2021 The Women's Health Edition - Continence Foundation of ...

Page created by Beverly Turner
 
CONTINUE READING
2021                VOLUME 15 | ISSUE # 1

 AUTUMN      The Women’s
             Health Edition

 Get to
 know
  your
 pelvic
  floor

Invisible
disability

Gut and
 brain
  link
EDITOR Kasia Kosidlo

SUBSCRIPTIONS
Tel 1800 33 00 66
                                                           In this issue
                                                                       AUTUMN | 2021
ISSN 1836-8107 (online version ISSN 1836-8115)

                                                      5.
                                                                                                        What are the pelv
                                                                                                                          ic
                                                                                                        floor muscles?

PUBLISHED BY                                                                                            The floor of the pelvis
                                                                                                        muscle and other
                                                                                                       like a hammock from
                                                                                                                                 is made up of layers
                                                                                                                            tissues. These layers
                                                                                                                                                       of
                                                                                                                                                  stretch
                                                                                                                                the tailbone at the
                                                                                                       to the pubic bone                            back,
                                                                                                                           at the front.

Continence Foundation of Australia                    NEWS
                                                                                                       A woman’s pelvic
                                                                                                                          floor muscles support
                                                                                                      bladder, uterus (womb)                       her
                                                                                                                                  and bowel. The urethra
                                                                                                      (urine tube), the vagina,
                                                                                                                                  and the rectum (back
                                                                                                      passage) all pass
                                                                                                                         through the pelvic
                                                                                                      muscles. Pelvic floor                   floor
                                                                                                                              muscles help control
                                                                                                     bladder and bowel.                             your

NATIONAL OFFICE
                                                                                                                            They may also help

                                                      6.
                                                                                                     function.                                   sexual

                                                                                                     It is vital to keep your
                                                                                                                              pelvic floor muscles
                                                                                                     strong.

Suite 1, 407 Canterbury Rd,
Surrey Hills VIC 3127                                 GET TO KNOW YOUR
Tel 03 8692 8400 Fax 03 9380 1233                     PELVIC FLOOR
info@continence.org.au
                                                      7.
                                                                                                 2

continence.org.au
                                                      TASH’S STORY

                                                      8.
@AusContinence

                                                      PELVIC HEALTH THROUGH
© Continence Foundation of Australia
                                                      THE LIFE STAGES
Bridge is published quarterly by the Continence
Foundation of Australia. It is supported by the       9.
Australian Government Department of Health            WHAT DOES PROLAPSE
under the National Continence Program.                FEEL LIKE?

                                                      10.
The information in Bridge is for general guidance
only and does not replace the expert and individual
advice of a doctor, continence nurse or continence    SARAH’S STORY
physiotherapist. Bridge cannot be reprinted,
copied or distributed unless permission is obtained
from the Continence Foundation of Australia.
                                                      12.
ADVERTISING
                                                      PAINFUL SEX
The Continence Foundation of Australia appreciates
the support of advertisers in publishing Bridge.
                                                      13.
Advertising conforms to the standards required by
                                                      LEAKAGE DURING EXERCISE
the Continence Foundation of Australia, but
endorsement is in no way implied by the               14.
publishing of said material.                          SPEAKING WITH YOUR
REFERENCES                                            HEALTH PROFESSIONAL
Email bridge@continence.org.au
for a list of references for any articles appearing   15.
in Bridge.                                            MENTAL HEALTH HELPLINE Q&A

                                                      16.
                                                      SMOOTHIE BOWL RECIPE

    National Continence Helpline
           1800 33 00 66                              Membership
     A free service staffed by Nurse Continence
                                                      Become an individual, student or professional member of
      Specialists who can provide information,
                                                      the Continence Foundation of Australia and receive many
      referrals and resources 8am – 8pm AEST
                                                      benefits including discounted registration to the annual
     weekdays. The Foundation, established in
                                                      National Conference on Incontinence, free publications and
        1989, is a not-for-profit organisation.
                                                      timely information about events and education courses.

                                                      Email membership@continence.org.au
                                                      or phone 03 8692 8400.
2 / bridge / AUTUMN
Note from the CEO
We’re starting off 2021 with a focus       Angela who share their experiences of
on women’s health. Incontinence            bladder, bowel and pelvic health.
is an important women’s health             We really welcome your thoughts on
issue and affects women of all             Bridge: tell us what you like, want more
ages, cultures and life stages.            or less of, or any ideas for making the
                                           magazine better. You can find the
While we use the term women in the
                                           survey at www.surveymonkey.com/r/
edition, we hope the stories speak to
                                           NG2YCRY or as always, send us an
people of all genders and experiences.
Pelvic health is important for everyone.   email to bridge@continence.org.au
The Foundation values inclusivity and      In the next edition, we’ll be
would like to recognise those in our       highlighting World Continence Week
community who relate to these stories      in June 2021 and the findings of the
but don’t identify as women – this         Royal Commission into Aged Care
edition is for you too.                    Quality and Safety.                        Rowan Cockerell
Inside this edition, we share how your                                                CEO
                                           As well as Bridge, the Continence
bladder, bowel and pelvic health might                                                Continence Foundation of Australia
                                           Foundation of Australia operates the
change through different life stages.
                                           National Continence Helpline on
We also take a look at how important
                                           1800 33 00 66 and has free info in over
topics such as painful sex, exercise and
                                           30 languages at continence.org.au.
mental health are more related to
pelvic health than you might think.        Make sure to phone or head online
You’ll hear from Tash, Amy, Sarah and      for more. Enjoy,

   Women in Australia make up:                                 80%                             62%
                                                               of people with urinary          of people with faecal
                                                               incontinence                    incontinence

                Let us know what you think in the
                Bridge Magazine Reader Survey
In just 13 questions, you
can influence the articles
in future editions.
The survey takes five
minutes and we would
love to hear your feedback.

