Challenges and Opportunities for Diabetes Prevention - Listening to Public Health Professionals and Partners in Minnesota
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Challenges and Opportunities for Diabetes Prevention Listening to Public Health Professionals and Partners in Minnesota Facilitated by the Minnesota Department of Health and the Minnesota Diabetes Program
Challenges and Opportunities for Diabetes Prevention Challenges and Opportunities for Diabetes Prevention: Listening to Public Health Professionals and Partners in Minnesota Financial support was provided through a Cooperative Agreement (U32/CCU500347) with the Centers for Disease Control and Prevention (CDC) This report was developed by the Minnesota Diabetes Program (MDP) at the Minnesota Department of Health For more information, contact: Minnesota Diabetes Program Minnesota Department of Health PO Box 64882 85 East 7th Place, Suite 400 St. Paul, MN 55164-0882 651-201-5435 Website: http://www.health.state.mn.us/diabetes Suggested Citation: Minnesota Diabetes Program (2006). Challenges and Opportunities for Diabetes Prevention: Listening to Public Health Professionals and Partners in Minnesota. St. Paul, Minnesota: Minnesota Department of Health. Facilitated by the Minnesota Department of Health and the Minnesota Diabetes Program
Listening to Public Health Professionals and Partners in Minnesota Executive Summary One in 5 Minnesotans is at high risk of developing diabetes. One in three infants born in the U.S. during the year 2000 will develop diabetes during their lifetime. But diabetes can be delayed or prevented. In September 2004, the Minnesota Diabetes Program (MDP) completed the Minnesota Diabetes Prevention Planning Project (MN-DPPP). The MN-DPPP offered a timely opportunity to strengthen the diabetes prevention theme in the Minnesota Diabetes Plan 2010 (the Plan), launched in October 2003. More than 50 diabetes prevention stakeholders contributed their expertise to the MN-DPPP, while over 350 diabetes stakeholders from across the state participated in developing the Plan recommendations. This report summarizes the results of the MN-DPPP for Minnesota stakeholders and brings those results together with the prevention-related recommendations from the Plan, to provide a vision and a call to action for diabetes prevention in Minnesota that is grounded in the expertise of a broad spectrum of diabetes stakeholders (Table 1). This document also summarizes the MN-DPPP’s impact since completion, along with recent developments and opportunities for diabetes prevention in Minnesota. MN-DPPP participants cited roles in diabetes prevention for government, private industry, health care systems, health care providers and communities. Roles were diverse and overlapping, suggesting the importance of partnerships. The most important resources needed were: leadership, funding, staff, data and expertise. Policy changes were recommended in four areas: health care, schools, worksites, and the built environment. The MN-DPPP identified important tensions among four key issues: 1) the boundaries of scientific evidence for diabetes prevention; 2) enthusiasm or “pent-up demand” among our partners; 3) the realities of collaborative practice; and 4) scarce resources for prevention. The biggest challenge remains determining an appropriate scope for diabetes prevention efforts. Research has demonstrated that diabetes can be prevented or delayed among those who are glucose intolerant, overweight or obese, and 25 years or older. But a tension exists between this evidence and the pragmatic realities of engaging diverse partners, especially communities, who prefer a broader target audience. Efforts seeking to maximize broad organizational participation need to balance these different perspectives. Collaboration for prevention was cited as an important potential benefit of diabetes prevention. MN- DPPP participants expressed great enthusiasm for “moving upstream” and shared optimism that collaboration to address risk factors will create synergy and leverage resources. However, many pointed out that in practice, collaboration itself requires resources, especially time, and that both strategies and resources are needed for motivating potential partners to come to the table. Securing adequate and stable resources will be critical to diabetes prevention efforts.
Challenges and Opportunities for Diabetes Prevention Since this project was completed in 2004, a number of actions are underway, influenced to various degrees by the MN-DPPP. MDH has hired a chronic disease epidemiologist, begun a workplace wellness initiative and used the MN-DPPP results to argue for continued chronic disease prevention funding. In addition, new funding has come through two CDC grants: Steps to a Healthier U.S. and the Diabetes Primary Prevention Initiative (DPPI). Several new diabetes prevention measures have been piloted in Minnesota’s Behavioral Risk Factor Surveillance Survey (BRFSS). The Minnesota Diabetes Steering Committee has formed a work group to address diabetes prevention, which will incorporate MN-DPPP recommendations into their work. Participants strongly emphasized that any new diabetes prevention work should build on existing efforts, and there are several opportunities for such collaboration in Minnesota, including: Steps to a Healthier U.S.; Indian Health Service prevention grants and prediabetes guidelines; the Blue Cross Blue Shield dou campaign to promote everyday physical activity; the American Diabetes Association’s work with members of the Minnesota business community; the Fit City and Fit School award programs; federally mandated school wellness policies; the Minnesota Child Obesity Task Force; the newly released Eagle Books, which aim to prevent diabetes in American Indian youth; worksite wellness strategies being piloted at the Minnesota Department of Health, and local public health priorities for addressing obesity, nutrition and physical activity. We urge individuals, communities and organizations to take an active role in preventing the future burden of diabetes and we look forward to engaging partners in taking action on diabetes prevention in Minnesota. Table 1. Diabetes Prevention Goals, Recommendations and Potential Projects Goal: Encourage Healthy Lifestyle Behaviors for Youth Recommendations • Work with state and local school officials to improve school policies and curricula-related issues impacting students’ health, particularly those affecting physical education, nutrition education and food services • Encourage communities to develop and implement community-based recreation programs for youth, which provide