CAREGIVER SUPPORT AND TRAINING - Alzheimer's Disease Association
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CAREGIVER SUPPORT AND TRAINING A P RI L- SE P T E MB E R 2 018 D E M EN T I A HE L P L I NE 6377 070 0
MESSAGE TO ALL CAREGIVERS, “ Doctors diagnose, nurses heal, and caregivers make sense of it all. - Brett Lewis This fittingly sums up the role of caregivers and the responsibilities they shoulder when embarking on a journey to provide care to their loved ones. With multiple responsibilities and expectations, the caregiving journey can become challenging. Therefore, supporting caregivers remains a priority of Alzheimer’s Disease Association (ADA). This booklet aims to provide easy access to information on CONTENTS ADA’s programmes and services. The integrated information also allows caregivers to identify their needs and plan their learning to enhance their caregiving skills and abilities. 3 Through our various caregiver support groups and training Section 1: programmes, ADA hopes to equip caregivers with knowledge and skills in dementia care, while acknowledging their unique Caregiver Support Group caregiving experiences with the ultimate aim to empower and encourage transformation in their caregiving journey. 11 Section 2: Training for Family Caregivers 14 Section 3: Training for Foreign Domestic Workers 18 Section 4: Registration Details for Caregiver Training
WHAT IS Are you experiencing caregiver stress, seeking information on Caregiver Support Groups (English) CAREGIVER Caregiver Support Group dementia care, or wanting to meet other caregivers? DATE TOPIC VENUE SUPPORT Join the Alzheimer’s Disease Chronic Illnesses Management GROUP? Association (ADA) Caregiver 07 Apr 2018 JP for Persons with Dementia Support Group! Caregiver Support Groups provide an opportunity for respite, while 28 Apr 2018 Expressive Art Therapy Workshop TP meeting other caregivers in similar situations to share caregiving Sundown Symptoms Management experiences and practical tips, 19 May 2018 BB in Dementia Care learn about dementia, and discover resources in a relaxed and safe environment. 26 May 2018 Young Onset Dementia Care TP Sessions are conducted in English for two hours, consisting of a talk by a guest speaker and a sharing 23 Jun 2018 Effective Communication in Dementia Care JP session amongst caregivers. Using Stimulating Activities to Engage 30 Jun 2018 TP Persons with Dementia Venues To register BB 14 Jul 2018 When is it the Right Time? - Nursing Homes and Other Care BB Please call our Dementia Helpine New Horizon Centre (Bukit Batok) Arrangements at 6377 0700 or register online at Blk 511 Bukit Batok St 52, #01-211, www.alz.org.sg. Alternatively, email S(650511) us at registration@alz.org.sg. JP 28 Jul 2018 Community Resources in Dementia Care TP Please register at least two weeks New Horizon Centre (Jurong Point) before the scheduled sessions. 1 Jurong West Central 2, #04-04, Jurong Point Shopping Centre, Providing Comfort and Quality of Life Caregiver Support Group S(648886) 04 Aug 2018 JP in Late Stage Dementia Care sessions are free of charge (unless specified). TP New Horizon Centre (Toa Payoh) Anxiety, Depression and Sleep Issues Blk 157 Toa Payoh Lorong 1, #01-1195, 18 Aug 2018 TP in Dementia S(310157) Note: Topics and schedules are subjected to change without prior notice. Note: Our Caregiver Support Group is strictly for family caregivers of Timing persons with dementia. 2.30pm to 4.30pm. Participants are to be seated by 2.15pm. 3 EMPOWERING YOU, TRANSFORMING CARE EMPOWERING YOU, TRANSFORMING CARE 4
何谓关护者 您是否正面临着关护者压力,在 寻找有关失智症的资料或想与其 关护者互助小组(华语) 互助小组? 他关护者交流? Caregiver Support Group 日期 课题 地点 欢迎您参加新加坡失智症协会的 关护者互助小组! 12 May 2018 户外瑜伽 TB (Outdoor Yoga) 关护者互助小组提供您一个喘息 的空间,在一个轻松安全的环境 失智症慈怀疗护 中与其他面临相同经历的关护者 16 Jun 2018 TB (Palliative Care in Dementia) 交流关护经验,同时吸取失智症 及相关的关护知识和社区支援的 社区资源 资料。 07 Jul 2018 TB (Community Resources in Dementia Care) 关护者互助小组将会以华语进 饮食与营养 行,为持两小时。 小组包括由受邀 25 Aug 2018 (Food and Nutrition) TB 嘉宾演讲和关护者讨论及分享。 注:主题和议程可能会更改 若有兴趣报名 地点 请拨打失智症援助热线 6377 TB 0700 或到www.alz.org.sg报名。 Family of Wisdom(Tiong Bahru) 您也可以电邮到registration@ 瑞智互助家庭(中峇鲁) alz.org.sg。请在至少两个星期前 298 Tiong Bahru Road, 报名。 #10-05 Central Plaza, S(168730) 关护者互助小组昰免费的。 时间 (除非另有说明) 10.30am至12.30pm 请在10.15am就坐 注:新加坡失智症协会的关护者互 助小组仅限于家庭关护者参与。 5 EMPOWERING YOU, TRANSFORMING CARE EMPOWERING YOU, TRANSFORMING CARE 6