      Take the survey
  www.surveymonkey.com/r/
           NG2YCRY

                                                                                                       bridge / AUTUMN / 3
Advertisement

Designed with a super absorbent
core, odour control technology
and protective leak guards*,
Always Discreet liners, pads and
underwear will leave you feeling
confident and comfortable.

DISCREET
                                                                     Claim your
                                                                 FREE PACK
                                                                  COUPON
                                                                            Visit:
                                                               alwaysdiscreet.com.au or
                                                                  scan the QR CODE

  *Applicable for Always Discreet Normal, Long and Long Plus, Maxi Night.
bridge / NEWS /

                                   What Australia-wide water
                                   bill savings would mean for
                                   people with incontinence
The Western Australia               In October 2020, the Western            Australia asking providers to
                                    Australian Water Minister announced     extend their medical programs to
water provider led the way
                                    new water bill savings for households   include CAPS recipients.
in supporting people with
                                    receiving the Continence Aids
incontinence, now it’s time for                                             “Living with incontinence is
                                    Payment Scheme (CAPS). CAPS is an
                                                                            expensive,” says Rowan Cockerell,
all of Australia to do the same.    Australian Government program for
                                                                            CEO of the Continence Foundation
                                    people with permanent and severe
                                                                            of Australia.
                                    incontinence to help with the cost of
                                    continence products.                          People have to budget for
                                    Under the WA Water Corporation’s             the extra costs of washing
                                    medical allowance, WA households            laundry and bedding, soiled
                                    with a CAPS recipient can use up to             clothes and showers.
                                    180,000 litres of water for free each
                                                                            Being able to save on their water
                                    year – saving on average $380.
                                                                            bill would make a difference to over
                                    The Continence Foundation of            135,000 CAPS recipients across the
                                    Australia is calling on all water       country. We know that most people
                                    service providers to do the same.       receiving CAPS are aged 65 years and
                                    The Foundation wrote to the             over, and many rely on a pension.
                                    Water Services Association of

                                        Find out more about CAPS at continence.org.au or phone the National
                                                       Continence Helpline on 1800 33 00 66.

                                   Calls to see incontinence in the
                                   Australian Government budget
With 6.2 million Australians set    “One in four Australians are             for the future and a population
to be affected by incontinence      currently affected by incontinence,      that is getting older.
by 2030, the Continence             and it has long-term effects on both
                                    physical and emotional health,”
                                                                                 A focus on prevention of
Foundation of Australia’s Pre-                                                    incontinence, as well as
                                    Continence Foundation of Australia
Budget Submission calls for an      CEO, Rowan Cockerell, said in               improvement of continence
urgent action plan.                 February 2021.                             care, will reduce people going
                                    Even though the number of                    into residential aged care
                                    people experiencing incontinence              because of their bladder
                                    is growing, there is currently no                and bowel health,
                                    funding or action plan from the                   Mrs Cockerell said.
                                    Federal Government after June 2021.
                                                                             “Incontinence is one of the top
                                    The Continence Foundation of             reasons for a person to leave their
                                    Australia’s submission shares how        home and enter aged care. Research
                                    action in the 2021-22 Budget             tells us that once they are in aged
                                    would improve quality of life of all     care, their chance of experiencing
                                    Australians, but especially for older    incontinence quickly goes up.”
                                    people and people with disability.
                                                                             The Foundation looks forward
                                    The Foundation says a new                to working with the Australian
                                    National Strategy on Incontinence        Government to deliver improved
                                    will make sure Australia is ready        health outcomes for all Australians.

                                                     Read the full submission at continence.org.au

                                                                                               bridge / AUTUMN / 5
bridge / PELVIC HEALTH /

                                                                                      Get to know your
                                                                                      pelvic floor
You can’t see them, but your                                                          Your pelvic floor is a group of muscles    Working your pelvic floor
pelvic floor muscles are                                                              in your pelvis. They stretch like a
                                                                                                                                 Just like any muscle, your pelvic floor
working hard to help your                                                             hammock from the pubic bone at
                                                                                                                                 gets stronger from regular workouts.
                                                                                      the front, to the back, and side to
body with bladder and bowel                                                                                                      These are known as pelvic floor muscle
                                                                                      side. They wrap around the openings
control, sexual function,                                                                                                        exercises (called kegels in some
                                                                                      to your bladder, vagina and bowel to
and abdominal (tummy) and                                                                                                        countries). You don’t need fancy gym
                                                                                      support your organs and stop leakage
                                                                                                                                 equipment or to lie on the floor for
spine support.                                                                        (urine and stool).
                                                                                                                                 pelvic floor exercise – just a couple of
                                                                                      Two ways to try to find                    minutes throughout the day.
                                                                                      your pelvic floor muscles                  An exercise to improve or
                                                                                      1. Sit or lie down with the muscles of     even cure incontinence
                                                                                         your thighs, buttocks and stomach
                                                                                                                                 Pelvic floor muscle exercises have been
                                                                                         relaxed. Squeeze the ring of muscle
                                                                                                                                 shown to be very effective at helping
                                                                                         around the anus (back passage)
                                                                                                                                 urinary incontinence (leakage from the
                                                                                         as if you are trying to stop passing
                                                                                                                                 bladder). Research tells us that when
                                                                                         wind. Now relax this muscle.
                                                                                                                                 done with a health professional, they
                                                                                         Squeeze and let go a couple of
                                                                                                                                 can be even more effective, as you will
                                                                                         times to be sure you have found
                                                                                                                                 be shown how and when to exercise
                                                                                         the right muscles. Remember, do
                                                                                                                                 and use your pelvic floor muscles. They
                                                                                         not squeeze your buttocks.
                                                                                                                                 may help with types of incontinence
                                                                                      2. When you go to the toilet and are       including overactive bladder, urge and
                                                                                         halfway through emptying your           bowel incontinence.
Find out                                                                                 bladder, try to stop or slow the flow
about pelvic                                                                                                                     Most women see a change in leakage
                                                                                         of urine. Then, start the flow again.
floor muscle                                                                                                                     in three months, so check in with a
                                                                                         You are squeezing the correct
exercises with                                                                                                                   health professional if you aren’t seeing
                                                                                         muscles if you can do this.
our guide                                                                                                                        improvement.
                                                                                        Only try the second method once
Scan the QR code                                                                        a week. If you do this too often         Every woman is different
to go straight there or                                                                 your bladder may not empty the           You may have the same signs of
visit continence.org.au                                                                 way it should.                           urinary leakage as someone else,
                                                                                      You should feel your muscles both          but a different cause. Some women
                                                                                      squeezing and lifting.                     have weak pelvic floor muscles that
                                                                                                                                 can be made stronger with pelvic
                                                                                      It can be hard to know if you’ve           floor muscle exercises. Others may
                                What are the pel
                                                                                      found your pelvic floor muscles on         have a pelvic floor that is too tight
                                                vic
           Pelvic               floor muscles?                                        your own. You can find a pelvic floor      and is hard to relax (hypertonic). A
            floor               The floor of the pelvis
                                muscle and other
                                                          is made up of layers
                                                     tissues. These layers
                                                                                 of
                                                                                      physiotherapist or nurse continence        pelvic floor physiotherapist, nurse
                                                                                      specialist in your area by phoning
                               like a hammock from                          stretch