opportunities for physical activity and healthy eating Potential Projects • Promote awareness of the Action for Healthy Kids (AFHK) guidelines for healthy school food environments • Survey schools on policies and curricula that affect students’ eating and physical activity Goal: Create Healthier Environments Recommendations • Work with state and local community partners to identify and implement changes in the built environment and community policies that will facilitate healthy lifestyle behaviors • Develop relationships with industries that impact diabetes risk, such as fast food and soda producers and vending machine operators, and influence them to improve their products • Work with employers and business partners to improve worksite health promotion policies, such as providing showers at workplaces and time off for physical activity • Promote or provide access and address barriers to physical activities Potential Projects • Improve signage for shared walking and biking paths in communities • Work with employers to improve work place environments to support healthy lifestyle choices • Design physical activity promotions that build on new immigrants’ traditional activities to help increase their activity levels Facilitated by the Minnesota Department of Health and the Minnesota Diabetes Program
Listening to Public Health Professionals and Partners in Minnesota Table 1. Diabetes Prevention Goals, Recommendations and Potential Projects Goal: Maximize and Effectively Use Diabetes Resources Recommendations • Identify and provide incentives to collaborate and share resources for diabetes prevention • Secure adequate and stable resources for diabetes prevention • Provide prevention funding to local communities Potential Projects • Cultivate relationships with the private sector and make an effective business case for investments in prevention • Work with advocacy organizations to lobby state and federal legislators to increase funding for diabetes prevention • Make collaboration part of position descriptions and annual reviews at the Minnesota Department of Health Goal: Create Political Capital for Diabetes Prevention Recommendations • Build support for diabetes legislative action, including prevention resources • Advocate for health insurance benefit structures that reward healthy behaviors • Make a persuasive cost/benefit case for putting resources toward prevention Potential Projects • Convene a forum on diabetes prevention with Minnesota employers, purchasers, insurers, providers and policymakers • Create a bipartisan chronic disease prevention advocacy group (legislative caucus) Goal: Raise Public Awareness about Diabetes Care and Prevention Recommendations • Implement public awareness campaigns to promote healthy lifestyle behaviors, with these characteristics: o simple, consistent messages o cutting edge communications and marketing strategies o tailored to specific audiences o sustained over time Potential Projects • Conduct diabetes prevention awareness campaigns focused on: o high-risk groups o policy makers o business sector, and o the general public Goal: Foster Community-Based Collaboration and Communication Recommendations • Convene forums, coordinate communication and strategies, align and focus goals, leverage resources and foster collaboration among programs, organizations and communities motivated to address diabetes prevention and chronic disease risk factors • Support community-based programs to prevent diabetes and reduce chronic disease risk factors in Minnesota utilizing effective strategies Potential Projects • Develop a chronic disease fact sheet • Publish a quarterly bulletin focused on chronic disease prevention • Convene an annual conference focused on chronic disease prevention • Develop a document describing intersections among statewide chronic disease plans Goal: Integrate Diabetes Prevention into Health Systems Recommendations • Promote collaboration between community groups, health systems, and other stakeholders to prevent diabetes and improve outcomes • Create and build consensus for guidelines, standards, protocols and best practices for improving risk behaviors and risk factors as well as prediabetes care • Identify, flag, notify and refer those with high glucose levels and ensure adequate follow-up • Implement programs to change behaviors and attitudes about diabetes prevention and management and empower people to stay healthy, self-assess and ask for screening Potential Projects • Develop and validate practical models for prediabetes screening and treatment • Translate the Diabetes Prevention Program lifestyle intervention from the context of a controlled research into real-world settings • Ensure follow-up for women with pregnancies complicated by gestational diabetes
Challenges and Opportunities for Diabetes Prevention Introduction Diabetes and obesity represent linked epidemics.1 Driven largely by increases in obesity, diabetes prevalence in the U.S. is expected to grow by 165% in the next 50 years.2 One in three U.S. infants born in the year 2000 will develop diabetes during their lifetime.3 Diagnosed diabetes in Minnesota has increased nearly 50% in the last 10 years, from 3.8% in 1994 to 5.5% in 2003. One in 5 Minnesotans is at high risk of developing diabetes. Diabetes multiplies the risk of heart disease two to four-fold and is the leading cause of blindness, kidney failure, and lower-limb amputations in Minnesota. Diabetes is the sixth leading cause of death and its direct and indirect costs to the state total an estimated $2.3 billion annually. And yet there is promising news: Diabetes can be delayed or prevented. Research has consistently shown that physical activity reduces diabetes risk.4 Three independent, randomized, controlled trials conducted in three different countries, China, Finland and the U.S., have shown that changes in lifestyle can reduce diabetes risk.5-7 In the U.S., the Diabetes Prevention Program (DPP), showed that diet, exercise and losing a little weight (about 10%) can reduce the risk of type 2 diabetes by 58% among those at high risk.5 In the DPP, participants of all ages and ethnic groups were able to prevent or delay type 2 diabetes with modest lifestyle changes. The DPP also found that metformin reduced the incidence of diabetes by 31%.5 Along with metformin, troglitazone, rosiglitazone, acarbose and orlistat have been shown to decrease the risk of progression to diabetes.8, 9 However, pharmacological approaches may be less cost-effective, less likely to have sustained benefits, more likely to induce serious side effects, and most useful for more targeted segments of the population, such as those