APAKAH ITU “ Adakah anda mengalami tekanan menjaga pesakit demensia? I always appreciate and benefitted from KUMPULAN Caregiver Support Group Adakah anda mencari maklumat gaining more knowledge on dementia from untuk penjagaan pesakit demensia the speaker and sharing with other caregivers. SOKONGAN atau berminat untuk bertemu penjaga-penjaga lain? - Mdm T (Participant of open caregiver support group) PENJAGA? Sertai Penjaga Kumpulan Alzheimer’s Sokongan Disease Association (ADA)! Kumpulan Sokong Penjaga (Melayu) Kumpulan Sokongan Penjaga TARIKH TOPIK LOKASI menyediakan peluang kepada para penjaga untuk berehat sambil Sumber Masyarakat bertemu para penjaga lain yang 05 May 2018 dalam Penjagaan Demensia TB mengalami situasi sama, untuk (Community Resources in Dementia Care) berkongsi pengalaman penjagaan dan tip-tip praktikal yang berguna, Pencegahan dari jatuh serta belajar tentang demensia di 21 Jul 2018 dan Keselamatan di dalam rumah TB dalam persekitaran yang selamat (Fall Prevention and Home Safety) dan selesa. Mengurusi tingkah laku yang mencabar Sesi-sesi ini dikendalikan dalam 29 Sep 2018 TB (Managing Responsive Behaviours) bahasa Melayu merangkumi ceramah oleh penceramah jemputan dan sesi perkongsian Nota: Topik dan jadual tertakluk kepada perubahan tanpa notis. antara penjaga selama dua jam. Untuk mendaftar Lokasi “ The programme was very well run, Sila hubungi talian Dementia the staff are attentive Helpline di 6377 0700 atau daftar TB and knowledgeable. secara online di www.alz.org.sg. Family of Wisdom Centre Alternatif lain, emel kami di (Tiong Bahru) We, as caregivers, registration@alz.org.sg. 298 Tiong Bahru Road, #10-05, feel very supported Central Plaza, S(168730) Sila daftar dua minggu sebelum throughout. sesi yang dijadualkan. Well done! Masa Sesi Kumpulan Sokongan Penjaga 10.30 pagi hingga 12.30 petang. Keep it up! adalah percuma. Sila hadir sebelum jam 10.15 pagi. - Ms Ho Nota: Kumpulan Sokongan Penjaga (Participant of closed kami hanya untuk ahli keluaraga caregiver support group) yang menjaga pesakit demensia. 7 EMPOWERING YOU, TRANSFORMING CARE EMPOWERING YOU, TRANSFORMING CARE 8
CLOSED CAREGIVER SUPPORT GROUP CLOSED CAREGIVER SUPPORT GROUP HOLISTIC WELL-BEING CAREGIVERS Caregiver Support Group FOR PERSONS WITH WHO ARE SINGLE DEMENTIA It has been recognised that Who Should caregivers who are single may Overall Who Should have specific and unique needs Attend and thoughts about caregiving. Objectives Attend Thus, this support group is • Family caregivers who are caring for their loved ones • Provide a holistic understanding • Family caregivers who are caring started with the following diagnosed with dementia, and of the changing needs of a for their loved ones diagnosed objectives: • Single (i.e. not married, person with dementia with dementia and are keen to widowed, divorced), and learn and acquire knowledge and • Discuss caregiving experiences • Equip caregivers with various skills in these areas, and and choices • Able to speak and comprehend knowledge and skills to manage • Support caregivers to find English and can commit to these changing needs • Able to speak and comprehend meaning and purpose in their attending all 5 sessions of this • Gain understanding and learn English and can commit to caregiving closed support group how to care for yourself as a attending all 5 sessions of this caregiver closed support group • Foster and enhance support for self and fellow caregivers DATE TOPIC VENUE DATE TOPIC VENUE The Brain - Understanding how Dementia 12 May 2018 Affects Behaviours and Psychology 23 June 2018 First Link of a Person 10.30am – 10.30am – 12.30pm 12.30pm How Dementia Affects