          muscle               to the pubic bone
                                                         the tailbone at the
                                                    at the front.
                                                                              back,
                                                                                                                                 continence specialist or continence
                                                                                      the National Continence Helpline
                               A woman’s pelvic
                                                   floor muscles suppo

        training                                                                                                                 professional can work out your cause
                              bladder, uterus (wom                        rt her
                                                        b) and bowel. The
                              (urine tube), the vagin                       urethra
                                                        a, and the rectum

                                                                                      on 1800 33 00 66.
                              passage) all pass                             (back

     for women                                                                                                                   and a plan to help.
                                                 through the pelvic
                              muscles. Pelvic floor                    floor
                                                       muscles help contr
                             bladder and bowe                              ol your
                                                  l. They may also help
                             function.                                     sexual

                             It is vital to keep your
                                                      pelvic floor muscles
                             strong.

         Strong pelvic
        floor muscles
           mean good     2
      bladder control
                   1

6 / bridge / AUTUMN
bridge / LIFE STAGES /

                               ‘IS THIS LIFE NOW?’
                               Tash’s experience of faecal incontinence

                                “I rang my mum on the phone, like oh       going to be able to help me or this
                                my god I’ve pooed myself. This is my       was permanent damage,” Tash says.
                                life now. I’m just going to poo myself.
                                                                           Still on maternity leave, she started
                                This is it,” Tash says.
                                                                           thinking about how tricky it would be
                                She nervously laughs, as the               to return to her busy work, and how
                                experience was far from funny.             incontinence might affect her hopes
                                “That was really distressing.”             for children in the future. The very first
                                She had just experienced her first         appointment with the physiotherapist
                                bowel leakage accident and didn’t          gave her relief from all this worry.
                                know what to think. As a new mum           “I can honestly say that from the first
                                with a career as a urology nurse,          appointment that I had, she was just
                                she was well-versed in bladder             so reassuring and so optimistic that it
                                dysfunction (problems). Going              was going to be okay. That we could
                                through faecal incontinence herself        fix it and that she could help me,”
                                came as a shock, even with her             Tash says.
                                experience and knowledge.
                                                                                  … I left feeling in such a
Six months after giving
                                “I was very much aware of the risks            different mindset and so
birth to her daughter in        of bladder dysfunction post-birth,
February 2020, 28-year-                                                    motivated to help myself because
                                and during pregnancy, but when I
old Tash found herself in a                                                  I knew that there was hope.
                                experienced bowel dysfunction I was
huge panic about the future.    totally out of my depths,” Tash says.      She took everything in – regular
                                                                           pelvic floor muscle exercises, learning
                                It started in April with bowel urgency,
                                                                           about the FODMAP diet and more.
                                where she found herself rushing
                                                                           The best news is that Tash says her
                                to the toilet and not being able to
                                                                           bowel function became “a hundred
                                hold on. She spoke to a GP and was
                                                                           times better” after just three months
                                waiting for a hospital physiotherapy
                                                                           of treatment. Her bowel habits are
                                appointment when her first leakage
                                                                           now back to how they were before
                                accident happened in August. The
                                                                           giving birth.
                                accident prompted her to dig out
                                the hospital referral and make a call            Now I feel happy. I feel I can
There is help available         to follow-up, determined to get help.      just live my life like I always have. I
                                Incontinence was already affecting
                                                                            can go out when I need to. If I feel
    Incontinence can be         her life in huge ways.
                                                                            the urge to go to the toilet, I’ve got
    managed, treated or         “I didn’t want to leave the house until
                                                                                  ample time to get there.
    even cured in many          I’d gone to the toilet for a poo that
 cases. Your doctor, pelvic     day. Because I just didn’t trust that      After her experience, Tash is even
  health physiotherapist        if I was to have left the house, that I    more passionate about encouraging
                                wouldn’t have had an accident. Or if I     other mums to get help for their
    or nurse continence
                                did get an urge, I wouldn’t be able to     bladder, bowel and pelvic health.
   specialist can all help.                                                With her career as a nurse, she was
                                find a toilet in time.
                                                                           comfortable starting the conversation
    Phone the National                Already COVID was very               about incontinence but knows it can
   Continence Helpline            isolating anyway… I didn’t want          be a hard topic to raise.
    1800 33 00 66 for a          to leave the house in case I was to       “This is my day-to-day talk, it’s not
   confidential chat with             have pooed myself. It was            weird for me to talk about bladder
   an experienced Nurse                      very lonely.                  or bowel. So going to a doctor and
   Continence Specialist.       She says the fear of the unknown           talking about that was quite easy.
                                was the hardest part to deal with.         “…Being a new mum is scary and
                                Thoughts were running through her          isolating and having this additional
                                mind constantly.                           problem was really stressful. I am
                                “Is this life now? Is this something I’m   thankful that I’m happy to go to the
                                going to have to live with? It was that    doctor and say ‘I’ve pooed myself,
                                fear of not knowing if a physio was        please help me.’”