free of heart disease.10 The challenge is to translate the evidence from controlled trials into realistic clinical and population health practices. Background In September 2003, the Minnesota Diabetes Program (MDP), along with five other states: Kansas, Massachusetts, Michigan, North Carolina and Virginia, received funding to plan for diabetes prevention. The MDP had recently launched the Minnesota Diabetes Plan 2010 (the Plan), our second statewide strategic plan for diabetes. More than 350 diabetes stakeholders participated from across the state, and more than two years (2001 – 2003) were invested in gathering their input and developing the Plan’s goals and recommendations. But much of this work preceded publication of the DPP results. Given this timing, the Minnesota Diabetes Prevention Planning Project (MN-DPPP) offered a timely opportunity to strengthen the diabetes prevention focus in the Plan. However, we anticipated that enthusiasm for additional planning efforts would be at low ebb among our partners, so we designed the MN-DPPP to be focused on producing realistic, actionable projects to address diabetes prevention in Minnesota. Facilitated by the Minnesota Department of Health and the Minnesota Diabetes Program
Listening to Public Health Professionals and Partners in Minnesota Our goal for the MN-DPPP was to learn from our partners. Our primary research questions were: • What should be the scope of diabetes prevention efforts? • Who should be involved in diabetes prevention and what are their roles? • What resources are needed to implement diabetes prevention activities? • What policies are needed to prevent diabetes? • What are the barriers and how can they be overcome? • How should we begin? This report summarizes these results and the project’s impact since completion, along with recent developments and opportunities for moving forward with diabetes prevention in Minnesota. Methods We conducted 14 interviews, held 6 focus groups and convened 3 working meetings with a total of 56 MDH staff, MDH managers and non-MDH partners (Table 1). We held interviews at participants’ place of work; all other meetings took place at St. Paul MDH locations. Table 1. Participation State Department of Health Non-MDH Partners Staff Managers Total Interviews 5 4 5 14 Focus Groups A 4 4 8 16 B 11 4 11 26 Total 20 12 24 56 We recruited participants for their knowledge, experience, organizational capacity and interest in diabetes prevention. MDH programs represented a balance between management and staff and the spectrum of chronic disease and prevention programs. Among non-MDH participants, both urban and rural areas of the state and Minnesota’s diverse racial and ethnic communities were represented. Appendix 1 lists participating organizations. Appendix 2 provides further details on data collection and analysis. A particularly important research question was the appropriate scope for a diabetes prevention program. Thus, we asked participants to consider the following scenarios: 1) Prevention programs targeting people with pre-diabetes (impaired fasting glucose or impaired glucose tolerance)11; and 2) Programs targeting persons with one or more risk factor for diabetes, including age, overweight, race or ethnicity, family history of diabetes, history of gestational diabetes, etc.12
Challenges and Opportunities for Diabetes Prevention Results Prominent themes in the interview and focus group results are summarized below, including those where MDH staff, MDH managers and external partners had different views. What should be the scope of diabetes prevention efforts? Participants, particularly MDH staff and managers, emphasized the Table 2. Scope need to clearly define the scope of diabetes prevention but differed • Participants differed on appropriate widely on the appropriate target audience for diabetes prevention target audience: (Table 2). MDH Managers and some non-MDH partners felt that, o High risk given limited resources, efforts must target high-risk populations. o Children However, many MDH staff and non-MDH partners tended to think of o Everyone • Few clear differences between diabetes prevention more broadly, to include the entire population— prevention strategies for prediabetes particularly primary prevention of obesity in children. vs. the general population Table 3. Key Partners and Roles In general, participants identified similar Government strategies for diabetes prevention among those • Promote reimbursement for prevention with prediabetes and those with one or more • Build public health infrastructure • Promote physical activity risk factor. Even when we asked specifically • Connect people with resources about differences between these two target • Develop & support consistent diabetes prevention messages audiences, participants felt either that • Promote guidelines strategies would be similar, or that strategies • Convene stakeholders & build partnerships • Translate research for prediabetes might be more clinically • Seek funding focused. Private Industry Who are the key partners who should be • Fund public awareness campaigns • Influence benefit structures involved in diabetes prevention; what are • Reach people where they are their roles? Participants outlined roles for a broad spectrum of partners (Table 3), Health Care including specific roles for government, private • Advocate for reimbursement for prevention • Create guidelines industry, health care, and communities. Roles • Empower people to be healthy, self-assess and ask for were diverse and overlapping, suggesting the screening importance of partnerships. • Develop systems that support screening and referral • Ensure support for newly diagnosed Government was seen as a primary source Communities of prevention resources, but participants • Reach people where they are mentioned private industry as an additional • Make prevention relevant source of funds, especially for public awareness • Ensure consistent diabetes prevention messages • Promote physical activity campaigns. Other roles for private industry • Connect people with self-care and health care resources included influencing benefit structures • Empower people to be healthy, self-assess and ask for toward prevention, and providing avenues to screening reach people where they are, for example, at • Ensure support for newly diagnosed worksites or retail outlets. Facilitated by the Minnesota Department of Health and the Minnesota Diabetes Program