Communication 30 June 2018 Second Choice 19 May 2018 and Swallowing Caregiver Support Caregiver Support Centre, Centre, 70 Bendemeer 07 July 2018 Third Hand 26 May 2018 Dementia and Daily Care 70 Bendemeer Road, Road, Luzerne Building Luzerne Building 14 July 2018 Moving Forth 02 June 2018 Dementia and Incontinence #03-02A, #03-02A, S(339940) S(339940) 21 July 2018 Closure 09 June 2018 Dementia Care and You There are limited vacancies for this group; registration will be on first come, first There are limited vacancies for this group; registration will be on first come, first served basis and will close on 08 June 2018. No walk-ins will be accommodated served basis and will close on 20 April 2018. No walk-ins will be accommodated as this is a closed support group. as this is a closed support group. 9 EMPOWERING YOU, TRANSFORMING CARE EMPOWERING YOU, TRANSFORMING CARE 10
FAMILY CAREGIVER CORE MODULE: TRAINING PROGRAMME Living with Dementia Caring for a person with dementia can be very difficult at times. • Recognise the symptoms of dementia and Dementia not only affects the person living with the condition, its impact on the person with dementia but the entire family. The greatest challenge is on you, the and caregivers. caregiver. With better understanding of dementia, you can plan • Appreciate the principles of Person-Centred Care. and cope with the challenges that you may encounter in your caregiving journey. • Communicate effectively with the person with dementia. • Understand the nature of behavioural and psychological symptoms Family Caregiver Training Programme (FCTP) is a two-day of dementia. Training for Family Caregivers programme designed to support you in your caregiving role. • Identify a range of strategies to cope with the changing behaviour of Comprising of core and elective modules, this programme persons with dementia provides you with essential knowledge and skills to care for the person with dementia using the Person-Centred approach. The interactive training workshops serve as a platform for you to gain ELECTIVE MODULE 1: new insights into caring for the person with dementia and yourself, share real-life scenarios for discussion, and identify potential Purposeful and Meaningful strategies for managing caregiver stress. Engagement Due to changes in their thinking abilities, and reduced motivation, persons with dementia struggle to continue with everyday activities, interests and valued roles. Family caregivers will learn creative ways of engaging the person with dementia in purposeful and meaningful activities to enhance their physical and psychological wellbeing. ELECTIVE MODULE 2: A Positive Approach to Challenging Behaviour Changes in the behaviour of persons with dementia often appear challenging to their caregivers, family and friends. The impact of behavioural and psychological symptoms of dementia (BPSD) may be minimised through the use of positive methods of communication, environmental modification, and by addressing unmet needs. In this workshop, participants will identify ways to manage their everyday challenges in caregiving through a problem- solving approach. 11 EMPOWERING YOU, TRANSFORMING CARE EMPOWERING YOU, TRANSFORMING CARE 12
FAMILY CAREGIVER TRAINING PROGRAMME DEMENTIA CARE When are the Training TRAINING WORKSHOPS Sessions? FOR FOREIGN DOMESTIC MODULE TIME DATE WORKERS (FDWs) 21 Apr 2018 FDWs find it challenging to cope when a person with dementia exhibits behaviours such as repetitive questioning, agitation and 07 Jul 2018 anger. They may find it difficult to assist the person with dementia Core Module: 9.00am – 5.00pm Living with Dementia in daily activities such as eating, taking a shower and going to 20 Oct 2018 the toilet. As the condition progresses, the person’s mental and 19 Jan 2019 physical capacity changes, affecting his/her ability to express thoughts and emotions. Communication can be challenging. As 19 May 2018 such, FDWs may struggle to address the person’s needs and wants. The following training modules are designed to cover different Elective Module 1: 04 Aug 2018 aspects of dementia care to equip FDWs with practical knowledge Purposeful and Meaningful 9.30am – 12.30pm Engagement 17 Nov 2018 and skills to handle different challenges that they will face in caring for the person with dementia. 