                                                                                              bridge / AUTUMN / 7
bridge / LIFE STAGES /

                                      Pelvic health
                                      through the life stages
 As you go through life, your         1. MENSTRUATION – YOUR PERIOD
 body changes with you. Read          One in nine women are affected by endometriosis, where tissue from
 to find out how significant          the uterus (womb) grows outside in areas such as the bowel and ovaries.
                                      Endometriosis symptoms usually start a few years after the first period, but on
 life events can mean different       average it takes 6.5 years until it is diagnosed.
 things for bladder, bowel and
                                      One of the most common signs of endometriosis is pelvic pain (pain
 pelvic health.                       anywhere between the belly button and pelvis) and this commonly starts just
                                      before a period. Pelvic pain and other signs of endometriosis such as fatigue,
                                      nausea and fertility issues can significantly impact quality of life.
                                      Find out more at endometriosisaustralia.org
                                      Where you are in your menstrual cycle can also affect your bowel movements
                                      – thought to be due to hormonal changes. Women with inflammatory bowel
                                      disease (IBD) have reported more symptoms before and during their period.

                                      2. PREGNANCY
                                      Pregnancy is full of big changes and milestones. These amazing changes
                                      help prepare for birth but also have an impact on your pelvic health and
                                      whole body.
             Add pelvic floor
                                      During pregnancy the body releases hormones that soften muscles, including
             exercises to your day
                                      your pelvic floor muscles. This, with the extra weight of a growing baby, can
             with reminders from
                                      weaken your pelvic floor and what it can support.
             the free Pregnancy
             Pelvic Floor Plan app.   You can make it stronger by doing pelvic floor exercises before, during and
             Download on the App      after pregnancy. The exercises help reduce the chance of experiencing
                                      incontinence after birth.
             Store or Google Play.

                                      3. CHILDBIRTH                                                      1 in 3
                                                                                                       women who
                                      During a vaginal delivery, the vagina stretches and the          have ever had
                                      supporting tissue and pelvic floor can tear. Women who            a baby wet
                                                                                                        themselves
                                      give birth to a larger baby, have a longer labour or difficult
                                      delivery are more likely to have bladder or bowel problems.
                                      Some women notice leakage (urine or stool) during pregnancy or after birth.
                                      It can take time for your pelvic floor and muscles to recover after birth, and
                                      every person is different. Most notice their bladder and bowel concerns
                                      improve in the first six months after birth.
                                      Make sure to raise any issues with your health professionals. They are there
                                      to help and telling them what you feel (your symptoms) is important.
                                      You don’t have to put up with incontinence just because it’s common during
 THE PREGNANCY GUIDE                  pregnancy and after birth. There is lots of help available – find out more by
                                      speaking with your health professional or phoning the free and confidential
 Everyone has advice for you
                                      National Continence Helpline on 1800 33 00 66.
 when you’re pregnant or have
 a new baby! This guide takes
 the guesswork out of learning           At appointments after my diagnosis of pelvic floor tear and prolapse,
                                         I discovered how common it is to experience birth injuries, prolapse
 about bladder and bowel
                                         and incontinence. It is still hard to understand why something so
 control. Download a copy at
                                         common and grim is met with silence.
 continence.org.au for yourself
 or a new parent in your life.           My dream is for more women who have experienced birth injuries
                                         to know that they aren’t alone and that they don’t need to suffer in
                                         silence. If we don’t start talking about common issues that occur from
                                         childbirth, then how will we ever fix our overall quality of life? If you’re
 Scan the
 QR code                                 reading this and any of it resonates with you, please seek support
                                         because this doesn’t have to be your new normal.
                                         Amy Dawes, Co-Founder of the Australasian Birth Trauma
                                         Association birthtrauma.org.au
8 / bridge / AUTUMN
4. MENOPAUSE – MORE THAN HOT FLASHES

                                        EARLY MENOPAUSE means going through menopause before the age of
                                        45. Early menopause can happen after medical treatment such as removal of
                                        the ovaries and chemotherapy for cancer.

                                        PERIMENOPAUSE is the time leading up to the last period (can be years).
                                        This is the stage where many of the symptoms we think of as menopause
                                        actually happen. Common experiences in perimenopause include changes to
                                        menstrual cycle and periods, hot flashes, trouble sleeping, mood and mental
                                        health changes, bladder and bowel symptoms.

                                        MENOPAUSE means it has been 12 months since the last period. Post-
                                        menopause is the time after this point.

                                  How it can affect your bladder and bowel health
                                  During the menopausal transition, the body starts to have less oestrogen (a sex hormone
                                  needed for the female reproductive system).
                                  Many women notice changes to their bladder and bowel health, including:

    There’s more to               A weaker pelvic floor – Because we usually lose muscle mass with age, the pelvic floor
                                  muscles can weaken. This can lead to experiencing urinary or faecal incontinence, urine
    menopause than
                                  loss with coughing and sneezing, or needing to rush to the toilet more often.
    people speak about.
                                  Vaginal dryness – Oestrogen helps create mucus, and with less of this in the body, the
    We challenge the
                                  vagina and urethra (bladder tube) can become drier. This can be painful and irritating as
    myths so you can              well as put you at higher risk of urinary tract infections (UTIs) and incontinence.
    understand how                Prolapse – Some factors, especially a weaker pelvic floor, mean pelvic organ prolapse is
    to look after your            more likely to happen after menopause.
    bladder and bowel             A less elastic bladder – With age, it’s harder for the bladder to stretch (less elastic) and
    health – before and           this can cause an overactive bladder. An overactive bladder will cause you to pass urine
    after menopause.              more frequently.
                                  Symptoms from childbirth – Some women experience damage to their anal sphincter
                                  (muscle around the anus) during birth but don’t have symptoms until later in life. Faecal
                                  incontinence because of this damage most commonly starts in perimenopause.
                                  There is help for all of these changes. These could include pelvic floor muscle training,
                                  bladder training, vaginal oestrogen cream or an oestrogen pessary, lifestyle changes and
                                  surgery. Health professionals can guide you to help for your individual situation.

