2021 Brain Health Virtual Support Group and Program Guide - Neuroscience Institute
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2021 Brain Health Virtual Support Group
and Program Guide
Neuroscience Institute
1
Table of Contents Programs and Services Offered
3 Programs and Services Offered • Free virtual support groups
4 Brain Health Team • Wellness and exercise programs
6 Brain Health Support • Education programs
Groups and Classes • Caregiver support and education
• Information and referrals
7 Parkinson's & Movement DIsorder
Support Groups and Classes • Short-term counseling in office or by phone
• Quarterly newsletter
11 Maturing Minds Support
Groups and Classes • Lending library and free educational materials
• Care consulting
12 Neuromuscular Medicine
Support Groups
2 3
Brain Health Team Maturing Minds Program, Clinical Social Worker
Stephanie Malally, MSW, graduated from Sacred Heart University with her
Parkinson & Movement Disorder Outreach Program, Clinical Social Worker bachelor’s degree in social work in May of 2001. In May of 2019, she graduated
from University of Central Florida with a master’s degree in social work.
Tori Clay, MSW, graduated from Florida State University with her Bachelor
Stephanie is currently a registered clinical social worker intern, as well as a
of Human Services and her Master of Clinical Social Work. She has also
certified trainer with the Department of Elder Affairs for Alzheimer’s Disease
completed a Master of Exercise Science from the University of Central Florida Stephanie
and Other Related Disorders for adult day care programs and skilled nursing
and is a certified behavioral health case manager. She has worked with a Malally, MSW
facilities. Throughout her 19 years within the social work field, Stephanie has
variety of different populations including children, mental health patients and
Tori Clay, worked with multiple populations such as children within the dependency
inmates, but she has spent most of her career working with seniors and their
MSW system, families, disabled individuals, seniors and individuals diagnosed with
caregivers as it relates to cognitive impairment diagnoses. She joined the
Alzheimer’s disease or other related disorders. Stephanie really enjoys helping
Parkinson & Movement Disorder Outreach Program in 2020, and she truly
her community and providing the extra support for her patients and caregivers.
enjoys meeting clients where they are with their illness(es) and supporting
them along their journey of changes. She is a dedicated mental health Phone number: 407-392-9237
advocate and is dedicated to creating positivity in negative spaces. Email: orl.mdc@adventhealth.com
Phone number: 407-303-5295
Email: orl.parkinson@adventhealth.com
Neuromuscular Medicine Program, Clinical Social Worker
Laura Russell, LCSW, graduated from the University of Central Florida with
Parkinson & Movement Disorder Outreach Program, Social Worker a master's degree in social work. Since 2013, she has focused her career
on providing supportive counseling and resource connection for patients
Mia Watler, MSW, graduated summa cum laude from the University of South
who experience chronic and life-limiting illnesses. Laura’s goal is for every
Florida with her master’s degree in social work. She has conducted clinical
individual and their caregiver to feel supported and well-cared for through
research regarding social justice and anti-oppressive practices in social work, Laura Russell,
culturally sensitive intervention. Laura is a licensed clinical social worker
as well as international macro work and interventions. She is an experienced LCSW
and qualified supervisor in the State of Florida. She currently serves as the
clinical professional with a demonstrated history of working in hospitals and
Mia Watler, Neuromuscular Medicine Program social worker.
health care industries. Her professional interests include clinical research,
MSW
medical social work and geriatric care. She joined the Parkinson’s and Phone number: 407-303-1123
Movement Disorder Community Outreach program in 2021 and is excited to Email: cfd.neuromuscularoutreach@adventhealth.com
continue supporting clients as they navigate their health care journey.
Phone number: 407-303-5295
Neuromuscular Medicine Program, Social Worker
Email: orl.parkinson@adventhealth.com
Lauren Haynes, MSW, is a graduate of Southern Adventist University and Barry
University and holds a Master of Social Work degree. She has experience in
Maturing Minds Program, Manager various fields of social work including child welfare, court advocacy, mentorship
Gayle Shepherd, RN, is an experienced professional with a history of working and teaching. She has been with AdventHealth since 2016 and has served as
in the hospital and health care industry. She is skilled in clinical care, patient a hospital case manager in multiple settings. In her experiences, Lauren has
Lauren Haynes,
advocacy and nursing education with a focus in geriatric care. She has a found that support fosters empowerment, which in turn contributes to overall
MSW
passion for helping others and manages the Maturing Minds program at wellbeing. As a result, empowerment has become one of Lauren’s passions
AdventHealth, which focuses on offering free virtual support groups to those in the field. Lauren also enjoys researching current social work practices
Gayle Shepherd,
caring for someone suffering from Alzheimer’s disease or dementia. especially as it relates to diversity and inclusion. As the field evolves, Lauren
RN is committed to incorporating innovative approaches. Lauren believes in the
Phone number: 407-392-9237 power of positive thinking and implements this daily. She is now with the
Email: orl.mdc@adventhealth.com Neuroscience Institute team working with MS outreach and NM support.