23 Feb 2019 • Core Module – Essentials of Dementia Care • Elective Modules – Caring for a Person with Dementia 23 Jun 2018 Training for Foreign Domestic Workers The FDWs will learn these modules through classroom lecture, Elective Module 2: 22 Sep 2018 experiential learning, group discussions, sharing & role play. A Positive Approach 9.30am – 12.30pm to Challenging Behaviour 08 Dec 2018 Why should I send my domestic 02 Mar 2019 worker for training? • To gain knowledge and practical “ The Family Caregiver Training Programme (FCTP) is a good programme that helps participants learn skills in dementia care from specialists in the field • To facilitate employers who from one another. The facilitator was knowledgeable, are applying for the *Foreign encouraging, and helpful in sharing her personal Domestic Worker Grant (FDWG) experiences. I realised I was not alone - there are other caregivers who need help and training. I recommend *The FDWG is administered by the training for everyone, including young adults. Agency for Integrated Care (AIC). Please visit www.silverpages.sg to find out more - Kok Wai Tong (Family Caregiver) 13 EMPOWERING YOU, TRANSFORMING CARE EMPOWERING YOU, TRANSFORMING CARE 14
CORE MODULE: ELECTIVE MODULES: Essentials of Dementia Care Caring for a Person with Dementia This is a one-day training workshop that offers core information and This is a series of training workshops, which comprises of seven elective useful techniques for domestic workers to apply when caring for a person modules covering different aspects of dementia care. It offers coping with dementia. strategies and useful techniques for domestic workers to apply in a home It is conducted in English, Malay & Burmese from 9.00am to 5.00pm. environment. Participants are recommended to attend all seven modules to be equipped with knowledge and skills in dementia care. Modules are conducted in English & Malay from 9.30am to 12.30pm. MODULE SYNOPSIS DATE Essentials of Participants will learn : 14 Apr See schedule on page 17. Dementia Care 2018 • Orientation on • how to identify the signs and 28 Jul Dementia symptoms of dementia; 2018 • Managing • how dementia causes changes in the Changing behaviour of a person and ways to 06 Oct Behaviour manage these behaviours; and 2018 • Effective • techniques to communicate with the Communication person with dementia effectively 05 Jan 2019 Training for Foreign Domestic Workers “ The ADA training gave me good ideas to help grandma eat and swallow better. I learnt how to recognise when grandma is taking too long to eat; what taking too long may mean and what I should then do. I also learnt the importance of daily exercise for older people so that their muscles can still work well. - Riza Salajog Burgos (Foreign Domestic Worker Training participant) 15 EMPOWERING YOU, TRANSFORMING CARE EMPOWERING YOU, TRANSFORMING CARE 16
MODULE SYNOPSIS DATE REGISTRATION DETAILS Participants will gain a better understanding FOR CAREGIVER Elective Module 1: of the impact of dementia on Activities of Daily Living (ADL), and learn tips on assisting persons with dementia with 05 May 2018 TRAINING Everyday Care their ADLs through the Prepare, Involve & How do I register? Comfort (PIC) model • Via phone call at Dementia Helpline 6377 0700 • Via email at: caregiver_training@alz.org.sg Elective • Online: www.alz.org.sg Participants will learn to identify and Module 2: 02 Jun conduct suitable activities for persons Meaningful 2018 What are the course fees for Core & Elective modules? with dementia. Activities • Per Core Module : $140 (without CTG) or min $10 co-payment (with CTG), dependent on eligibility and CTG balance. • Per Elective Module : $50 (without CTG) or