                                       What does prolapse feel like?
About half of all women who            Pelvic organ prolapse is when the pelvic      You may notice these more later in
have had a child have some             organs are not held in their right place.     the day.
                                       They may bulge or sag down.                   Other signs:
level of prolapse. Not all have
                                       Feelings you may notice:                      • your bladder not emptying as it
symptoms – we know one
                                       • a heavy feeling or dragging in the            should
in five of these women seek              vagina                                      • weak urine stream
medical help.                          • something coming down or a lump             • urinary tract infections (UTIs) keep
                                         in the vagina                                 happening
                                       • a lump bulging out of your vagina           • trouble with emptying your bowel.
Scan the QR code                         that you can feel or see                    For more help, speak with your doctor
or find out more at                    • sexual problems such as pain or less        or continence health professional if you
continence.org.au                        sensation.                                  are experiencing these signs.

                                                                                                         bridge / AUTUMN / 9
bridge / A PERSONAL STORY /

                                            ‘ONE DAY AT A TIME’:
                                            Sarah’s story of spinal cord injury
                                             Sarah Wise often finds herself explaining the most traumatic day of
                                             her life to people she has just met. Complete strangers will come up
                                             to her to ask about her walking stick and her reasons for using it. But
                                             26-year-old Sarah is patient and kind-hearted – even when people
                                             might not deserve it.
                                             “I know people are just curious, but        movement and sensation. Her injury
Sarah Wise’s time living
                                             they don’t understand the weight of         resulted in quadriplegia (paralysis of
abroad in London was cut
                                             their question,” she says.                  arms, legs and torso). She also had
short after a serious fall in                                                            trouble speaking (vocal cord palsy)
                                             “In those little moments I’m just
October 2019. Over a year on,                                                            after surgery and would have to spend
                                             trying to educate people, one person
she reflects on what she’s                                                               more than three months in hospital.
                                             at a time, using my story to raise
learned and what she wants                   awareness about spinal cord injury.”        Learning to walk in
the world to know about
                                             Sarah’s accident happened in                hospital
spinal cord injury.
                                             October 2019, when she fell off a
                                                                                         “On day 12, I moved my right toe for
                                             friend’s shoulders at the back of a
                                                                                         the first time. That was like the best
                                             concert. Paralysed from the neck
                                                                                         moment in my life,” Sarah says.
Issues with bladder and bowel                down, Sarah was rushed into hospital.
                                             She knew she couldn’t move or feel          From there, she set an “ambitious”
function are very common in
                                             her body but wasn’t sure what the           goal to be able to walk by her
people with spinal cord injury
(SCI).                                       injury would mean.                          birthday – three months away.

The spinal cord plays an                     “I just kept asking every single nurse      Her background as a cheerleader
important role in sending                    and doctor who leant over my bed,           and elite gymnast meant she was
messages to the brain, bladder               ‘will I walk again, will I walk again?’,”   used to pushing her physical limits. In
and bowel. Each injury is                    Sarah says.                                 hospital, she swapped training with
different, but paralysis in this area                                                    coaches to training with surgeons and
                                             “Their faces were… I don’t know how
can result in not being able to                                                          physiotherapists, impressing them
                                             to describe it. The look of despair
control the bladder and bowel.                                                           with her quick progress.
                                             when you don’t want to tell someone
There are many options to                    bad news. And they would say ‘I don’t       Like an early Christmas present, just
manage continence care after                 know if you’ll walk again’, and so I        two months later in December, she
spinal cord injury. These can                didn’t really get any answers. They         took her first wobbly steps without
include the use of catheters                 didn’t give me much hope.”                  help. By March she no longer relied
to drain the bladder, pads and                                                           on her wheelchair.
                                             Sarah was told she had a C3
products, abdominal massage,
                                             incomplete spinal cord injury,              At first look, people see Sarah’s ability
medication and help from a
                                             meaning the spinal cord was                 to walk as a complete recovery. She
carer. An individual assessment
                                             damaged but had a chance for some           was flooded with comments and
is very important.

Research shows that continence
problems affect quality of life
and are reported as one of the
most difficult symptoms after
spinal cord injury. One USA
study of women with SCI found
bladder and bowel health was
a “major source of stress and
frustration in their daily lives.”

Pictured from left:
A summer 2020 van trip; ice-skating in
Hyde Park; 1st injure-versary; in London.

10 / bridge / AUTUMN
The public make assumptions about me as a young person needing a chair to sit down
              or use disabled toilets. People are quick to judge, but no one knows anyone’s story.