Listening to Public Health Professionals and Partners in Minnesota Roles for government, including the federal, state and local levels, were focused on providing infrastructure and funding. Specific roles identified for MDP and MDH (hereafter “the state”) focused on leadership and coordination. Participants felt the state should play the role of convener by coordinating partners and organizing communities. Non-MDH partners particularly valued the state’s capacity to organize forums and conferences. A key role for the state was to keep current on relevant research, translate research into practice and provide successful models for community partners. Participants also emphasized the importance of seeking input from diverse partners when designing a diabetes prevention program, especially keeping health professionals “in the loop”. Key partners for diabetes prevention within the MDH included heart disease and other chronic disease programs; epidemiologists and analysts; health education, community health and health economics programs; the MDH communications office; MDH library; MDH management and the Executive Office. Participants emphasized working with a broad spectrum of internal partners to communicate, collaborate and share resources. MDH staff and non-MDH partners brought slightly different yet complimentary perspectives to the discussion of the state’s role in diabetes prevention. MDH staff and managers emphasized the importance of obtaining the Commissioner of Health’s support. With the support of MDH management and the Commissioner, they felt that the MDP could more effectively advocate for additional resources for diabetes prevention. Non-MDH partners valued the state’s population-based approach. They also wanted MDH to seek funding for diabetes prevention. Participants felt that health care systems and providers should advocate for investment in prevention, including reimbursement structures that promote preventive care. They should create and promote diabetes prevention guidelines, standards and protocols. They should design systems of care that empower people to be healthy, self-assess their diabetes risk factors and ask for screening. In addition, health care systems should develop protocols to identify, flag, notify and refer those with high glucose levels. After screening, they should assure follow-up that connects people with the resources they need to prevent or manage diabetes. Most importantly, they should provide support for behavior change among those newly screened or diagnosed. Participants suggested involving community members to ensure that diabetes prevention efforts are relevant, effective and appropriately focused for real people. Communities should work to ensure consistent prevention messages for the general public and for high-risk groups and seek funding to sustain the messages. Communities have a role in providing access to physical activities and can also connect people with the health care system and self-care resources. Communities can empower people to self-assess their diabetes risk factors and ask their health providers for screening. Participants felt that support for behavior change among those newly screened or diagnosed could also be community- based.
Challenges and Opportunities for Diabetes Prevention What resources are needed to implement diabetes prevention Table 4. Resources Needed and Why activities? • Leadership Participants stressed the importance of o “Start the charge” o Create and leverage political will resources, and explained how they would help o Obtain resources (Table 4). Strong leadership for prevention was o Bring people together considered the most important resource: o Resolve priority conflicts People who are influential, who could be • Funding leaders and be on your side, so to speak. o Enable community participation Some people in the legislature, who are o Conducting evaluation to show effectiveness behind your cause or people at state agency o Sustain programs levels, who really believe that what you’re o Enable marketing o Conduct needs assessment doing should be done and want to make it a o Pay for staff priority. –MDH Manager o Influence policy o Providing local training and capacity building Leadership was seen as an important catalyst • Staff that would be needed to create and leverage o Program coordinator/evaluator – convene partners; political will and obtain resources to address the translate research problem of preventing diabetes. Leadership was o Chronic disease epidemiologist – identify leverage also needed to bring people together at the state points; bridge chronic disease programs and community levels, create linkages between • Data sectors and stakeholders and resolve priority o Identify prediabetes population conflicts. o Assess the burden o Demonstrate progress o Build business case After leadership, funding was seen as most important: • Expertise We need resources, at the state level for o Behavioral science - behavior change coordinating training, capacity building o Clinical care - “buy-in” from medical community o Economics - business case at the local level, training for schools, o Communications - effective messages implementation of effective programs, o Coordination - align expertise and resources interacting with partners and building among partners; build trust and relationships relationships, money for all those things. with diverse communities; translate successful programs; and attract resources. –MDH Manager Participants felt stable funding was needed not only to sustain and evaluate programs but also to enable broad participation and build partnerships with community organizations, which would be crucial to any diabetes prevention effort. Participants said that stable funding would also help to show effectiveness. Staff positions and staff time were important resources that participants felt were needed, including a program coordinator/evaluator and a chronic disease epidemiologist. A coordinator would convene partners and learn what other programs and organizations are doing related to prevention. This staff person could also become expert in what programs, interventions and tools are effective for diabetes 10 Facilitated by the Minnesota Department of Health and the Minnesota Diabetes Program