Phone number: 407-609-7002
Email: cfd.neuromuscularoutreach@adventhealth.com
4 5
Brain Health Parkinson & Movement Disorder Outreach Program
2021 Virtual Support Groups, Classes and Educations 2021 Virtual Support Groups and Classes
Loss & Life Transitions Living in Place Parkinson’s Main Support Group
Virtually — 1st Wednesday of every month Dates: April 8, July 8, October 7 Virtually — Every Thursday
Time: 2 to 3 pm Time: 1 to 2 pm Time: 12 to 1 pm
https://us02web.zoom.us/j/5044155114 https://us02web.zoom.us/j/86304118927 https://us02web.zoom.us/j/5044155114
This group is for anyone who This educational class is for anyone No matter what age, stage or
has experienced a death or a who has been diagnosed with a relationship to Parkinson’s or a
significant life transition. Our neurological, neuromuscular and/ Parkinsonism, there is always
support group addresses many topics as or physical impairment. This class focuses comfort in keeping informed, having a
it relates to grief, as well as coping with on the importance of home safety during safe place to go to ask questions and
changes. In this group, you will hear about physical ability changes. Home modifications having a place to feel empowered to
the stages of grief, learn skills to support and durable medical equipment can face challenges of PD. Our support
your grief journey, and have a safe space increase your ability to continue to live in group addresses many areas including
to share your feelings and frustrations with the comfort of your own home. Whether symptoms of the disease, coping with
others going through similar situations. you’re the caregiver or the patient, please changes, relationships and intimacy, how
join us for an interactive educational webinar to be a self-advocate, treatment options, Young Onset Parkinson’s
hosted by an AdventHealth occupational managing stress and cognitive changes. Coffee Talk and Support Group
therapist, social worker and DME provider. In this group, you will hear from others at
Virtually — Every Tuesday
varying ages, stages and relations to the
Time: 2 to 3 pm
Music Therapy disease, as well as from experts in the field
https://us02web.zoom.us/j/5044155114
including movement disorder specialists.
Virtually — Every Tuesday
Approximately 10 percent of all
Time: 11 am to 12 pm
Care Partner and Caregiver Parkinson’s patients have “early
https://us02web.zoom.us/j/5044155114
Support Group onset” of the disease, meaning it
Music therapy is defined as Virtually — Every Tuesday is diagnosed before the age of 50. While
the clinical use of music and Time: 2 to 3 pm similar symptoms arise in patients of all
music interventions by a board- https://us02web.zoom.us/j/5044155114 ages, there are several distinct differences.
certified music therapist (MT-BC) to Join other members and care partners
address nonmusical functions, such as Has your loved one been diagnosed as we engage in an open discussion or
motor movement, communication and with Parkinson’s disease or a indulge in a presentation led by an expert
cognition. Music therapy can increase Parkinsonism? You may have in the industry to help guide us in our
activity in the reward centers of the brain. many questions. Or, you might want to talk Parkinson’s journey. There is great comfort
Join us every Tuesday for a FREE music to others who are on the same journey in knowing you are not alone and having
therapy session, which will include vocal of helping a loved one navigate life with others who understand what you are
exercises, singing and other activities. PD while managing your own life, needs experiencing, sharing ways of coping and
and stress. Join this empowering group resources, and learning about the latest
of individuals who are living the ups and research and treatment options available.
downs of care-partnering every day and
supporting one another through much Please register at:
laughter and honest talk. This is a very Phone number: 407-303-5295
Please register at neuroscienceinstitute.brainhealth@adventhealth.com. casual, come-as-you-are kind of group. Email: orl.parkinson@adventhealth.com
It is the very definition of support.