messages after sharing a video on         hospital, and she remembers it as a         without aids at the moment, but
social media, with people saying they     “horrifying” experience.                    sometimes I do use a stick. So it is that
were so proud to see a total recovery.                                                strange grey area between ability and
                                          “I was crying and in total shock. I
This is one of the myths Sarah wants                                                  disability. I get fatigued very quickly
                                          thought I was an independent 24-year-
to challenge.                                                                         and have hand dysfunction which
                                          old, so it was very confronting.”
                                                                                      impacts on simple tasks like washing
“Mobility isn’t the only issue people
                                          “… Then you learn it’s not anything to      the dishes,” she says.
with spinal cord injury experience, but
                                          worry about, it’s part of the process
it’s the only thing onlookers see.”                                                   “Recently, I was almost not allowed
                                          of learning to manage your bowel.
                                                                                      into a pub and questioned about my
“Spinal cord injury causes bladder and    You just clean up, change clothes
                                                                                      stick and medical information.”
bowel dysfunction, loss of or changed     and say, ‘things are a bit messy right
sensation, chronic pain, neuropathic      now but it’ll work out’.”                   “The public make assumptions about
[nerve] pain, spasms, a weakened                                                      me as a young person needing a chair
                                          Sarah has a light-hearted approach
breathing system, pressure sores, and                                                 to sit down or use disabled toilets.
                                          to these important topics, and most
more. I also have to manage a lot of                                                  People are quick to judge, but no one
                                          of all, wants to encourage other
medications. Every spinal cord injury                                                 knows anyone’s story.”
                                          people to feel comfortable talking
is different.                             about them.                                 She looks at facilities and places in
                                          “I believe being open about your            a different way now, interested in
     … The reality is it’s not
                                          situation will encourage others to          how changes in design can make a
    possible to have a 100 per                                                        difference to people with disability.
                                          share their stories, and in the end will
         cent recovery.”
                                          reduce the awkwardness and taboo
                                                                                      What’s next
For Sarah, heading towards                around bowel and bladder health.”
                                                                                      “This year, my main focus is my therapy,
independence in her bladder                     Everyone needs to go,                 to try reach my maximum recovery –
and bowel routine meant a lot.
                                               some people just do it a               whatever that is. I really want to learn
Second to moving her big toe, an
                                                    bit differently!                  to run this year,” Sarah says. As a social
unexpected moment stood out.
                                                                                      butterfly, she’s enjoying being back
“The second proudest moment was           Invisible disability                        with family and friends in Sydney and
doing a wee by myself. That was           Although awareness is growing,              exploring her creative hobbies.
something I was pretty scared of after    sometimes the public can forget there
                                                                                      “With everything going on it’s just
depending on an indwelling catheter       are many kinds of disability and not
                                                                                      hard to plan the future. I would like
for seven weeks,” she says.               all are visible. Sarah says she struggles
                                                                                      to go back to London and live an
                                          with this as a young quadriplegic
Finding a new continence routine                                                      independent life. I haven’t finished
                                          person with the ability to walk.
was filled with emotion and took                                                      that chapter of my life.
                                          When she was using a wheelchair,
some time to get used to.
                                          then walking aids, her experience           “I’m taking one day at a time and just
Her first time having a bowel accident    fit people’s expectations of what a         focusing on my little improvements
was on her first day in rehabilitation    disability is or looks like. “I can walk    every day.”

                                                                                                          bridge / AUTUMN / 11
bridge / PELVIC HEALTH /

                                   Are you experiencing …
                                   Painful sex?
Many women experience pain          Your pelvic floor muscles move and          health professionals who will work
during sexual intercourse.          react throughout the day in many            closely with you to make sure that your
                                    situations. For example, when we            bladder, bowel and pelvic health are at
Physiotherapist Lissy               cough or sneeze, we need the muscles        their best.
Changuion explains how the          to contract [shorten] to stop urinary
pelvic floor can play a factor      leakage from happening.
in sexual function and shares
her advice if you’re
                                    During intercourse, we need our
                                    pelvic floor muscles to be able
                                                                                    Steps to deep
experiencing pain.                  to relax. Of course, it isn’t always
                                    simple. Sometimes we hold tension
                                                                                      breathing
                                    and stress in our pelvic floor muscles
                                    – like the kind we may experience in
                                    jaw and neck muscles.

                                    What can cause pelvic floor
                                    tension?
                                    Common factors may include:
                                                                                Lissy says deep, focused breathing is
                                    •   feelings of stress or anxiousness
                                                                                one of the most effective ways to reduce
                                    •   increased bladder urgency or
                                                                                stress and tension in the body and
                                        frequency
                                                                                pelvic floor.
                                    •   constipation or changed
                                        bowel habits                            1. Find a comfortable position, lying on
                                    •   pain.                                      your back.
                                    Many physical and lifestyle factors         2. Place one hand on your stomach
                                    can lead to a slow build-up of pelvic          below your rib cage and the other
  There are also many factors
                                    floor muscle tension, or not being             hand on your chest.
  which influence sexual
                                    able to relax the pelvic floor during
  intimacy, including:                                                          3. For the next few minutes, try to focus
                                    intercourse. Both of these can lead to
                                                                                   your attention to your breathing.
  •   pelvic shape and structure    a painful sexual experience.
  •   arousal during sex                                                        4. Take a deep breath in through your
  •   stress levels                 Who can help? What does                        nose, for the count of three seconds.
  •   vaginal health due to         treatment involve?                             Feel your belly gently push your
      hormonal changes              A pelvic health physiotherapist can            hand out, without your upper chest
  •   specific positions            assess your pelvic floor and find any          moving. Try to imagine the muscles in
  •   previous experiences and      possible links to painful intercourse.         the base of your pelvis getting softer.
      feelings                      Often, treatment involves retraining        5. Slowly let your breath out through
  •   partner’s anatomy.            the muscles to move and relax,                 your mouth for the count of 5
                                    improvement of pelvic and hip                  seconds. Feel your belly return to
                                    movement, pelvic floor stretches               the resting position as all the air is
                                    (sometimes with specific devices),             pushed out of your lungs.
                                    lifestyle changes, stress management
                                    and a gradual re-introduction to            6. Try to take your time with each
                                    intimacy and penetrative intercourse           breath. If possible, slow down your
                                    with a partner.                                breath in for the count of 5 seconds,
                                                                                   and your breath out for the count of
                                    Listen to your body                            7 seconds.
                                    If you experience pain during               7. Repeat this for another 10 times.
                                    intercourse, you should not be “pushing
                                                                                Notice how you feel at the end of this
                                    through” pain to have intimacy with
                                                                                breathing exercise. You might like to
                                    your partner. This will only increase the
                                                                                keep repeating this until your body
                                    body’s stress and pain response.
                                                                                feels calm and relaxed.
                                    Your body is experiencing pain for a
                                    reason. There is help available from
12 / bridge / AUTUMN
Are you experiencing …
                                            Leakage during exercise?
                                            Lori Forner, physiotherapist
                                            and Always Discreet
DID YOU KNOW: Benefits
                                            ambassador, explains what we
of regular exercise include
                                            know about incontinence and
better sleep, more energy,
                                            high-impact exercise.
improved mood, prevention
of chronic illnesses + more!
                                            Physical activity described as “high-
                                            impact” involves exercises like running
Australia’s Physical Activity
                                            and jumping, when both feet are
Guidelines suggest:
                                            repeatedly off the ground at the same
Adults 18 to 64 years                       time before landing (the impact). High-    > Who can help? What does
Doing any physical activity is better       impact activity increases the forces on   treatment involve?
than none – you can start slowly!           the body. It’s great for both bone and
                                                                                      Physiotherapists trained in pelvic floor
                                            heart health but has also been linked
Aim for 2.5 to 5 hours of moderate                                                    dysfunction can assess why you are
                                            to pelvic floor problems.
intensity physical activity, or 75 min to                                             leaking. They can also work out if you
2.5 hours of vigorous intensity physical     > What if you only experience            need pelvic floor muscle training, or
activity each week (or a combo).            leakage during exercise?                  a vaginal device like a pessary which
                                            We don’t know exactly why this            supports your pelvic organs or helps
Do muscle strengthening activities
                                            activity is causing problems in some      with continence. Help might involve
on at least two days each week (such
                                            females, even when bladder and bowel      modifying your training program and
as body weight exercises, weights,
                                            health in their day-to-day life may be    seeing how well you are moving. For
tasks around the house where you lift
                                            completely fine. It could be that the     example, are you breathing? Do you
or carry).
                                            pelvic floor muscles aren’t supportive    need to strengthen other muscles in
65 years and older                          enough during the landing phase, the      the body? Do you need to stretch?
Do a range of activities for fitness,       muscles get too tired, or the other       If you are experiencing bladder
strength, balance and flexibility (such     tissues supporting the bladder and        leakage during high-impact exercise,
as yoga, dancing, stretching).              other pelvic organs (ligaments and        there may be simple changes to help.
                                            fascia) are too lax.                      These could be changing your stride
Build up at least 30
minutes of moderate                         Bladder or bowel leakage                  length in running or finding a breath
intensity physical activity                 (incontinence) during sport or            pattern such as breathing out two
on most, preferably                         exercise is never normal and is not a     steps, in two steps, etc.
all, days.                                  sign you are working hard enough!         It’s best to see a professional to guide
                                            Continually ignoring and pushing          you because every person is individual
                                            through leakage will most likely make     and there are so many reasons this
                                            this worse over time.                     may be happening.