Listening to Public Health Professionals and Partners in Minnesota prevention, and help translate prevention research into practice for communities. A chronic disease epidemiologist would collect information and review research on the best leverage points to address diabetes prevention. This staff person would also be knowledgeable about research that could bridge between categorical chronic disease programs. Staff time in general came across as a significant issue for participants. Participants frequently mentioned coordination and pooling funds or efforts to stretch limited resources. However, they felt that “synergy” could go only so far and should not be seen as a substitute for new resources to address a significant new challenge. Many remarked that increasing demands on their time, as well as their partners’ time, had the effect of limiting collaboration. These comments often came back to the topic of funding. “You can get a long ways with enthusiasm and volunteers, but ultimately, to reach people on an individual level, what you need to do to try and get behavior changed, is influence policy, and I think you need money to do that.” –MDH Staff They stressed that asking partners—who also have loaded plates and limited resources—to volunteer their time is not always an effective option: “Bringing partners to the table from the community, we often ask them to do in-kind and voluntary, but…[given] all the things they might be involved with, if they’re not going to be compensated for their time at least to some small degree, they might be less likely to participate.” –MDH Staff “…[Our] partners…are in need of time efficiency and effective use of their time. They’re also burning out, I think, in terms of the multitude of things they’re dealing with.” –MDH Manager After staff time, participants felt that the most important resource was data, especially on surveillance, program evaluation and cost-effectiveness. Data were seen as important to: identify prediabetes population and assess the burden, “so that we know what is going on right now”; indicate what’s working and not working and show progress, especially for initial efforts; build business case by showing “a return on the health care dollar”; and “give advocates something to fight with” to increase the investment in prevention. “If you’re going to affect any policy changes, in the community and health system, you want to know that this is something that works, but is affordable, and in the long term, it’s going to be cost effective.” –Non-MDH Partner Finally, participants felt that diabetes prevention called for particular expertise, for example, in behavioral research, clinical care, economics and communications. A behavioral scientist would be able to develop theory based-programs that lead to behavior change. An expert in clinical care could help secure “buy-in” from the medical community. Someone with expertise in economics could help make the business case. A communications expert could craft effective messages for the public or partners. Additional skills that participants deemed important included the ability to align expertise and 11
Challenges and Opportunities for Diabetes Prevention resources among partners; build trust and relationships with diverse communities; spread successful programs; and attract resources. What policies are needed to prevent diabetes? Participants recommended policy changes in four areas Table 5. Policies Needed (Table 5). School policy changes received the highest • Healthy lifestyles in schools priority: o Healthy lifestyle/skills curricula “I think we’re going to need programs in the school o Mandatory physical education o Food service improvements systems related to nutrition, exercise, obesity and diabetes and those programs—if they ever existed— • Healthy built environment have been slashed with budget cuts. But that’s going o Neighborhood safety to be critical I think for this epidemic, to get that o Urban planning to promote active lifestyles funding back somehow.” –Non-MDH Partner • Access to preventive health care Secondly, participants emphasized policies that create o Coverage and reimbursement healthy built environments: o No penalties for prediabetes diagnosis “…safer housing, safer neighborhoods, green spaces for exercise…farmer’s markets….I think it’s going to • Healthy worksite policies cost communities less and you get people connected. It o Incentives and support for physical builds social capital enormously and building social activity and healthy eating capital saves money.” –MDH Staff Participants felt that changes to the built environment would have several benefits, including: increased opportunities for healthy eating and physical activity; lowering diabetes risk; building social capital; making prevention part of communities; and ultimately, saving money. Health care access and reimbursement for prevention were also frequently mentioned as an important area for policy change: “Access—even within a health plan—to dietitian services is pretty abysmal in most cases, even if you’re diagnosed. So to get access when you’re not diagnosed with anything, that’s a huge problem.” –Non-MDH Partner Finally, participants saw worksites as a venue for policy changes to prevent diabetes, and one participant felt their employer set a good example: “At [my employer] we have sick leave for fitness. People can improve sick time and they can trade in [so many] dollars a year for health club memberships, home fitness equipment.” –Non-MDH Partner 12 Facilitated by the Minnesota Department of Health and the Minnesota Diabetes Program
Listening to Public Health Professionals and Partners in Minnesota What are the barriers to implementing a diabetes prevention program and how can they be overcome? Table 6 lists the most important barriers to diabetes prevention and strategies for overcoming them. Rationales for the strategies are detailed below. For participants, making a persuasive case for prevention Table 6. Barriers and Strategies meant demonstrating program effectiveness and effectively communicating successful programs. They Barriers • Inadequate resources also felt it would be helpful to emphasize the synergistic • Thin evidence base effects of diabetes prevention efforts, such as reductions in • Unclear mandate for prevention depression, cardiovascular disease and cancer. • Complexity of prevention interventions • Competing political and economic interests “When the cost of the system as a whole becomes primary then we’ll see that sort of collective action.” Strategies for Overcoming Barriers –MDH Manager • Making a persuasive case for prevention • Creating supportive environments Making the case also included identifying policymakers • Specifying target audiences • Integrating prediabetes care into health care who can be advocates for prevention. MDH managers also • Building on existing resources and programs. felt that diabetes advocacy groups should expand their • Rapid translation of new research roles and responsibilities to include prevention. Participants felt that creating supportive environments can influence individual behavior. This strategy included persuading insurers and employers to provide incentives such as subsidized health club