6 7
Multiple System Atrophy (MSA) Huntington’s Disease (HD) Nova Southeastern University
& Progressive Supranuclear Palsy Support Group Treatment and Support Group
(PSP) Support Group Virtually — 4th Wednesday of every month Virtually — Every Monday and Friday
Virtually — 4th Thursday of every month Time: 11 am to 12 pm of the month
Time: 2 to 3 pm https://us02web.zoom.us/j/5044155114 Time: 2 to 3 pm
https://us02web.zoom.us/j/5044155114
No matter what age, stage or In partnership with the Nova Southeastern
This virtual support program relationship to Huntington’s University (NSU) Speech and Language
is for those who have been Disease, there is always comfort Department, the Parkinson and Movement
diagnosed with MSA or PSP and in keeping informed, having a safe place Disorder Outreach Program offers a series
their care partners. MSA and PSP are both to go to ask questions and having a place of treatment and support groups virtually
a Parkinsonism with features similar to to feel empowered to face challenges of on various topics for both the person with
Parkinson's, but also have some unique HD. Our support group addresses many a movement disorder and the care partner.
areas including symptoms of the disease,
Movement as Medicine Each group includes breakout sessions,
symptoms of their own. Because there is a (Dance for Parkinson’s)
difference in progression and symptoms, coping with changes, relationships and treatments and exercises to help improve
intimacy, how to be a self-advocate, Virtually — 1st and 3rd Thursday speech and swallowing. This is an incredibly
we created this unique group to help meet
treatment options, managing stress and of every month fun and valuable program and partnership
the educational and support needs to assist
cognitive changes. In this group, you Time: 1:30 to 2:30 pm that we are bringing back for a 3rd year due
those along all ages and stages of their MSA
will hear from others at varying ages, https://us02web.zoom.us/j/5044155114 to its high demand.
and PSP journey.
stages and relations to the disease.
This is a free class that incorporates
Rock Steady Boxing with Cynthia
various dance and movement
forms to address balance, flexibility Virtually — Every Tuesday
and spatial awareness with live musical Time: 1 to 2 pm
accompaniment. This class, led by Suzanne https://us02web.zoom.us/j/5044155114
Salapa, Ed D, head of the Valencia College Rock Steady Boxing (RSB) Orlando
Department of Dance, explores motion enables people with Parkinson’s
with music in ways that are stimulating and disease to fight their disease and
enjoyable. Dr. Salapa has been formally gives hope by improving their quality of life
trained in the internationally acclaimed through a non-contact, boxing-based fitness
Dance for PD® Program. The Dance for PD® curriculum. Parkinson and Movement Disorder
program is built on one fundamental premise: Outreach Program offers the class to our
professionally trained dancers are movement community for FREE.
experts whose knowledge is useful to
persons with PD. The program focuses
on stretching and strengthening muscles,
balance and rhythm. Dancers know about the
power of dance to concentrate mind, body
and emotion on movement because they use
their thoughts, imagination, eyes, ears and
touch to control their bodies every day.
Please register at: Phone number: 407-303-5295 | Email: orl.parkinson@adventhealth.com
8 9
Maturing Minds 2021 Virtual Support Groups
Maturing Minds Functionally Fit Exercise Class
Caregiver Support Group Virtually — Every 3rd Thursday of the month
Virtually — Every Monday Time: 11 am to 12 pm
Time: 11 am to 12 pm https://us02web.zoom.us/j/3876883694
https://us02web.zoom.us/j/86739398714
The Functionally Fit exercise class
Taking care of a loved one with is under the supervision of an
a memory disorder can be a exercise physiologist. Participants
rewarding yet challenging endeavor. of the Functionally Fit virtual exercise class
Our virtual caregiver support group provides will be guided through a series of functional
education and helpful tips for managing the strength-training exercises, including interval
care of someone who is living with a memory training that will improve cardiovascular
disorder, as well as emotional support and fitness, mobility, motor control and balance.
resources. Learn what optimal function should feel like,
so you can move more easily and freely
BrainFlex Wellness Club during daily activities. Classes and exercises
Virtually — Every 2nd and 4th Thursday can be modified to best suit the patients’
of the month needs. Caregivers may also join in the
Parkinson’s & Movement Disorder Outreach Program - Time: 1 pm exercises for their own benefit or to provide
2021 Speakers https://us02web.zoom.us/j/3876883694 assistance.
All Presentations are from 12 pm to 1 pm every Thursday. The primary goal of the BrainFlex
Wellness Club is to prevent or Please register at:
slow down cognitive decline. The Phone number: 407-392-9237
Date Speaker Topic
program includes exercise/meditation, social Email: orl.mdc@adventhealth.com
Feb 11 Anissa Mitchell Intimacy & Sexuality within PD
connections, interactive nutrition education
Mar 18 TBD ClinCloud Resources and brain training/lifelong learning. Research
Mar 25 Robin Rountree & Amy Anglin In-Home Care Options continues to reveal that seniors can, in fact,
Apr 8 Dr. Anwar Ahmed Open Q & A with our Movement Disorder Specialist slow decline and improve their quality of
life if they commit to incorporating these
Apr 22 Dr. Ramon Rodriguez PD Clinical Trials
principles into their lives on a daily basis.