                                                                                                       bridge / AUTUMN / 13
bridge / SPEAKING WITH HEALTH PROFESSIONALS /

                                           Getting help:
                                           What to ask on your
                                           treatment journey
There’s a lot to take in when              Speaking with your doctor or              incontinence without surgery or
making treatment choices for               health professional                       medication. These include pelvic
your bladder, bowel and pelvic                                                       floor muscle training or rehabilitation;
                                           Head to your appointments with
                                                                                     improvement of bowel function, fluids
health. Remember, it is always             confidence by taking our handy
                                                                                     or weight; or a continence pessary (a
your decision to choose the                question prompts:
                                                                                     soft rubber or tampon-like support
help you would like.                        > What is causing the incontinence       device). These treatments should be
                                              or bladder, bowel or pelvic            offered or tried first.
Congratulations on taking
                                              floor issue?
the first step to improve your                                                       Urogynaecologist Dr Anna Rosamilia
                                            > Do I need to be examined or            shares questions to help you make
continence health – planning
                                              have any tests?                        informed choices with your surgeon:
to seek help!
                                            > Can it be treated?
                                                                                      > For my specific situation, which of
                                            > What are the treatment options            these surgeries would the surgeon
                                              available to me?                          recommend for me? Please give
                                            > What are the risks of these               reasons.
                                              treatment options?                      > Do I need to have any tests
                                            > Should I see a specialist in              (urodynamics) to give the surgeon
                                              this area?                                more information?
                                            > Are there products I can use?           > Does the surgeon perform all of
                                            > Am I eligible to receive any              the possible options?
                                              financial help for the cost of          > What is the success rate you would
                                              continence products?                      give me? Why? For example, a
                                                                                        cure of stress incontinence, no
                                           Speaking with your surgeon about
                                                                                        or better urge incontinence? No
                                           stress incontinence
                                                                                        complications (problems) such
                                           Stress urinary incontinence (SUI) is         as bleeding, bladder emptying
                                           one of the most common types of              difficulty etc, mesh exposure
                                           incontinence women experience.               problems or pain? Keep in mind
                                                                                        that pain can happen with any
                                           Your health professional may
                                                                                        surgery.
                                           recommend surgical treatments in
                                           cases where conservative treatments        > Is the surgeon able to manage
                                           have not improved your bladder               (take care of) any complications or
                                           control. Conservative treatments             do they have a colleague who can
                                           are all the ways of helping your             manage complications?

                            Angela, 77

            Angela’s story
             “My journey began some fifteen years ago with an attack of diarrhoea which did not settle. I saw my GP
             but they didn’t want to accept there was anything wrong at all. We had the old “just drink lots of water
             and eat lots of fibre” discussion. I had to push for a stool test referral and an examination where I was
told “you are all floppy down there.”

Since then, I have learnt a lot about my bladder and bowel health. I was diagnosed with an infection, bowel polyps,
weak connective tissues, Irritable Bowel Syndrome (IBS) and can’t eat FODMAP foods.

Today, I am eighteen months post-op from my fifth rectal prolapse repair, and in the care of surgeons, doctors and
physiotherapists – heroes all!

So, who do you talk to? Friends, family members, a good GP, pelvic floor physiotherapist, and the Continence
Foundation nurses are all there to help you. Seek them out. Reject offensive and nasty remarks, seek second
opinions, and don’t give up.”

