned for National's campaign theme,
timeline, and graphics.

Acknowledging Donors
We all know that fundraising is tough especially during these times of COVID.
What is your chapters process for acknowledging and thanking your current donors?
This includes both monetary and in-kind donations. As we work on an updated document
for you, please add this to your next board call topics!

JANUARY 2021                                                          VOL.6

                        National Staff Spotlight
                  Jennifer Kasnic, Outreach Director

Enneagram number: Complete and total 1
Favorite color: Depends on my mood, but usually green
Little known fact: In the 90's I was recruited by the FBI to be an agent. I got through
the third round of training and testing, but met my now husband and changed my mind.
Favorite movie: It's a Wonderful Life and Horrible Bosses
Quote to live by: "A woman is like a tea bag. You can't tell how strong she is until you
put her in hot water." - Eleanor Roosevelt
What I'm reading: I LOVE to read- currently on my nightstand: A Homemade Life, The
Sacred Enneagram, Looking for Lovely, and Death by Meeting.
Tattoos: Yes, 1
Guilty pleasure: Pretty much any cooking show, The Graham Norton Show
Introvert or Extrovert: Introvert
Who would you want to play you in a movie about your life? Reese Witherspoon
Most daring thing you've ever done: Indoor skydiving
Co-worker memory: My first work trip was to Miami where Melanie and I bonded - life
will never be the same again! Oh, not to mention the Cuban cafecitos and pastelitos de
guayaba!
Dream vacation: Switzerland/Austria (think chocolate, fondue, and hikes in the Alps)
Loves: blue skies, tree tunnels, tacos, coffee
Pet Peeves: clutter, crazy drivers, bad grammar
Family: David (bearded Harley rider), Piper (17, brilliant heart kid), Eli (14, hockey player)
Location: Firestone, Colorado

JANUARY 2021                                                               VOL.6

                    National Volunteer Spotlight
              Tabitha Donner - Ohio Chapter President

On behalf of Conquering CHD, we'd like to give out sincerest thanks Tabitha Donner for
serving her two terms as the Conquering CHD - Ohio President and the many successes that
have come from the chapter during her leadership.

During her two terms serving as Chapter President, Tabitha has completed over 2500
volunteer hours and 600 visits with CHD patients and families. She has chaired the Greater
Cincinnati area's Conquer The Runway and Conquering CHD Walk events, and hosted
numerous family meals and kit packing parties over the years. For the past seven years, she
has served on the Patient-Family Advisory Council for the Cincinnati Children's Heart Institute
at Cincinnati Children's Hospital Medical Center and was a member of the first parent-led
RCIC project in Cincinnati. On a national level, she used her voice on Capitol Hill at many
Advocacy Conferences and has mentored many other state chapters.

"Tabitha helped me to find the leader role in myself before I even knew I was built for it. She's
given me so much to look up to and guided me in many ways to help the Kentucky chapter to
succeed. I can only hope to achieve even half of what she's done for Kentucky families."
Conquering CHD - Kentucky President Tabitha Rainey

We thank Tabitha for her passion, dedication and leadership during her two terms.