memberships or permission to use sick leave for exercise, and motivating individual behavior change through success stories and practical suggestions. “[Bring in] people who can say, “I lowered my blood glucose level by doing these things,” and give examples of what it took to feel motivated to do it—using, tapping into that. Motivation is a hard thing, especially when we live in a dark, cold place!” –MDH Staff Non-MDH participants, in particular, emphasized the need to clearly specify target audiences and “go to where the people are”. They also suggested working with vending machine operators and fast food and soda manufacturers—industries that impact diabetes risk behaviors: “PepsiCo changed. Their whole baked line of chips is their fastest growing product line right now. They took out the trans fatty acids and it’s just become really popular. It was a huge gamble for them, and they must have felt like it was important enough to try and obviously they had to put resources into the development of that product, and PepsiCo is a big company, so they can afford to do it.” –Non-MDH Partner I think that some of those big companies are getting a lot smarter about understanding the impact on the health care dollar and how they may play a role in it. But it’s basically looking at how could we all pool our resources and work together, because there’s not any one industry that is solely responsible for the epidemic of diabetes and…there’s not any one industry that’s solely responsible for fixing it either. We all play a role in why it’s here and we all have to play a role in dealing with it. –Non-MDH Partner 13
Challenges and Opportunities for Diabetes Prevention Integrating prediabetes care into health care was a strategy strongly put forward by non-MDH participants. “If you want [dibetes prevention] to be successful, change the health care system so that it rewards identifying people earlier and putting them into some type of a lifestyle program.” –Non-MDH Partner They emphasized being clear about what prediabetes is and how it can be addressed. They also suggested expanding the roles and responsibilities of health professionals to accommodate diabetes prevention care. “Nursing has a holistic theoretical framework. I think most of the public think nurses just take care of sick people, but we were all educated to do more than that, and we haven’t had opportunities…in most clinical settings. We just take care of sick people. But a lot of nursing schools are going back to those roots again and looking at dusting off the holistic framework and saying, “This is why we’re created.” We used to do nutrition and exercise and wellness and stress reduction and—but nobody pays for that.” –Non-MDH Partner “We tend to reserve nutrition information for dietitians only, and we need to rethink that. There’s some nutrition information that other people can provide.” –Non-MDH Partner Finally, all participants felt that an important strategy would be to build on existing resources and programs by leveraging existing knowledge and relationships. “So how can we use those programs so that we don’t reinvent the wheel, but we can make them usable for the community?” –Non-MDH Partner Some examples of this strategy were: leveraging common interests (such as reducing shared risk factors), successful wellness programs, and MDH credibility with potential partners: “Knowledge of the organizations or communities. Trust. A good reputation for MDH. Hopefully, a history where organizations outside have dealt with MDH and feel like it’s a good use of their time…[and] that they’ve gotten something out of the relationship in the past.” –MDH Manager 14 Facilitated by the Minnesota Department of Health and the Minnesota Diabetes Program
Listening to Public Health Professionals and Partners in Minnesota What objectives, indicators, benchmarks and outcomes are needed to assess progress? At working meetings, participants brainstormed and ranked objectives, indicators, benchmarks and outcomes for a potential Minnesota Diabetes Prevention Program (Table 7). Table 7. Top-Ranked Objectives, Indicators, Outcomes, and Benchmarks Objectives for a Minnesota Diabetes Prevention Program • Promote access to health care for those at risk for diabetes • Collect data on those at risk for diabetes, evaluate programs & disseminate data • Collaborate and effectively engage local communities • Increase activity and improve diet in at risk populations • Achieve cultural competency with an active role in recruitment; ensure diversity Indicators • Prevalence and incidence of diabetes and prediabetes including mortality and age of onset • Risk factor data for prediabetes (age, weight, family history, lipids, glucose) • Data that includes ethnicity/culture/race and geography • Data on physical activity levels of Minnesotans of all ages Performance Benchmarks • Coordinated approach to working with health plans and worksites • Coverage for nutrition, weight and exercise counseling • Integrated monitoring system for prediabetes and its risk factors • Decrease rate of obesity among children • Increase in number of people making lifestyle changes Outcomes • Decrease/slowdown rate of obesity/overweight in children and adults • Increase population awareness and screening risk factors, including family history • Reduce diabetes incidence in sub-populations (Latinos, African Americans, Native Americans, African immigrants, gestational diabetes) • Integrated monitoring system for chronic disease risk factors in place How should we begin to address diabetes prevention? MN-DPPP participants created eight arenas of action and 19 specific projects within those arenas. These projects reflected the major issues, themes and opportunities identified in the MN-DPPP results. While diverse in scope and content, the projects were also intended to be concrete and actionable. Some were designed to relate to or expand upon initiatives already being planned. More than 50 diabetes prevention stakeholders contributed their expertise to the MN-DPPP, while over 350 diabetes stakeholders from across the state participated in developing the Plan recommendations. These two planning initiatives produced goals, recommendations and strategies for diabetes prevention based on expertise from diabetes stakeholders across the state. The smaller, more focused MN-DPPP planning process echoed recommendations from the Plan, but brought added detail and depth to the roles, resources, policy changes and challenges for diabetes prevention. Table 8 integrates results from the MN-DPPP and the Plan, summarizing goals, recommendations and potential projects to address 15 diabetes prevention.