14 / bridge / AUTUMN
Helpline Q&A
                                     Mental health and incontinence
                                       > What is the link between the gut        floor, for example struggling to use
   Women are diagnosed                (bowel) and the brain?                     the toilet or pass urine even though
   with anxiety, depression           Your gut has its own nervous               you have the urge to go. This often
   and PTSD (Post-Traumatic           system called the ‘enteric nervous         happens when you are in a toilet stall
   Stress Disorder) at higher         system’ which controls digestion           and there is someone in the toilet
                                      (the breakdown of food and drink).         next to you.
   rates than men.
                                      This nervous system is always in           Having bladder problems can also
                                      communication with your central
                                                                                 cause anxiety, stress and depression.
                                      nervous system (brain and spinal
                                                                                 If you have ever had an accident or
                                      cord) through nerves and chemicals.
                                                                                 wet yourself, you might find that you
                                      We often call this the gut-brain
                                                                                 worry about this happening again.
                                      connection or relationship.
                                                                                 You may be more focused on or think
                                      This means your brain can affect           about your bladder more.
                                      your gut and your gut can affect your
                                                                                  > How can someone tell if their
                                      brain. If your gut is upset, this can
                                                                                 bladder or bowel symptoms
                                      cause anxiety, stress or depression.
                                                                                 are linked to mental health
                                      If you feel anxious, stressed or
                                                                                 issues? Should they see a health
                                      depressed, this can also affect how
                                                                                 professional?
                                      your gut moves and contracts. It may
                                      speed up or slow down, which could         If your bladder and bowel
Janie Thompson is the Continence                                                 symptoms are affecting your life
                                      change your bowel motions and even
Foundation of Australia’s Clinical                                               and bothering you, you should
                                      cause pain.
Services Manager, leading the
                                                                                 see a health professional. It can
National Continence Helpline.          > Why does anxiety sometimes
                                                                                 sometimes be hard to tell if a
                                      feel like physical bladder or bowel
                                                                                 bladder or bowel symptom is linked
                                      symptoms?
                                                                                 to a mental health issue.
     For confidential information     Because of the gut-brain connection,
                                      anxiety can cause the gut to move          It is important to look after your
     and advice, you can phone the
     National Continence Helpline     faster or go slower. This can cause        mental health as well as your
     on 1800 33 00 66 (Monday to      symptoms like ‘butterflies’ in your        bladder and bowel health. If you
     Friday, 8am to 8pm AEST).        tummy, needing to go to the toilet         notice your bladder and bowel
                                      suddenly or having diarrhoea.              symptoms are worse when feeling
                                                                                 anxious, stressed or depressed, or
                                      The bladder sits close to your bowel.
                                                                                 the other way around, then it is
                                      If your bowel is upset, this can also
                                                                                 important to have this followed
                                      have an impact on your bladder.
                                                                                 up. There are now more clinical
                                      The brain and spinal cord control the      psychologists working with people
                                      bladder. Anxiety can have a direct         to help with continence, especially
                                      effect on the bladder and pelvic           bowel problems, with great success.

                                     How can a psychologist help?
                                      The role of a psychologist is to support   fear, and challenging common
                                      your concerns without judgement.           thoughts we have about ourselves,
                                                                                 others and the world around us.
                                      There are many approaches in
                                      psychology we can use to understand        Teaching mindfulness skills, relaxation
                                      and manage the social and mental           exercises and diaphragmatic
                                      impacts of incontinence.                   breathing is useful when a person
                                      For example, through Cognitive             with incontinence is experiencing
Dr Lori Shore, Senior Clinical
                                      Behavioural Therapy (CBT), we can          accidents or flare-ups. These skills can
Psychologist at Caulfield Hospital
Continence Service, shares some of    help people reduce stress and anxiety      help with accepting accidents that
the ways a psychologist can help      and increase mood. CBT involves            may happen, and even have them
with the impacts of incontinence.     changing behaviour, working through        happen less often.

                                                                                                    bridge / AUTUMN / 15
Breakfast smoothie bowl
Accredited Practising Dietitian,                                           INGREDIENTS
Milly Smith, has you covered for                                                (serves 1)
breakfast with this cool and
refreshing smoothie bowl.                                                         Smoothie
       This smoothie bowl                                                          ½ cup milk of choice (if
       has a great mix                                                             using a milk alternative,
                                                                                   make sure to choose one
of things to aid our gut
                                                                                   with added calcium)
health, bone health and
keep us full for longer.                                                            ½ cup Greek yoghurt
                                                                                   1 frozen banana
The use of yoghurt and
milk provides us with a great                                                     1 handful spinach leaves
source of calcium. Calcium                                                      ½ tsp ground cinnamon
is often lacking in Australian
                                                                             ½ tsp ground nutmeg
diets, especially for women over
the age of 50 who need more of it.
                                                                     Toppings
The use of yoghurt also gives us                               ¼ cup untoasted muesli
some fabulous probiotics to help with
                                                 5 sliced strawberries
gut health. The oats, fruit, vegetable,
nuts and seeds all provide us with               1 tbsp crushed mixed nuts/seeds (choose your favourites.
                                                    I enjoy walnuts, macadamia and chia seeds)
dietary fibre to help keep our
bowels regular.                                 Alternative topping options:
                                                Hemp seeds, sliced fruit of choice, nut butter, other cereals
                                                such as bran flakes, puffed brown rice.

                                                Method:

                                                1. Add all the smoothie ingredients together in a blender
                                                   and blend until smooth (if too thick, add extra milk until
                                                   you’re happy with it).

                                                2. Pour the smoothie into a bowl and place your chosen
                                                   toppings on top.

                                                  ENJOY!

                       1 in 3
                       Australian women
                       are affected by
                       incontinence
                                               We’re here to help
      Speak with a Nurse Continence Specialist for advice
         about your bladder, bowel and pelvic health
                      NATIONAL CONTINENCE HELPLINE
                                     1800 33 00 66
                                 8am – 8pm (AEST) Monday – Friday
                                          continence.org.au
You can also read