min $10 co-payment Elective Participants will learn about factors causing 18 Aug (with CTG), dependent on eligibility and CTG balance. Module 3: falls, fall prevention and correct techniques 2018 Fall Prevention of assisting someone who has had a fall. What is Caregivers Training Grant (CTG)? The Caregivers Training Grant (CTG) is a $200 annual subsidy that allows Elective Participants will comprehend the mechanics caregivers to attend approved courses to better care for their loved ones. Module 4: of swallowing, how dementia can impact 01 Sep Only care recipients who are Singapore Citizens or Singapore Permanent Managing swallowing, and ways to manage food 2018 Residents are eligible for this grant. The CTG is administered by AIC. Mealtimes refusal in persons with dementia. Please visit www.silverpages.sg/CTG to find out more. What documents are required to register for the training? Elective • A copy of the Family Caregiver’s NRIC Module 5: Participants will learn home safety Creating A considerations for persons with dementia 03 Nov • A copy of the Care Recipient’s NRIC Comfortable as well as practical tips to provide a safe 2018 • A copy of the doctor’s memo confirming a diagnosis of dementia & Safe environment • A copy of the Foreign Domestic Worker’s work permit Environment (for FDW training only) • Completed CTG Application Form Participants will comprehend the nutritional (only for caregivers who wish to utilise the CTG) Elective needs of persons with dementia, strategies Module 6: 01 Dec What is the mode of payment? to overcome under-eating or over-eating Managing 2018 • Payment can be made by cash or cheque made payable to and the importance of a healthy and for Caregiver Training Food Nutrition “ALZHEIMER’S DISEASE ASSOCIATION” Registration Details balanced diet. • Payment and all supporting documents should reach us at least seven days before the training date. Participants will learn how to manage Elective • Please note that the course fee for training is non-refundable. their emotions and cope with stress by 16 Feb Module 7: discussing their roles and job expectations 2019 Where is the training held? Self-Care as a caregiver. Alzheimer’s Disease Association (ADA) Resource & Training Centre 70 Bendemeer Road #06-02, Luzerne Building, Singapore 339940 17 EMPOWERING YOU, TRANSFORMING CARE EMPOWERING YOU, TRANSFORMING CARE 18
ADA IN SINGAPORE ADA provides care for persons with dementia at our New Horizon Centres and Family of Wisdom centres. Caregivers may receive education and support from the ADA Resource and Training Centre and Caregiver Support Centre. ADA Resource & Training Centre Family of Wisdom (Toa Payoh) 70 Bendemeer Road 7A Lorong 8 Toa Payoh #06-02 Luzerne Building, S 339940 #01-01 Agape Village, S 319264 Monday - Friday: 9.00am - 6.00pm Monday - Friday: 8.30am - 5.30pm 6293 9971 6904 4095 Caregiver Support Centre New Horizon Centre (Bukit Batok) 70 Bendemeer Road Blk 511 Bukit Batok Street 52, #01-211, #03-02A Luzerne Building, S 339940 S 650511 Monday - Friday: 9.00am - 6.00pm Monday - Friday: 7.30am - 6.30pm 6389 5121 6565 9958 Dementia Helpline New Horizon Centre (Jurong Point) Monday - Friday: 9.00am - 6.00pm 1 Jurong West Central 2, #04-04 6377 0700 Jurong Point Shopping Centre, S 648886 ADAcafé@AgapeV Monday - Friday: 7.30am - 6.30pm 7A Lorong 8 Toa Payoh 6790 1650 #01-01 Agape Village, S 319264 Monday - Friday: 8.30am-5.30pm New Horizon Centre (Tampines) 6904 4095 Blk 362 Tampines Street 34, #01-377, S 520362 Family of Wisdom (Bendemeer) Monday - Friday: 7.30am - 6.30pm 72 Bendemeer Road 6786 5373 #05-29 Luzerne Building, S 339941 Monday - Friday: 9.00am - 6.00pm New Horizon Centre (Toa Payoh) 6291 6268 Blk 157 Toa Payoh Lorong 1, #01-1195, S 310157 Family of Wisdom (Tiong Bahru) Monday - Friday: 7.30am - 6.30pm 298 Tiong Bahru Road 6353 8734 #10-05 Central Plaza, S 168730 Monday - Friday: 8.30am - 5.30pm 6593 6440 / 6593 6442 alz.org.sg /alz.org.sg @alz.org.sg @alz_sg
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