Challenges and Opportunities for Diabetes Prevention Table 8. Diabetes Prevention Goals, Recommendations and Potential Projects* Goal: Encourage Healthy Lifestyle Behaviors for Youth Recommendations • Work with state and local school officials to improve school policies and curricula-related issues impacting students’ health, particularly those affecting physical education, nutrition education and food services • Encourage communities to develop and implement community-based recreation programs for youth, which provide opportunities for physical activity and healthy eating Potential Projects • Promote awareness of the Action for Healthy Kids (AFHK) guidelines for healthy school food environments • Survey schools on policies and curricula that affect students’ eating and physical activity Goal: Create Healthier Environments Recommendations • Work with state and local community partners to identify and implement changes in the built environment and community policies that will facilitate healthy lifestyle behaviors • Develop relationships with industries that impact diabetes risk, such as fast food and soda producers and vending machine operators, and influence them to improve their products • Work with employers and business partners to improve worksite health promotion policies, such as providing showers at workplaces and time off for physical activity • Promote or provide access and address barriers to physical activities Potential Projects • Improve signage for shared walking and biking paths in communities • Work with employers to improve work place environments to support healthy lifestyle choices • Design physical activity promotions that build on new immigrants’ traditional activities to help increase their activity levels Goal: Maximize and Effectively Use Diabetes Resources Recommendations • Identify and provide incentives to collaborate and share resources for diabetes prevention • Secure adequate and stable resources for diabetes prevention • Provide prevention funding to local communities Potential Projects • Cultivate relationships with the private sector and make an effective business case for investments in prevention • Work with advocacy organizations to lobby state and federal legislators to increase funding for diabetes prevention • Make collaboration part of position descriptions and annuals reviews at the Minnesota Department of Health Goal: Create Political Capital for Diabetes Prevention Recommendations • Build support for diabetes legislative action, including prevention resources • Advocate for health insurance benefit structures that reward healthy behaviors • Make a persuasive cost/benefit case for putting resources toward prevention Potential Projects • Convene a forum on diabetes prevention with Minnesota employers, purchasers, insurers, providers and policymakers • Create a bipartisan chronic disease prevention advocacy group (legislative caucus) 16 Facilitated by the Minnesota Department of Health and the Minnesota Diabetes Program
Listening to Public Health Professionals and Partners in Minnesota Table 8. Diabetes Prevention Goals, Recommendations and Potential Projects* Goal: Raise Public Awareness about Diabetes Care and Prevention Recommendations • Implement public awareness campaigns to promote healthy lifestyle behaviors, with these characteristics: o simple, consistent messages o cutting edge communications and marketing strategies o tailored to specific audiences o sustained over time Potential Projects • Conduct diabetes prevention awareness campaigns focused on: o high-risk groups o policy makers o business sector, and o the general public Goal: Foster Community-Based Collaboration and Communication Recommendations • Convene forums, coordinate communication and strategies, align and focus goals, leverage resources and foster collaboration among programs, organizations and communities motivated to address diabetes prevention and chronic disease risk factors • Support community-based programs to prevent diabetes and reduce chronic disease risk factors in Minnesota utilizing effective strategies Potential Projects • Develop a chronic disease fact sheet • Publish a quarterly bulletin focused on chronic disease prevention • Convene an annual conference focused on chronic disease prevention • Develop a document describing intersections among statewide chronic disease plans Goal: Integrate Diabetes Prevention into Health Systems Recommendations • Promote collaboration between community groups, health systems, and other stakeholders to prevent diabetes and improve outcomes • Create and build consensus for guidelines, standards, protocols and best practices for improving risk behaviors and risk factors as well as prediabetes care • Identify, flag, notify and refer those with high glucose levels and ensure adequate follow-up • Implement programs to change behaviors and attitudes about diabetes prevention and management and empower people to stay healthy, self-assess and ask for screening Potential Projects • Develop and validate practical models for prediabetes screening and treatment • Translate the DPP lifestyle intervention from the context of a controlled research into real-world settings • Ensure follow-up for women with pregnancies complicated by gestational diabetes *Minnesota Diabetes Program staff created Table 8 based on the overlap between the MN-DPPP results and the prevention-related Plan recommendations (Appendix 3). Table 8 has also been reviewed and validated by outside stakeholders. 17
Challenges and Opportunities for Diabetes Prevention Discussion Figure 1 The MN-DPPP identified important tensions among four key issues: 1) the boundaries of scientific evidence for diabetes prevention; 2) enthusiasm or “pent-up demand” for prevention among our partners; 3) the realities of collaboration in practice; and 4) scarce resources for prevention (Figure 1). Science. Determining an appropriate scope for diabetes prevention remains a challenge. The DPP demonstrated that diabetes can be prevented or delayed among those who are glucose intolerant, overweight or obese and 25 years or older. But a tension exists between this evidence and the pragmatic realities of engaging diverse partners, especially communities, who prefer a broader target audience. Efforts seeking to maximize broad organizational participation need to balance these different perspectives. Enthusiasm. Collaboration for prevention was cited as an important potential benefit of diabetes prevention. Participants expressed great enthusiasm for “moving upstream” and shared optimism that collaboration to address risk factors will create synergy and leverage resources. “What might be unique about diabetes prevention is targeting those specific groups that are at special risk for diabetes. But by doing it well, it becomes a model that could then be adapted for the rest of the population as well. So I think there’s a real opportunity for a leadership role, in the diabetes prevention program, in terms of how we address obesity and physical activity.” ~ MDH Manager Practice. Participants pointed out that in practice, collaboration itself requires resources, especially time, and that both strategies and resources are needed for motivating potential partners to come to the table. Existing workloads tend to crowd out collaboration as a priority and participants expressed frustration about being asked to do more with less, as well as redundancy in efforts. Resources. Having adequate and stable resources is critical. A non-MDH participant stated simply: “Resources to do what has been prescribed by the science of the diabetes prevention trial are… beyond our imagination.” However, since this study was completed, a cost-effectiveness analysis of the DPP interventions found that, compared with metformin, the lifestyle intervention cost less ($1,100 vs. $31,300 per QALY, or quality adjusted life year) and yielded better outcomes. The authors cited previous research suggesting that interventions that cost less than $20,000 per QALY are an appropriate use of resources. This research argues strongly in favor of implementing DPP-style lifestyle interventions with people at high risk of developing diabetes.10 18 Facilitated by the Minnesota Department of Health and the Minnesota Diabetes Program