May 13 Veronica Quinones ABC’s to Senior Living Options
May 27 TBD Speech Vive Device
June 10 Amanda Kania Legal Planning: What You Need to Know
June 24 Becky Robey Financial Strategies for When Life Changes
July 29 Arthur Aldea Medical Equipment in the Home
Aug 12 TBD Medication Overview: Myobloc
Sept 9 Thomas Anderson Navigating Disability Benefits
Oct 14 Beth Davalos Simple & Effective Coping Skills
Dec 9 Nikki Magyar Conquering Fall Risk
All group presentation topics and speakers are subject to change.
10 11
Neuromuscular Outreach Program Stiff Person Syndrome (SPS)
Support Group
2021 Virtual Support Groups Virtually — 1st and 3rd Wednesday of every
month Time: 2 to 3 pm
In Sickness & Health Care Partner Charcot-Marie-Tooth (CMT) https://us02web.zoom.us/j/89096701780
Support Group Support Group
No matter what age or stage, there is
Virtually — 1st Thursday of every month Virtually — 1st Tuesday of every month
always comfort in keeping informed,
Time: 12:30 to 1:30 pm Time: 1 to 2 pm
having a safe place to go to ask
https://us02web.zoom.us/j/86810576934 https://us02web.zoom.us/j/89672702657
questions and a place to feel empowered to
Has your loved one been diagnosed This is a virtual space where face challenges of SPS. Our support group
with a neuromuscular disorder? You you can discuss the emotional addresses many areas including symptoms
may questions. Or, you might want and physical challenges of living of the disease, coping with changes,
to talk to others who are also on the same with CMT. No matter what age, stage or relationships and intimacy, how to be a self-
journey of helping a loved one navigate relationship to CMT, there is always comfort advocate, treatment options, managing stress
life with a neuromuscular condition - while in staying informed and having a safe and physical changes. In this group, you will
managing your own life, needs and stress. environment to express challenges and learn hear from others at varying ages, stages and
Join us for an hour of honest conversation, coping techniques from peers. Our support relations to the disease.
possible tears and lots of laughs. This is a group addresses many topics and symptoms
causal, come-as-you-are welcoming setting. of the disease, as well as coping with Periodic Paralysis (PP)
changes of chronic illness. In this group, you Support Group
will hear from others at varying ages, stages Virtually — 2nd Tuesday of every month
and relations to the disease, as well as from Time: 3 to 4 pm Power Hour General Neuromuscular
experts in the field including neuromuscular https://us02web.zoom.us/j/89096701780 Medicine Support Group
medicine specialists.
This is a virtual space where you Second Monday of every month!
can discuss the emotional and Beginning April 12, 2021 from 3 to 4 pm
physical challenges of living with https://us02web.zoom.us/j/86810576934
periodic paralysis. No matter what age, This group is designed for any
stage or relationship to periodic paralysis, person/care partner who has been
there is always comfort in staying informed diagnosed with a neuromuscular
and having a safe environment to express disorder. We will virtually gather monthly
challenges and learn coping techniques from to share experiences, challenges and offer
peers. Our support group addresses many inspirational support to peers on similar
topics and symptoms of the disease, as well journeys.
as coping with changes of chronic illness. In
this group, you will hear from others at varying Please join us for an hour of honest
ages, stages and relations to the disease, conversation and fellowship.
as well as from experts in the field including
neuromuscular medicine specialists. Please register at:
Phone number: 407-303-5295
Email: ORL.Parkinson@AdventHealth.com
Please register at:
Phone number: 407-303-1123 | Email: cfd.neuromuscularoutreach@adventhealth.com
12 13
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________________________________________________________________________________ national origin, age, disability or sex. This facility does not asistans nan lang ou ki disponib gratis pou ou. Rele
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. ﺗﻮ ﺷﻤﺎره زﯾﺮ زﻧﮓ ﺑﺰﻧﯿﺪ.دﺳﺘﺮس ﺷﻤﺎ ﻗﺮار دارد
________________________________________________________________________________
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ﻟﺴﺎﻧﯽ ﺧﺪﻣﺎت ﻣﻔﺖ ﻣﯿﺴﺮ ﮨﯿﮟ۔ ذﯾﻞ ﻣﯿﮟ دﺋﯿﮯ ﮔﺌﮯ ﻧﻤﺒﺮ ﭘﺮ ﮐﺎل
ﮐﺮﯾﮟ۔
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LUS CEEB TOOM: Yog tias koj hais lus Hmoob, cov
U.S. Department of Health and Human Services
________________________________________________________________________________ kev pab txog lus, muaj kev pab dawb rau koj. Hu tus
xojtooj hauv qab no.
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Complaint forms are available at hhs.gov/ocr/office/file/index.html. 407-303-5600 407-303-3025
14 15
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