Listening to Public Health Professionals and Partners in Minnesota Actions Underway. The MN-DPPP’s impact since its completion can be illustrated by examples in three key areas: partnerships, actions and accomplishments. Through the MN-DPPP, the MDP demonstrated capacity in the area of convening partners—a role specified by participants for the state—and strengthened relationships in several key areas. The project also led to new partnerships among participating organizations, consistent with recommendations regarding sharing and building on existing resources. Since this project was completed in 2004, a number of specific actions outlined by the participants are underway or have been accomplished. MDH hired a chronic disease epidemiologist. This staff has convened an interest group on chronic disease epidemiology to explore data partnerships and is developing a chronic disease fact sheet focused on common modifiable risk factors such as poor diet, physical inactivity and obesity. Another new fact sheet, developed with the MDH Genomics Program, emphasizes family history as a risk factor for diabetes, and provides recommendations for people who have this risk factor. MDH has also implemented a workplace wellness initiative, designed to model what can be accomplished toward employee health promotion on a limited budget. Results from the MN-DPPP have been used to develop public health goals related to prediabetes for Minnesota. The MN-DPPP recommendations have strengthened the diabetes prevention component of the Plan. The Minnesota Diabetes Steering Committee has formed a work group to address diabetes prevention, which will incorporate these recommendations into their work. Data to identify those at risk, define the burden and track progress was cited as a key resource needed. In 2004, MDH piloted BRFSS diabetes prevention measures on glucose screening, diagnosed high blood glucose, and family history of diabetes. Finally, several key milestones have been accomplished related to resources. MDH leadership has used the MN-DPPP results to argue for continued state-level chronic disease prevention funding, and new federal funding has come through two CDC grants: Steps to a Healthier U.S. and the Diabetes Primary Prevention Initiative (DPPI). Minnesota’s Steps to a Healthier US grant (2004-2008) funds diabetes, obesity, and asthma prevention by addressing physical inactivity, poor nutrition, and tobacco use. Partners include the Minnesota Department of Education and multiple MDH Programs and four Minnesota communities: Minneapolis, St. Paul, Rochester and Willmar. Through the DPPI, the CDC has made funds available for diabetes prevention pilot projects in five states: California, Massachusetts, Michigan, Minnesota and Washington. Table 9 describes the DPPI’s three focus areas: Table 9. Focus Areas of the CDC-Funded Diabetes Primary Prevention Initiative (DPPI) Intervention: Piloting the use of the Improvement Model and the Chronic Care Model to support planning and implementation of diabetes prevention intervention(s) in diverse settings. Surveillance: Piloting development of a diabetes primary prevention surveillance system. Systems Modeling: Pilot testing the utility of system dynamics modeling in support of diabetes goal setting and decision making. 19
Challenges and Opportunities for Diabetes Prevention All five states are funded for the Intervention focus area. Three (California, Massachusetts and Minnesota) are funded for the Surveillance focus area, and two (California and Minnesota) are funded for the Systems Modeling focus area. Funding began in September of 2005. Participating states and CDC collaborated to define the scope of work and activities. Continued DPPI funding is anticipated through March of 2008. The Intervention focus area has created a set of resources and tools for state Diabetes Prevention and Control Program (DPCPs) to work with key audiences for diabetes prevention: businesses, communities, consumers, health systems and policy makers. Over the next year, this focus area will pilot the performance of the tools to enhance existing diabetes prevention efforts. Each of the 5 states will select one or more key audiences and pilot intervention strategies to serve as models for future programmatic efforts. Surveillance focus area work has involved identifying the prediabetes population, selecting appropriate indicators for diabetes prevention and determining how to measure them. As part of this project, Minnesota has continued piloting BRFSS prevention measures during 2006. The System Modeling focus area concerns a computer model of the social, economic and epidemiological dynamics that give rise diabetes incidence, prevalence, morbidity and mortality. Work over the next year will involve piloting the model and accompanying learning lab to support decision- making for diabetes prevention. Future Opportunities Participants strongly emphasized that any new diabetes prevention work should build on existing efforts, and there are several opportunities for such collaboration in Minnesota, including: Steps to a Healthier U.S.; Indian Health Service prevention grants and prediabetes guidelines; the Blue Cross Blue Shield dou campaign to promote everyday physical activity; the American Diabetes Association’s work with members of the Minnesota business community; the Fit City and Fit School award programs; federally mandated school wellness policies; the Minnesota Child Obesity Task Force; the Eagle Books, which aim to prevent diabetes in American Indian youth; worksite wellness strategies being piloted at the Minnesota Department of Health, and local public health priorities for addressing obesity, nutrition and physical activity. Minnesota’s Steps to a Healthier US communities are working with schools, workplaces, health care settings, community-based organizations and community media outlets on a variety of projects to prevent diabetes. These include school-based walking programs for students (Willmar) and staff (St. Paul); distributing WIC vouchers for fresh, locally grown produce from the Rochester Downtown Farmers’ Market; television programs on diabetes prevention created by Emergency and Community Health Outreach (ECHO) in St. Paul; and a summer health promotion program, Step Up to Health, with the Minneapolis Park and Recreation Board. In April 2005, Indian Health Service released the first comprehensive care guidelines in the U.S. for prediabetes in clinical settings. These guidelines specify who to test, how to test, how to diagnose, how to document/code, how to manage, what to manage (including goals) and how often to follow up. 20 Facilitated by the Minnesota Department of Health and the Minnesota Diabetes Program
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